Home Forums General Discussion "Vitamin D May Exacerbate Autoimmune Disease"

Viewing 15 posts - 16 through 30 (of 44 total)
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  • #370543
    A Friend
    Participant

    @mary77 wrote:

    AF,
    Just wanted to share a product I have recently started taking for the gut. I started taking it after communicating with the company for several days…getting my questions answered. (I always have a LOT of questions!!) It was recommended to me by my Lyme doctor. They have a proprietary blend of probiotics…their website offers information on all of their products which I find helpful.

    I realize our bodies are all different in our needs and that includes probiotics. This product has worked well for me!

    The product is Beta-Glucan by Bioimmersion. The website is: http://www.bioimmersion.com

    Just thought i would share this with you.

    Mary

    Mary,
    Thanks for you post, and for the information on Beta-Glucan by Bioimmersion. Am sending myself a note to look into this as soon as the holidays are over, etc. I’ve been thinking I want to rev up my probiotics, and make my body’s “microbiota” a good place for healthy organisms to thrive. Plan to read more about this information.
    Thanks again,
    AF

    #370544
    A Friend
    Participant

    These references may be repetitions, but will paste them just in case they have not been added. Afraid I’ll lose or forget them.

    http://www.vitamindcouncil.org/blog/statins-and-heart-health-is-vitamin-d-the-missing-link/
    Site and links on Vitamin D research in many areas. Research showed also lots of changes to large number of genes with Vitamin D therapy.

    http://www.ehow.com/about_5372765_adverse-side-effects-vitamin-d.html
    Excerpt from above link: Vitamin D3 is only available from sunshine or animal products. Good sources of D3 include seafood, beef liver, cheese and egg yolks. No side effects have been recorded from low doses of vitamin D3, but overdosing can cause serious consequences….

    Read more: http://www.ehow.com/about_5372765_adverse-side-effects-vitamin-d.html#ixzz2ZJI16AdB
    [excerpts have been copied/pasted below]
    Medical History

    #370546
    mary77
    Participant

    DAR,
    It might take awhile for your Vit. D levels to drop. It took me several months to notice an improvement after stopping a supplement that contained Vit. D. Might just take time…and avoid foods with added Vit. D…

    Hope things turn around for you…it is frustrating to follow a doctor’s advice and feel worse!! Has happened to me TOO many times!
    Mary

    #370540
    DAR
    Participant

    Thank you for all of your input, I have now stopped the vit D and I am going to do the things that you have done to help you, I was very interested in the probiotics that you got from bioimerrison company, I have always had trouble with getting the probiotics that would work for me, I get yeast infections all the times, I have tried many different kinds of probiotics, and they seem to work for a while then don’t do the job any more.
    I am just so glad that I seen your post about the vit D and that I can now work on getting back to feeling good again
    I will post when things start to turn around
    DAR

    #370537
    Krys
    Participant

    @DAR wrote:

    I have tried many different kinds of probiotics, and they seem to work for a while then don’t do the job any more.

    Hi Dar,
    http://www.crohns.net has got a line of very good probiotics at a better price than anywhere else. You may be interested in checking them out. I have no affiliation with the store.
    Krys

    #370538
    A Friend
    Participant

    Krys, and all of you posting on this subject. Some of the things I’ve recently tried that I believe are the reasons for the sudden improvement I’ve been having, keep ruminating in my mind. I decided a few minutes ago to do a search to see if there was anything written about bowel and related problems to the use of the several things I believe are helping me: i.e., coconut oil, health store sauerkraut, essential fatty acids as flaxseed oil, etc. Yogurt is even mentioned in this paper. I haven’t done this additional search yet, but it seems that a long time ago I might have read that some kind of probiotic retention enema might be useful to repopulate the bowel. (Will do that soon, but it’s late and I need to get to bed. Long drive tomorrow.)

