New obstacle in my road to recovery

[Donna RA]

Jennifer,

First of all, I was so sorry to hear of your diagnosis of cancer. I just read a very interesting article in Life Extension. The drug Metformin has some very interesting anti cancer properties. I found an article online about it.

http://search.lef.org/cgi-src-bin/MsmGo.exe?grab_id=0&page_id=1144&query=metformin&hiword=METFORMINS%20metformin%20

Also, you may want to google “IPT” as a possible alternaltive cancer treatment.

Have you ever been tested for Lyme?

Best Wishes for a speedy recovery,
Donna RA and Lyme

[jlc6166]

Lynnie,

Thanks for the informative link. I am going to do some more research on it. Do you know if whitefoot is still a part of this website?

Peace,

Jen

[jlc6166]

Donna,

Its so funny that you mention IPT because next Monday I am traveling to New York to start IPT. I am going to be taking it with IV vitamin C and a bunch of other supplements.

I have been tested for lyme several times but have never tested positive. I have tested positive for Babesia (sort of like lyme) and Epstein Barr Virus.

Thanks for the link I really like and respect LEF and am looking forward to reading what they have to say.

Peace,

Jen

[mlouise]

Dear Jen and others posting on this strain,
Thank you so much for all this info on cancer, tracking methods, healthy lifestyle and healthy mental and spiritual outlooks. I don’t have cancer, but the thought especially for my husband has always been worrisome. ALL his relatives have died of it before age 60. He lives much heathier than they ever did, but the worry is still there that it may not be associated with environment, but genetics. Your website and the links that others gave are very encouraging. Even if cancer should reveal itself, there is hope. I am especially glad to see so much being done without conventional treatment since that seems in many cases to be a discouraging downhill slide. Thanks to all for your info and strength of character. mlouise

[Donna RA]

Jen,

You probably already know this, but just in case, a positive Lyme test is not necessary. Did you see a Lyme literate doc to review the results? and, did you treat the Babesia? The fact that you have EBV also, is a good indicator that Lyme is in the mix too. You have enough on your plate now to deal with, but you may want to keep this in your thoughts.

I used IPT several years ago, with anti-biotics rather than with chemo, for treatment for RA. Didn’t know at the time I also had Lyme. It helped so much, at the time. The process is not bad, be sure you have something to eat and drink (Gatorade) at the Doc’s office, so you can get your blood sugar back quickly.

Donna
RA and Lyme

[Maz]

@jlc6166 wrote:

I have been tested for lyme several times but have never tested positive. I have tested positive for Babesia (sort of like lyme) and Epstein Barr Virus.

Jen, I don’t know if this is going to help or not, but I felt you might be interested, especially in light of your positive babesiosis test…it’s quite a different bug from Lyme, because it is a protozoan, so needs a very different mode of attack in terms of anti-microbials (from low dose AP, that is).

I was watching the IOM (Inst Of Med) hearings on the Gaps of Understanding in Lyme Disease, last fall, and a speaker from Yale, Dr. Krause, a babesiosis specialist presented. His presentation literally caused my jaw to drop, because he described a retrospective study of chronic babesiosis patients who had all suffered from immune suppression, either as a result of losing their spleens or having been on the drug, Rituxan. All patients in the small cohort (I think there were 11?) wound up with lymphoma. The correlation to chronic babesiosis, immune suppression and lymphoma was very powerfully looking like it was tied to causation. Course, you can imagine what was running thru my mind at the time…could this infection be causing lymphomas in immune-suppressed rheumatic patients????

