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Hi All!
I just want to say that first of all my Scleroderma symptoms have gradually disappeared until I can’t tell if I even have the disease anymore (I know I still do because for whatever reason my ant scl 70 test always comes out VERY positive). However I just want to say that AP does work and that their really is hope!
On to the “glitch” in my recovery. In November of 2010 I went for a CT scan because I was feeling like my internal organs were too big for my insides. It’s a very strange feeling, though not painful. My wonderful doctor sent me for a CT to make sure everything was okay. That same night I was walking up to bed when I heard Jack’s phone ringing. I answered it (11pm) and it was my doctor (I knew this couldn’t be good). She asked me to put her on speaker phone and get Jack (really not good). She said that she had just gotten off the phone with the radiologist who was pretty certain that I had Lymphoma. She said that they would have to do a biopsy to be sure and because of where the “cancer” was I would have to do surgery to diagnose.
I went to see a surgical oncologist 2 days later who said that he thought I was ‘fine” and that I had “scleroderma balls” (never heard of them, never found proof of their existence on the web). But he did want to go in and biopsy them just to make sure. I had surgery the following Monday (less than a week from the phone call). THey had to do open abdominal surgery because of complications of bleeding and because the lymph node they biopsied was behind my aorta. I woke up to horrendous pain and had a rough experience at the hospital (I was discharged a couple days early so my nurse and NP could leave work and go home early because of the holidays). because of this I was readmitted to the hospital 3 days later for 4 more days. The day I was remitted while I was waiting for a hospital bed (I had just sent Jack home for clothes) a doctor comes in and says, “so how you dealing with the cancer?”. She didn’t know that no one had given me a diagnosis. THe last we had heard I had Scleroderma balls and was good to go. I freaked.
To make a long story somewhat shorter Jack and I were blessed to have the knowledge about AP and alternative treatments and we started researching our options. My form of cancer (follicular lymphoma) is considered non curable by conventional medicine, but so is Scleroderma. I have opted to use alternative, yet effective treatment to “cure” this disease. I have found that as with Scleroderma, cancer also has a long history of treatments that don’t really work and statistics that have been “played” with. I have created a website about my journey and what I am learning along the way about cancer treatments, I also am blogging my journey if your interested or know someone fighting cancer please tell them about http://www.cancerwillnotwin.com
God bless all of you on your journey
Jennifer
WOW, talk about an obstacle. My heart goes out to you.
You certainly sound like a fighter and someone with a positive attitude and sometimes that is the deciding factor in healing.
I know you will get better and Mike and I will keep you in our hearts and prayers.
Sending big hugs and positive thoughts from Texas
LanaThank you!
I appreciate your thoughts and prayers. You are right, I am a fighter and I am fighting this with everything I have. One thing I didn’t say in the message was that 3 months after major abdominal surgery (and with a PICC line in my arm) I ran the Shamrock 1/2 marathon (13.1) miles. I will continue to fight and because of how scattered info is on alternative treatments for cancer I am hoping that my journey through alternative treatment and recovery will help someone else.
Bless you!
JenniferJennifer,
I am devastated to hear your news, especially after such a remarkable and inspiring recovery from SD. I will be praying for you every single day, and most of all for your beautiful family who truly need their mother and wife. I am especially moved by what you are going through because I am a 35 year old mother of 3 and my greatest fear is exactly what you are bravely staring down. Please know if you ever need support or a friend, I am here for you.
Warmly,
andreap.s.1 – Oh, I forgot to mention LDN. Have you looked into this for cancer treatment, as an addition to your protocol? When I was researching low dose naltrexone for my own issues I saw a lot of people taking it for cancer with very good results. http://www.lowdosenaltrexone.org/ldn_and_cancer.htm
p.s.2 – I read somewhere that tetracyclines have been associated with an increased cancer risk. With you and Redrock both dealing with a type of cancer right now, I would love for any volunteer to share information about the association between abx and cancer. I may end up asking that question on the board.
Andrea,
Thank you for your support and encouraging words. Yes I have been on LDN for over a year now (I started it as treatment for scleroderma and I knew that it helped with cancer).
Actually my husband found a few very encouraging reports that show that Doxycycline has anti-cancer properties (http://www.pdazzler.com/archives/1092 has the article, http://www.freepatentsonline.com/5668122.pdf). I also seem to remember seeing somewhere that Minocin helps prevent the cancer from getting into your bone although I do see that taking Minocin can increase your risk of thyroid cancer and breast cancer so I guess it’s a wash.