    This is the information and site just found, that for me seems to have confirmed I’ve accidentally begun doing some of the best things for myself that are recommended in the article:

    http://www.westonaprice.org/digestive-disorders/how-to-restore-digestive-health

    How To Restore Digestive Health
    Written by Jordan S. Rubin, NMD, CNC
    Wednesday, 22 September 2004 14:33

    Excerpt below is from the paper in the above link

    #370535
    A Friend
    Participant

    Hello Everyone,
    I’ spent the last day of 2013 at the dentist office addressing a dental problem that both my local dentist and my former dentist (a holistic dentist in another city where I lived previously) which they both said needed to be addressed. These are the pieces of my puzzle I have put together over the last several days since the procedure — and my IBS suddenly, but completely stopped! Imagine that???!!!

    I wrote the following right before I came to the board to see what you might think of my afternoon finds:

    Have I found my answer to the reaction to high-dose D-3? and to the sudden onset of IBS with acute ongoing diarrhea for several months now?

    Amoxicillin 500 mg

    #370536
    Lynne G.SD
    Participant

    Hi Friend;
    As far as I know Vit D does not kill any bug.I have had major gut problems due to the fact that probiotic can’t keep up with all the antibiotics I have taken.Flagyl is the only thing that kills off the bacterial overgrowth that causes so much pain.Diet had absolutely no help.This is why I have moved on to the CIR protocol that uses so much less antibiotic and doing great now.If you can make their conference in Feb maybe you can ask this question.I know it will be somewhere in Texas but can’t remember which city.

    #370534
    A Friend
    Participant

    @Lynne G./SD wrote:

    Hi Friend;
    As far as I know Vit D does not kill any bug.I have had major gut problems due to the fact that probiotic can’t keep up with all the antibiotics I have taken.Flagyl is the only thing that kills off the bacterial overgrowth that causes so much pain.Diet had absolutely no help.This is why I have moved on to the CIR protocol that uses so much less antibiotic and doing great now.If you can make their conference in Feb maybe you can ask this question.I know it will be somewhere in Texas but can’t remember which city.

    Hi Lynne, and thanks for your reply.

    The new-to-me information is that on December 31, 2013, a week ago, when my dentist gave me an RX for the antibiotic following a dental procedure, and within a day or two caused the IBS to STOP and has not returned (this is concerning the many months of the sudden-onset of uncontrollable diarrhea that began when I had been taking the high-dose Vitamin D-3 my primary care physician had recommended and I’d been taking for two weeks or less. Even when I stopped the Vit D-3 immediately at that time… the IBS type symptoms have continued since that time, causing other debilitating symptoms).

    I’m now so relieved (and happy) for the IBS to have stopped. Also, I am hoping that this experience of mine may also be helpful to other patients and doctors who have encountered such an experience — where I apparently was not digesting foods/nutrients which was having other serious side effects after so long a time. This sudden/immediate cessation to the IBS is the answer to a prayer. And, for it to be associated with the same tooth/area that was involved in the onset of my initial chronic illness back about 1992, also amazes me now, so many years later. I thought that had been addressed. (Am thinking that having been on AP for a number of those years since, probably helped keep it under control. Even Dr. K, after the reaction to the Vit D, was puzzled and thought that I needed a workup by a digestive specialist… or a round of Flagyl. Looks like she was on the right track in her thinking.

    Lynne, I’m not sure what part in my last year’s dilemma the high dose Vit D3 played, but my thinking is that it really stirred something up almost immediately, and with the ImmunoPro creating a lot of glutathione, there were “fighting forces” in my body that were attacking the organisms that had been unleashed by “something.” And those were the only new “players” in the saga at that time.

    Thanks for your reply. I have the info on the CIR you sent, and would love to attend and hear what is said at the meeting.

    AF

    #370531
    cavalier
    Participant

    AF – I dunno if this will be helpful or not but I had 8 months of diarrhea. I was frustrated of course I was on ABX but it continued even mos after I stopped I told dr c. what was going on and he suspected food intolerances which isn’t unusual in not just autoimmune but Lyme allergies or just a weakened immune system. He tested me and I got 31 foods which I’ve done food challenges and it helped me to see by eating only that and the immediate resulting diarrhea to know for a fact what my culprits were. As u can’t have this occur for so many months without feeling robbed of nutrients. In your case it maybe the supplement D3 is a trigger or something u r sensitive too but u may also have other triggers that u maybe ingesting. For me almonds are one I was eating 2 handfuls daily one am one in afternoon for a healthy snack, other is garlic which I love, yeast which is in many foods.

