Patient Stories

“My move to a new house meant the need to decorate. I'd always considered myself reasonably fit and active, so the aches that developed whilst doing the painting and papering I passed off as nothing”

“The basketball game, bicycle ride, and dreams of being a fighter pilot all started to fade into the past for our then 7-year-old son. The pain actually began one year earlier when he was in”

“In April of 2002, I developed a bout of nausea that was unlike any other I'd experienced, leading to whole body weakness and a host of feelings that I can't really describe and shudder to”

“One year ago I was having trouble walking. My right hand was curled into a ball and my fingers shifted to the side, my left hand was starting to follow the right. I could not”

“Medical internship. A time for 90 hour work weeks. A time for putting into practice all my medical school book-learning. A time for no sleep. And a time for phone calls from Mom. "What do”

“From the age of seven, I set my heart on being a dancer. There was just something about it that captured my interest, and I soon fell in love with the magic of the stage.”

“Rafael, a psychology professor, began with symptoms around February 2000. At that time he had severe wrist pain alternating on both sides that would last 15-30 minutes at a time. It would recur at odd”

“I was diagnosed with Diffuse Scleroderm June of 1999. I was hardening inside and out quickly and by Feburary of 2000 I was bedridden, unable to walk barley ten steps and scared! My face, legs,”

“I am a sixty three year old male. In June of 1997, life was good. I was working as a manufacturers' sales rep, happily married for twenty-five years, and generally enjoying life. Then my world”