hello from australia

[jude19484]

Hi everyone. I have just found this most interesting forum and am looking to contact  other australians familiar with AP. I am researching to assist my husband who at present has been diagnosed with one of the spondyloarthropathies. We have been on the rheumatogical merry-go-round for 8 months now. But of course, I suppose that is nothing new to most of you.

The next step is to find a GP/specialist whatever in Melbourne, Australia, who is interested in AP.  We live in regional Victoria about 400kms from Melbourne.

regards to all

Jude

[linda]

Hi Jude,

I'm not from Australia, but I do have psoriatic arthritis (PsA) with spondylarthropathy. You and your husband have my sympathy, I hope you find a doctor and begin improving soon. Since you are starting AP so soon after being diagnosed, you should do well, altho sometimes PsA can be a little more stubborn than RA, I don't know why.

We have some really smart and helpful people from Australia, you'll probably be hearing from them soon. Best of wishes,

linda

[John McDonald]

Jude – We have just migrated to this new bulletin board software about a week ago so not everyone is aboard yet, and we haven't figured out how to work all of the bells and whistles yet. But there are 5 members listed as from Australia here:

http://www.rbfbb.org/view_user.php?country=Australia

 

Good luck.

john

Edited to add:

To all: if you list your country, state and if you wish your city in your profile then others may find that you are a neighbor. It could be helpful if they are looking for a doc.

[lynnie_sydney]

Jude – I live in Sydney. But I am about to go and see an experienced AP doc  in Victoria about 1.5 hrs out of Melb. There's another AP doc in melbourne. I will Private Message you their details (we dont publish names on a public board). To access the message just look up top right of the screen next to your name and it will tell you when you have a PM and then just click on it to access. Lyn

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[jude19484]

Hi linda ,pleased to meet you. I am familiar with PsA – it has been one of the dx until the dr changed his mind again!  I do hope you are having some success with treatment and that your spondy symptoms are not too severe.

I think the strict no-starch diet is keeping a lid on most of Bernard's symptoms except for very severe enthesitis in ankle/foot at present.

cheers

Jude

[jude19484]

Hi John, thanks for your response.

Is it melbourne in the pic?  Tall ships, japara and that hat?

Jude

[lynnie_sydney]

Jude I have just sent you a Private Message with doc details

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[jude19484]

Hi Lyn, so pleased to meet you!  Living in regional Victoria is quite challenging at times. There is such a shortage of services here.

Looking foward to hearing from you. Cheers Jude

 

[jude19484]

Lyn – thanks.

[lynnie_sydney]

Jude – you are welcome. 
As far as AP is concerned, there's not much advantage wherever you are because the AP docs are pretty few and far between in Oz.  Hence my travelling from NSW to country Victoria to see one. I've had great results with AP, and to date I've managed with a co-operative GP in Sydney – which can, by the way, be a good option if you are willing to educate yourself – and probably your doc!.

A very good place to start is “The New Arthritis Breakthrough” by Henry Scammell (order from Amazon) and there's alot of educative material on this site. You might also look in the testimonial section and esp. look out for anyone's with one of the spondyloarthropathies.

Best of luck and please let me know if I can be of more help to you. Lyn

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[jude19484]

Hi Lyn

Thanks for help. I have read the book and have been investigating  many approaches to the arthritis and spondy symptoms and yes, we are considering educating the new gp in town.  We have given up on rheumatologists in general at the moment.

Good luck with your visit to Melbourne

Jude

 

 

[John McDonald]

Jude – I've never been to Oz or even south of the equator. I've been to Singapore a few times, so right on the line, but never south. The photo was taken on a small square rigger right in my backyard, the waters off Los Angeles. These two little ships tour up and down the Pacific Coast of the USA and take children and families out to get a feel for the old sailing life. Despite the publicity about Southern California, our ocean is cold and so is the breeze just above it. So we bundled up.

[linda]

I SO feel your pain! One of my symptoms is enthesitis, and I had both Achilles tendons injected with cortisone about 10 yrs ago. I'm not sure i would do it again as it's very risky, as you probably already know, the Achilles tendon is very prone to tear and can only be fixed by surgery; a surgery that is not always successful. However, at the time I had 3 boys at home and a husband overseas in Bosnia, being able to walk was kinda important.

Currently I have enthesitis in both hips, which is aggravating a nerve that runs down the inside of the thigh and attaches to the inside of the knee. It's lovely!

I see that Lynnie gave you some info, I knew she would. You've got a good support system in the people here, but also in the members from Australia. all the best,

linda

[Anonymous]

I have a type of arthritis whose severity comes and goes and is not degenarative.   I feel alone as I dont see this type of condition discussed anywhere.  I have had the condition as a teenager and have been taking ibuprofen for the last 25 years which works, but side effects from long term use mean I have to find alternatives.
 
Anyone know of any good 'treaters' or rheumatogolists in the Bendigo or even Melbourne areas?

Robyn
Bendigo

[lynnie_sydney]

Robin I will PM you.  You will probably find  more help outside of rheumatology . They tend to precribe the heavy drugs and are not generally fans of AP.
To look for a message go to where your name is at top right and click on when it says you have a message. Lynnie 

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[Author]

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