    You may have thought about this but in case. In my case I had been eating these for a number of years but my GI got to the point either from my autoimmune SD or Lyme or from the ABX taken over so much time but I got sensitized and each time I would go back on ABX this would start in. I avoid these foods now and with time my stomach has healed I have no problems now for some time now almost a yr. and I can take ABX again without triggering a event.

    Best jill

    #370532
    cavalier
    Participant

    Oops I see in a later post that u may have figured out u had a hidden tooth infection. Hope u continue to feel better. Jill

    #370533
    A Friend
    Participant

    @cavalier wrote:

    Oops I see in a later post that u may have figured out u had a hidden tooth infection. Hope u continue to feel better. Jill

    Jill,

    Thanks for replying anyway. Hope you are doing well (or better) these days.

    The latest thing from me is that, no… I haven’t yet figured it out, but have recent information that has given me more information that I’ve had. If we are lucky, some of the researchers at LPI (at Linus Pauling Institute Micronutrient Research) have found some interesting information about micronutrients that work with Vitamin D that may shed more light on reactions of the body’s immune system “responding to bacterial invasion.” Hope this does shed light on why some of us react in such a volatile way to taking higher dose Vit D-3.

    I find research such as theirs very exciting… and I trust them and their motives.

    AF

    #370528
    A Friend
    Participant

    @DAR wrote:

    I haven’t posted for a long time, I had been feeling terrific, then I went in for my physical and my doctor came unglued that my vit D was so low and put me on 5000 units a day, I did not associate all the problems that are now popping up with that but it makes a lot of sense now, I started getting painless migraines with the wavey lines in front of my eyes or else it looked like I was looking through a broken glass that was going in circles, then things started to hurt just like when my SD was active, I have had patches of psoriasis appearing, my eye is twitching and my feet are burning on the bottom and I have loose bowels every few days, I was beside myself as what was going on, I thought that my SD was coming back with a vengeance, my acid reflux is bothering and my swallowing at times is an issue, I am stopping the vit D now, is there anything I can do besides taking my mino to get things back to normal,
    DAR

    DAR,
    Since I replied to your post above the first time, I “accidentally” found something that stopped the IBS… amazingly, almost overnight. You may (or may not) have read my posts more recently about choosing to have a tooth extracted — my only choices offered was a root canal or an implant, so I chose the extraction. This has been at least two weeks ago. I was prescribed Amoxycillin to take for about 7 days, three times a day. The IBS I had been experiencing for many months stopped almost immediately, on the 2nd day after extraction, and taking the Amoxicillin three times EDIT: daily. (I was afraid that after I took that last capsule, it would return, but it has not.

    Not only did the above stop the IBS, but I’ve also found a good bit of research showing the relationship of dental and other stealth infections, to taking high-dose Vitamin D supplements and IBS/diarrhea in some patients. There is quite enough research showing this can be a problem for people with stealth infections when they begin taking large doses of Vitamin D supplements (especially for those with rheumatic/immune disorders such as patients here on RBF FF) that warnings should be more visible, known, and frequently read about. I have been saving links and papers in a Word document. Lots of familiar names of doctors/researchers and their work are appearing there now.

    Hope you are doing better.

    AF

    #370529
    DAR
    Participant

    Dear Af Thanks for sending me that info about the amoxicillin, very interesting, I am going to try it, I am still plagued with the IBS and it is driving me bonkers, at work I am always running to the restroom and on a shopping trip I need to know where the restrooms are, my stomach is always rumbling, I will let you know how it goes
    Thanks Dar

    #370530
    A Friend
    Participant

    @DAR wrote:

    Dear Af Thanks for sending me that info about the amoxicillin, very interesting, I am going to try it, I am still plagued with the IBS and it is driving me bonkers, at work I am always running to the restroom and on a shopping trip I need to know where the restrooms are, my stomach is always rumbling, I will let you know how it goes
    Thanks Dar

    Dar,
    One more thing… in the research and links I’m finding and saving, Scleroderma has been frequently mentioned regarding these IBS type problems. I hope to organize some of the saved information/links, and will share it.
    AF

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