Hard to say if you have Lyme or not – an LLMD would treat it automatically if another tickborne coinfection is present as only 50% of people show up positive on standard Lyme tests, as it’s so immune-suppressive and blocks antibody production. Thing is, unless one gets a tainted blood tranfusion, there’s not many ways a person can get babesiosis, except through blood-to-blood transmission or the bite of an infected tick or other insect (malaria, an organism like babesiosis, is transmitted by mosquitos, for instance). You’ve been on AP for a while and this may well have treated any borrelioisis and kept it at bay, but untreated babesiosis or other tickborne coinfections can leave patients very unwell. I spoke to a lady in MA to whom this happened. She’d been treated by Dr. S for about 15 years with AP and IV clindy (after synchronously bumping into Diane Aronson who told her about AP), her RA went into remission and then she developed breast cancer. She went through the various treatments for her cancer, which was controlled, but then her RA returned with avengence soon after. At this point, AP wasn’t enough. She then sought out the help of a LLMD in NYC who got her on aggressive anti-babesial treatments, after clinically diagnosing the infection and then sent off her bloods for analysis – they came back highly positive for babesiosis and, strangely negative for Lyme (her RA began with a bulls-eye = Lyme, no matter what tests say). Ironically, she’d been treating the Lyme unwittingly all those years and got it under control, but the babesiosis had never been properly attacked. Her babesiosis treatments helped her to avert knee replacements and, last we spoke, she was headed back to remission.

I read in your posts to Andrea that your IgM was very low, which initially piqued the thought-process cogs and babesiosis immediately came to mind, but when I read the above that you actually had tested positive for babesiosis, just felt it might be worth mentioning that while you are going through IPT for your lymphoma, it might also be a good idea to be treating babesiosis at the same time. I’ve done a little research on IPT in the past and know that it potentiates chemo via glucose to enable more effective transport of chemo into cells so that less is needed. This would also likely mean that lesser doses of abx for babesiosis would be needed, too…though this is just speculation.

There is a top LLMD in Washington who I think is right on your doorstep who has done quite a bit of research in AIDs and immune dysfunction which led him to Lyme disease and the immune suppression/dysfunction caused by this serious set of infections. He might be just the guy to see in this instance, though I know he’s pretty booked. However, your type of case may well take some priority? I can pass you his contact info if you’re interested?

Here is the link to the IOM meetings that you can watch online. Just scroll down to Peter Krause’s talk on babesiosis. I think it was the second half of the first morning (10.20am) of the meetings, but will search further if you can’t find it yourself. I’m going by memory here, because I think he spoke at another point during the conference, too.

http://www.tvworldwide.com/events/iom/101011/default.cfm?id=12856&type=flv&test=0&live=0

Surveillance, Spectrum, and Burden of Tick-Gorne Diseases, Part 2

“10:20 am Recent Understanding of Babesiosis: Clinical Manifestation, Co-infection, and Research Needs
Peter Krause, M.D. (confirmed)
Senior Research Scientist
Lecturer in Epidemiology, Microbial Diseases
Yale School of Public Health”

Jen, this really is a “connect-the-dot” type of thing on my part, as I’m no expert. I just felt it might be very relevant to you in light of Krause’s research that seems to tie lymphoma to chronic babesiosis and that this might help in some way in your researches? I hope so…

My hubby is a cancer survivor and I am absolutely convinced he is now cancer-free as a result of both his treatments and his positive attitude. I know you’re an amazing woman and Jack loves you to bits….so I have every faith you’re going to get through this next challenge. You have lots of friends here, too, and we’re going to be rooting for you all the way. 🙂

Jenn, this is a post-script:

I also received an incredibly interesting article written by a member here who is a medical writer. His research and writings led him to the Cancer Microbe theory and Livingstone’s research, so this came to mind, too, in light of your low IgM. What Livingstone essentially discovered was that cancer cells had HcG (human chorionic gonadotrophin) on their cell walls surfaces. HcG is a glycoprotein hormone that is produced when a woman is pregnant, as it suppresses maternal immune function to prevent fetal rejection.

http://en.wikipedia.org/wiki/Human_chorionic_gonadotropin

The interesting thing about HcG is that it holds a negative charge…but so do white blood cells – the very cells needed to go in and clean up cancer cells. This produces a polorizing effect that causes cancer cells to repel WBCs. Livingstone was reviled by the medical community at the time for her Cancer/Microbe theory, as she was treating cancer patients with some amount of success when others weren’t…much like our LLMDs today. I have a PDF article that this medical writer chap wrote and kindly sent to me that you might also find interesting, if you’d like to send me your email in a PM?

