Patient Stories

Rheumatoid Arthritis

Doreen 2021 USA

“My first sign was an index finger that was painful and swollen. Before I knew it it was both hands. An encounter with someone shaking my hand which felt like they were intentionally trying to”

Ankylosing Spondylitis

Kathryne 2020 Canada

“I always had a more fragile body when it came to aches and pains, but then one day, my whole life was turned upside down. The pain was...what I call, the human torture chamber. The”

Scleroderma

Donna 2020 USA

“My name is Donna Celeiro, I am 71, and live in Saugerties, New York (USA). I have had systemic scleroderma for 50+ years; it took me an unbelievable 27 years of searching and trying countless”

Scleroderma and Lyme disease/MSIDs

Janet 2020 Canada

“In 2002, the good health I had experienced all my life was about to change. I noticed a bump on my chest after attending a country wedding --- it was like some kind of an”

Rheumatoid Arthritis

Debbie 2019 USA

“Today I heard the words that everyone who is diagnosed with Rheumatoid Arthritis lives to hear - "Your blood levels are NORMAL". I was diagnosed with RA almost 4 years ago and, although I never”

Rheumatoid Arthritis

Catharine 2019 England

“The availability of the internet and the finding of the Road Back website saved me. After a year of low white blood cells/bit unwell, I suddenly got swollen joints in Jan 2014 with a slightly”

Rheumatoid Arthritis

Brenda 2018 USA

“I was diagnosed with RA in 1997, several months after my second child was born. Tried quite a few different treatments over the years but could not find consistent relief! Wound up going to Dr.”

Scleroderma

RJR1066 2018 USA

“In July of 2012 I woke up with numbness extending from my elbows to hands that quickly became painful. I normally ran 4 miles a day and within 2 months I was unable to even”

Scleroderma

Sharon 2018 USA

“Systemic diffuse scleroderma with RNA polymerase III antibody My symptoms began in Sept. 2014 with fatigue and high heart rate of 140 bpm per a holotor monitor. Other symptoms followed: hair loss, swelling in arms,”

Scleroderma and Polymyostits

Beverly 2018 USA

“Up until the Spring of 1988, I considered myself phenomenally healthy. I ran three to five miles daily, bench pressed half my weight, lead an active social life and was budding into my career as”