However my type of cancer is not from Minocin, according to my immunologist is associated with low immune function(worsened by high intake of aspartame and high fructose corn syrup). I have a very low IgM and he said that most of the autoimmune and cancer patients he sees are low in IgM. Apparantly the key to successfully fighting cancer is by increasing your immune system to a “normal” level. With low IgM this proves to be difficult because their is no known fix. There have been reports and research now suggesting that taking Tagamet twice a day can help boost IgM, at this time their is no known “conventional” treatment. However I recently came across something called GcMAF that seems to be the answer to this problem. Unfortunately you can’t get it in the states, but it is available overseas at http://www.gcmaf.eu I have started taking it as of Saturday so I am praying that it works.
Part of the problem with both scleroderma and cancer is that you may “fix” the scleroderma or put someone in remission who has cancer, but the trigger that caused it (low IgM, or IgG, or IgA) is still there. I want to get a permanent remission from cancer and hopefully “cure” my scleroderma once and for all so I am trying to boost my immune system anyway I can. I am currently charting my IgM (right now its a low 26) and it will be interesting to see what 8 weeks of Gc MAF do for me. I am going to get a PET scan (to detect cancer) again in June so it will be telling if the cancer shrinks. I will also do labs to see what my IgM is then. The other interesting thing related to scleroderma is that even though I have no symptoms of scleroderma my anti-scl 70 is still sky high so that may be another way I can measure whether the Gc MAF is working. My intention is to post all this info on my webpage http://www.cancerwillnotwin.com so that there is some record of whether this is working or not.
I appreciate your support and look forward to hearing from you again.
take care,
Jennifer
Jennifer,
Wow – thank you so much for replying so quickly and for posting all that you know about IgM. I take it there is a blood test for that kind of thing? Do you know what it is called? That is fascinating.
I did read through your entire website earlier today and am so inspired by what you are doing. You really sound to me like an incredible person and a born fighter; someone who will not give up and only accept victory. I have the gut feeling that your battle through this is going to yield amazing results and that you may be paving a new road back for people who suffer from cancer.
If no-one else has told you today, let me just say that you are a wonderful mother to work so hard to be there for your kids. I don’t know how old they are but I am sure you are their hero, and that your ultimate successful healing is going to shape their outlook on everything in life.
Please take care and keep us posted on your recovery! I have huge faith that it is going to happen.
Warmly,
APS – I just read Dr. Yamamoto’s 2008 study on GcMAF for prostate cancer and was blown away. That is fantastic stuff. I know you will be well. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2510818/ Thanks for taking all my worries about cancer away today 🙂 This board never ceases to totally blow my mind. The healing that takes place here is phenomenal.
Andrea,
It was great to hear from you and your encouraging words mean so much to me. So many people are afraid to talk about the big “C”, but I find it very freeing to talk honestly and openly about it. I think that we need to do that more often. Too many people try to hide the fact that they have cancer, but I say that if you have cancer than it is a part of who you are and if you don’t share that part than you are only sharing a piece of who you are. I understand that some people are more private than me and I totally respect that, but for me openness about what I am going through was the only way.
Yes there is a test for IgM (it actually is IgM). I would encourage you to get it, it would be good to know if you are positive so you can take active steps now to boost your immune system. I am slowly adding to my website everyday, so even now I have added a few new things.
My kids are 19, 16, and 10 I see you have 3 kids also, how old are they? DO you live in the states or overseas?
If you have any other questions feel free to ask. Also my email address is on the other website if you would rather talk that way.
Take Care and God Bless
Jennifer,
I’m sure you’ll be able to put the cancer in remission just as you did the scleroderma. I have been reading up on iodine and have found some interesting info on it in Dr. Brownstein’s book “Iodine, Why You Need it, Why You Can’t Live without It.” Dr. Brownstiein has followed patients he has treated with iodine and other holistic treatments who have reversed or stopped the progression of their cancer. The cancers that he has specifically mentioned were breast and prostate but I still think it is worth looking into. He believes that iodine is crucial in the role of apoptosis (timed cell death).
Here’s a link to a forum devoted to treatment of breast cancer with iodine:
http://www.breastcancerchoices.org/iodineinvestigation.html
I wish I had something up my sleeve for your specific cancer but hopefully you’ll find something in this information that will lead you in the right direction.