[jlc6166]

Donna,

Actually my primary doctor is a very thorough lyme literate doctor who people travel from all over to see. I am lucky that she happens to live in my area. She is the one who found the cancer YEARS before any else could have. She tested me with every test for lyme she could think of and they all came back negative. I am being treated for the babesia and I now test negative for it and the Epstein Barr Virus shows up as an old infection not current.

Thanks for the tips and info on IPT.

Peace,

Jen

[lynnie_sydney]

Do you know if whitefoot is still a part of this website?

Jen, he hasnt been around recently. But you could try sending him a Private Message (PM) and he would get notification of this via his email. To send, just click on 0 new messages above and write a message to his forum name. Lynnie

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[jlc6166]

Thanks Lynnie!

[jlc6166]

Thanks everyone for your thoughtful replies and support.

Peace,

Jennifer

[Noraclaypod]

Hey Jennifer,
I have a document called the One Minute Cure which gives instructions on how to defeat cancer using Food Grade 35% Hydrogen Peroxide. The basic premise is that it’s able to super oxygenate your body, stimulating your body’s own natural ability to destroy cancer cells. I bought the peroxide, which keeps very well in the freezer (it loses less than 1% of inate qualities a year) from a local source. It’s free of toxic stabilizers found in regular peroxide, and perfectly safe to drink mixed in distilled water.

My mother and grandmother both died of breast cancer, and my maternal grandfather also had breast cancer, so with those kind of genetic markers, I fully expect to get cancer myself. I wish I had known about peroxide while they were alive, because I believe it could have saved them.
I’ll never let anyone chop off both my breasts, use Cobalt radiation on me, or drip poisons into me, because that destroyed the quality of my mother’s life. I think it’s quite true that what kills many cancer patients are the treatments or more acurately the “over treatments” they receive from a screwed up, over zealous medical establishment that embraces drugs and horribly expensive surgery, not nature.

I think this document might really give you some hope, and the best part is it’s a natural compound. I myself have followed the instructions and taken a few doses, and I give it to my cats (who LOVE it) when they have a sinus or gum infection. They mob the water bowl like you wouldn’t believe, which leads me to believe they know something we don’t. PM me if you’d like more info.

[Trudi]

Here is some very thorough and good information on H2O2–

Hydrogen peroxide is one of the few simple miracle substances still available to the public. Its safety and multiple uses ranks it right up there with DMSO. If you’ve never used either of these compounds you are overlooking two of the most powerful healing tools ever discovered. Most of us started on hydrogen peroxide shortly after birth. Not only does mother’s milk contain high amounts of H202, the amount contained in the first milk (colostrum) is even higher. This seems only reasonable now that we know one of its main functions is to activate and stimulate the immune system. Although I am a strong supporter of H202 therapy, I am not suggesting that everyone needs to be using it. There are probably some individuals whose health and well-being would not be enhanced with hydrogen peroxide. But there are also millions of others who are suffering needlessly because they either do not know about hydrogen peroxide or they have been misinformed about its use.
http://www.educate-yourself.org/cancer/benefitsofhydrogenperozide17jul03.shtml

In hopes of getting rid of bacteria in my mouth, I recently started rinsing my mouth with hydrogen peroxide twice a day. I was just at the dentist’s office and both the hygienist and the dentist commented on my healthy gums.

All the best to you,
Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[nursehankie]

Donna,

I would like to know if IPT is working for you?
What meds did you use and how many did you get?
I am having my second one, but unsure if we have the right protocol.
I work for a doc who does IPT, but hasn’t done it for RA, just cancer.

Any input would be great!
I can’t get any of the clinics to let me know.
I also want to know your personal experience with it, any Herx?

Thanks!

[Jan Lucinda1]

Trudi-

How do you get past the taste of the hydrogen peroxide to rinse twice a day?

Jan

[lynnie_sydney]

Jan
I use hydroegn peroxide also as a mouth rinse – use 1/3 to 2/3 water and also some sea salt. Dr Hedberg has said that it’s the world’s best mouthwash. Dont find any aftertaste a problem. Lynnie

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

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