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On Saturday mornings at 7:00 on the pbs radio is the “Peoples pharmacy” program. They were talking about the fact that most of us do not get enough Vitamin D. Interviewed a doctor who said that people with RA especially need more vitamin D which will actually help our RA. I know this has been discussed here before, but apparently it is important.
Vitamin D3, is what he recommends. Also its important to get the blood test for your level of 25-hydroxy vitamin D. especially if you have been grappling with pain.
There are a lot of people with RA that will not agree with taking more Vitamin D. Please search for Marshall Protocol (MP) with google or you can search on this forum as well. It did work in my case. Dr Marshall who cured his own autoimmune disease with his protocol is well respected for his ideas.
I discovered I was severely vitamin D deficient after breaking my wrist last October. Supplementing with prescription strength D dramatically improved my energy level and mood. Because the minocycline had already eliminated RA pain, I didn't notice any changes in that department. I currently take a daily supplement of 1000 IU. Had my level checked last week and haven't heard the result yet.
I've explored the Marshall Protocol, the advocacy of minimizing vitamin D intake to improve RA, along with other measures. Although some people here swear by it, I don't get a good vibe from it and would not pursue it.
Sierra
I just heard a repeat of the People's Pharmacy radio show about vitamin D. Interview with Dr. Bruce Hollis at the University of South Carolina Medical Center. He recommends that adults who weigh at least 100 lbs take 2,000 IU of vitamin D3 a day. Large people need more. He takes 4,000 IU/ day himself. He recommends 4,000 for pregnant women. He doesn't recommend cod liver oil for D because of the presence of vitamin A (it interacts with the D). People's Pharmacy has a website.
Sierra
My AP Doc believes most people with chronic disease are unable to metabolise sufficient D (D3 specifically). However, she believes that supplementation is not a one size fits all answer and needs to be individualised. Incidentally, I posted an extract on the calcium thread the other day regarding the importance of magnesium. People with RA and especially Lyme are often found to be seriously depleted in magnesium……..and we need magnesium to metabolise D3. Lynnie
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)[user=30]lynnie_sydney[/user] wrote:
My AP Doc believes most people with chronic disease are unable to metabolise sufficient D (D3 specifically). However, she believes that supplementation is not a one size fits all answer and needs to be individualised. Incidentally, I posted an extract on the calcium thread the other day regarding the importance of magnesium. People with RA and especially Lyme are often found to be seriously depleted in magnesium……..and we need magnesium to metabolise D3. Lynnie
My LLMD agrees with you, Lynnie. He says to take magnesium to bowel tolerance to find your correct dose. Personally, I know my body needs more Vit D……..I dread winter in Indiana and the lack of sun exposure, and know that even D supplementation does not give me the same sense of well-being as being outdoors. Even going to Florida for just a week in the dead of winter does me a world of good. I was on the Marshall Protocol and avoided sun and dietary D (big sacrifice for a girl that loves seafood) for 6 months and never felt worse in my life. Who knows, it may have eventually been the means to an end, but after 6 months of all my symptoms getting worse I'd seen enough to know it was not the right program for me. For others, it's just the ticket and the only program that has worked……….go figure. 😕
We all need to assess what works for us now and even reflect back on our childhoods and the simple basics that served us well then. As a kid growing up in the south we obviously had an abundance of warm sunny days. When we would get sick my mother would just send us outside to sit in the sun, not send us to bed with pills. It must have worked because I got an attendance award in grade school for going 5 years straight without missing a day of school. 😯
One last word before I get off my soap box……..K.I.S.S. (keep it simple stupid) :blush: I've been as guilty as anyone here in over-analyzing everything (mostly thanks to the ineptness of many doctors willing to cash my checks after giving me horrible advice). Pay attention to the pattern here……..the AP old timers are all saying the same thing……..the basics………look into food allergies, leaky gut, hormones, pH………..all players in screwing up your immune system. Yes, antibiotics will kill the infection, but you better be doing your part in strengthening your immune system and correcting imbalances to prevent revisiting this, which includes eating nutrient-rich foods, getting some exercise and finding a reason to laugh each day. We are naive enough to think our doctors are doing this for us, right? That is wishful thinking and at some point we need to take responsibility for our own health. Being sick with a chronic condition can and will suck you under if you let it ~~~~ don't let it!!!
All done. 😕
Take care……..kim
Move over on that soapbox Kim, cos I'm right up there with you!
Personally, I know my body needs more Vit D……..I dread winter in Indiana and the lack of sun exposure, and know that even D supplementation does not give me the same sense of well-being as being outdoors.
Incidentally, my AP Doc and Naturopath also say that you need 30% of your body exposed to get the D benefits from the sun. Lynnie
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)Hey All,
I just left a conference with the AAEM a couple of weeks ago and wish I could send info to everyone on this site. I was the only non MD there. I cannot write everything in this note for it would be a book but let me give the following. Please research and give your thoughts.
