Patient Stories

Psoriatic Arthritis

Greg 2016 UK

“I came to this site in desperation in January 2016. I was about 10 months into the most intense flare that had me struggling to put on my socks and in constant pain from back,”

Lupus/Rheumatoid Arthritis

Tyndall 2016 USA

“At the age of 14 I came down with what we thought was a terrible flu, a fever and extremely achy joints and fingers turning white with no circulation.  My pediatrician tested my blood and”

Scleroderma

Susan 2016 USA

“My SD symptoms started in 2005 but I was not diagnosed until 2006. I took conventional rheumatology meds for almost a year but my symptom progression continued very rapidly. I could not: open a water”

Rheumatoid Arthritis

Ann 2016 USA

“I was diagnosed with RA in 2005. The original Rheumatologist I went to wanted to prescribe four (4) major drugs--all at once! I remember thinking, "what if I ended up with an allergic reaction to”

Rheumatoid Arthritis

Denise 2016 USA

“Though I didn't know it at the time, my story actually began in the fall of 1996. After school started that fall, I was tired and lethargic all the time; I just had no energy.”

Scleroderma

Sharon 2016 USA

“Minocycline works! My symptoms started in September 2014. I was diagnosed in January 2015 with systemic diffuse scleroderma. Heart was racing at 140 bpm. Rash on face. Swollen face, hands, fingers, legs, ankles and feet.”

Scleroderma

Adrianne 2016 USA

“So it all began with a little weakness in my hands. Then it was a whirlwind of immense pain, fatigue, appointments, blood work, testing, and traveling to specialists. I wont bore you, you've experienced the”

Polymyositis

Lisa 2015 USA

“In April 2014, I noticed that my leg strength had diminished. I mentioned it to a trainer, who said I could quickly regain that strength. She had me do various exercises including asking me to”

Rheumatoid Arthritis

Debi 2015 USA

“I was diagnosed with RA 16 years ago and put on a series of heavy duty drugs.  Every couple of years the rheumatologist would recommend switching to the "latest and greatest" high powered drug designed”

Rheumatoid Arthritis

Kay 2015 USA

“I was diagnosed with RA when I was 18 years old, in 1962, at which time they told me to take up to 12 aspirin a day. Just think, I have had RA for 53 years.”