Dear Jennifer,
I have just noticed your post. I am still to read your website. I’m posting now to let you know that I personally know a handful of people who survived cancer, my mom being one of them (breast carcinoma twice: 34 years ago and 6 years ago), 3 of them had metastasized cancer, 2 took conventional treatment, one with prostate cancer refused surgery, radiation and chemotherapy and only did all kinds of unconventional treatments (herbs, energy vibrational healing, Reiki, urine treatment, meditation: all kinds of happy and healing visualizations throughout the day, juicing, Budwig diet) and he died 12 years later of unrelated causes (blood clot embolism after breaking his leg). Still another friend healed knee cancer by focusing and giving energy boost to the good, healthy cells only. She totally disregarded the sick cells and was using visualization and the power of the mind to help all the healthy cells get stronger, more vibrant and active in spreading the health. She won!!! She’s been healthy last 15 years. I have a friend with AIDS who boosted his killer cells from 4 in 1 ml of blood to over 600, which is still low, but he doesn’t get sick with colds or anything else anymore. He took conventional anti AIDS treatment and then he was taking medicinal mushrooms, uses H2O2 for brushing his teeth and drinks very small amounts of diluted peroxide, food grade, daily. He changed his diet to a totally healthy one, eliminated all sugar, gluten and for a while starches, too.
I think that everything can be turned around, the will to live, positive outlook being immensely important. You have so much to work for you, having been actively working on SD. You have gained knowledge, experience and understanding of how the body works, what can be done to optimize its various functions, and that is HUGE help. Your approach is wonderful, I have no doubt that you will win through this and inspire others to gain victory. I believe that it is very important, while healing all the physical issues, to also work on healing any unresolved emotional trauma and constantly surround oneself with love and send love to weakened, depleted cells and organs. When we are depleted it is not that easy, but invoking God or whatever image stands for total love, and then basking in that love, can be very healing.
There are many unconventional protocols that can be incorporated alongside the conventional treatments, lots of wonderful herbs, oils, mushrooms, lots of beautiful healing meditations, lots of prayer circles offering free healing energy. I apologize that I am probably repeating what you already know very well. I rejoice that you have loving support of your husband. And I know that all people on this forum are rooting for you, wishing you joyous victory. May the whole space be filled with wonderful healing, loving, sustaining energy so that you gain vibrant health in no time at all! Much love, KrysParisa,
Thank you for the info on Iodine. Thanks to my husband I have been taking iodine for over a year now, so hopefully it is helping. Also thank you for the link to the web site, you never know what new info is waiting to be found!
Peace,
JenniferKrys,
Thank you for the encouragement and hope that comes with hearing success stories on beating cancer/HIV. It really gives me the strength to keep fighting. I also agree that the will to live and the strength to fight play a huge roll in beating cancer or any disease. I recently made a concious choice to also keep a positive attitude, which means that I am no longer watching the tear jerker movies that I used to like.
I am lucky to have a wonderful supportive husband who has fought this fight with me every step of the way. Faith is also a powerful healer.
Also I just wanted to add that I have started a treatment called Gc MAF that I talk about on my website and also have links to videos about it that might benefit your friend with HIV. They have found huge improvements in health for people with HIV and cancer with this treatment.
I really appreciate your support, it’s great to have people to encourage you when you need it. This site is so awesome for that!
Peace,
JenniferJennifer – just wanted to say how sorry I am to hear your news and add my heartfelt support to the way you are facing and dealing with this new obstacle in your path. You are so right that people seem to have this great fear around cancer and even saying its name. My best friend was diagnosed with an unusual and extremely aggressive breast cancer in 2000 – an enormous, fast growing tumour that meant the cancer was almost at stage 4 before it was discovered. Even though she initially did have conventional treatment, this was mixed with a great deal of alternatives – including diet, meditation, reiki and a host of other things, especially a healing group in which cancer became just a word that no one shied away from and in which much laughter was a permanent feature. She also told her oncologist from day one ‘by all means give me diagnosis, dont ever give me statistics. I am not a statistic’. 11 years later, there is no sign of cancer in her body. I wish you the very best in this unasked-for new journey, it sounds as if you have the strength, the will and the support that make all the difference. Lynnie
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)Lynnie,
Thank you for your support and for sharing your friends wonderful road back to wellness. These are the stories that give us strength and I am so glad that your friend fought cancer and won. That is why I am so excited about talking about cancer because I think we can win this fight. I think we just need to find the right tools for the fight. I have started a web page that I hope will be something like the blessing that road back has been for AP. I really think that with cancer we need to “think outside the box” and not be afraid to try something different. I plan on documenting my progress at http://www.cancerwillnotwin.com and I hope that I will be able to reach people who need encouragement and strength to continue their fight against cancer.
Thank you,
Jen
Jen – just adding that I have had a good read of your website and want to congratulate you on it – there’s a wealth of information there and it’s so great that you have chosen to share what you have learned/are learning with others. Lynnie
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)Jen – one more thing. You may be interested in this thread. There are 4 posts in it by a member called whitefoot who posted a few times here re his wife’s use of LDN. What may be of particular interest to you is that his wife developed RA 10 years down the track after colon cancer that had metastasized to the liver and he mentions various ways they had addressed this. Lynnie
viewtopic.php?f=1&t=4084&start=40Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)
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