1. Home mold and environmental toxins greatly increase autoimmune illnesses and pain associated with it.
2. There is a new therapy called LOW DOSE ALLERGENS that is totally eliminating autoimmune problems. Look up W.A. Shrader, Jr. MD who is spearheading this effort.
3. The “buzz” of AP was at this meeting and one doctor went to the mic and told all the doctors to jump on board because this tx has greatly helped his patients.
4. One of the best probiotics while on this tx is from a company called Klaire LABS that was an exibitor there. You must be a doctor to get this probiotic but it is used by people who are on constant abx therapy. I tried it while I was there and my inflammation subsided in 3 days. Get your doctor to get this for you. I have access.
5. All doctors there had conflicting info but the main thoughts were. VITAMIN D3 in higher doses than FDA suggests, no wheat or gluten, SWEAT, SWEAT, SWEAT. The Infared Sauna is great but you must watch the manufacturers because some of the material emits chemicals in the saunas. I have a sauna but there should be NO smell in the sauna.
6. Look into adrenal support constantly.
I hope that this info was helpful to anyone. Blessings and good health. I had a GREAT time at this conference. A lot was over my head but I soaked in everything. Arizona was beautiful coming from Chicago. The ROADBACK was a constant conversation at this conference with over 200 MDs, NDs, and specialists.
LJ
Hey All,
I just left a conference with the AAEM a couple of weeks ago and wish I could send info to everyone on this site. I was the only non MD there. I cannot write everything in this note for it would be a book but let me give the following. Please research and give your thoughts.
1. Home mold and environmental toxins greatly increase autoimmune illnesses and pain associated with it.
2. There is a new therapy called LOW DOSE ALLERGENS that is totally eliminating autoimmune problems. Look up W.A. Shrader, Jr. MD who is spearheading this effort.
3. The “buzz” of AP was at this meeting and one doctor went to the mic and told all the doctors to jump on board because this tx has greatly helped his patients.
4. One of the best probiotics while on this tx is from a company called Klaire LABS that was an exibitor there. You must be a doctor to get this probiotic but it is used by people who are on constant abx therapy. I tried it while I was there and my inflammation subsided in 3 days. Get your doctor to get this for you. I have access.
5. All doctors there had conflicting info but the main thoughts were. VITAMIN D3 in higher doses than FDA suggests, no wheat or gluten, SWEAT, SWEAT, SWEAT. The Infared Sauna is great but you must watch the manufacturers because some of the material emits chemicals in the saunas. I have a sauna but there should be NO smell in the sauna.
6. Look into adrenal support constantly.
I hope that this info was helpful to anyone. Blessings and good health. I had a GREAT time at this conference. A lot was over my head but I soaked in everything. Arizona was beautiful coming from Chicago. The ROADBACK was a constant conversation at this conference with over 200 MDs, NDs, and specialists.
LJ
Thank you for posting this article. I always told my wife that the onset of my sudden RA has to something with moving into our new place. I found the doctor you mentioned in Santa Fe, New Mexico. You are right about the sweat part. I have started using sauna for the past two weeks or so and the pain is much less now than before.
One thing just confused me though as to why AAEM would discuss AP since this organization only deals with emergency medication and consists of emergency team doctors and related staff.
[user=738]lajones2[/user] wrote:
3. The “buzz” of AP was at this meeting and one doctor went to the mic and told all the doctors to jump on board because this tx has greatly helped his patients.
LJ
Thanks for the post, LJ, just made my day. 🙂
Would you be so kind to PM one of the volunteers the name of the doctor touting AP so we can be sure he's on our doctor list.
Thanks…..kim
Just spoke to Dr Shrader's staff today and found out several physicians from different states are using his LDA (not LDN) Low Dose Allergen protocol. Please click on http://www.DrShrader.com and click on contents. Then click on LDA physicians and find the physician in your city and state. Hope this helps. I asked her about the therapy for RA and she said several patients are using this therapy to alleviate their RA pain. Hopefully, all this helps everyone.
Increasing my vitamin D3 from 1000 IU daily to 5000 IU daily did a miraculous thing for me.
Not only did I feel better, but 3 herboden's nodules on my right hand shrunk significantly. Two nodules all but disappeared completely and are no longer noticeable. The 3rd most seriously deformed nodule is now barely noticeable. Full functionality returned to all 3 fingers.
My rheumatologist/LLMD said this NEVER happens in the field of rheumatology.
You couldn't take my Vit D3 from me without killing me first.
I also recently broke my foot when my baby horse stepped on it. It healed in half the time a healthy person's foot would heal. The Urgent Care physician said people with RA normally take twice as long to heal. The orthopedic surgeon was stunned at the “amazing amount of bone I had put down” …Her words.
I am certain Vit D3 plays a part in that healing as it does help the body absorb calcium better.
Susan
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