Still Confused -Sorry

[Sydnie]

Hello to all,

Im sorry I know Ive posted a couple of times recently and I am most grateful for the replies I have received but Im still a bit confused-its me honestly!

Been on mino since Aug 07-very successfully-would say mainly symptom free since July 08. Had coil contraceptive implant fitted on 6th(now removed) and some symptoms returned. Spoke to my AP doc and increased Mino from MWF to M-F since last week.
Questions

1) Do people still flare after taking mino so long and feeling quite well? due to other factors?

2) More old symptoms are returning each day, does this mean Im back at square one and need to start all over with the AP or does that happen with a flare or could this be due to a herx?

3) Have any of you been through this scenerio?  If so, how long did it take to see any type of improvement

Sorry this all confuses me a bit and you wonderful people always know the answers
All help will be appreciated.

Thank you
Sx:)

[lynnie_sydney]

Sydnie – from my perspective, looks like there are 3 possibilities here: (1) a change of protocol/dosage will often cause a herx. You have just changed your protocol and are in the time-frame to herx (apparent worsening caused by cell die-off) (2) Sounds as if your body may have been reacting to the “invader” and that has sparked off an immune response. (3) you could be experiencing a combination of both. 

Whilst worrying for you, it's probably worth waiting to see if things settle. Another option would be to ask your doc about adding clindy to the mix if things dont settle down soon, or you could consider emailing Dr S in Iowa for his perspective – he is very good at answering questions and also will work with other docs. Lynnie

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[Sydnie]

Thank you Lynnie

Thats re-assuring- definately think its a reaction to the Invader as u so rightly say.  Would a herx bring out old symptoms that I have not felt for years? we are waiting til next week to see if things settle – thats been  3 weeks now do theses flares normally take this lenght of time/longer?

Also I excersiced every day til this happened and I desperatly miss it as I really do think it contributes to my wellbeing.  Also should i take Ibrufen at moment or not-could manage without it,

Thanks soo soo much

 

Sx

 

 

[lynnie_sydney]

oh I didnt realise you are in the UK – any chance you could add your location to your profile? It will then come up under your name in every post. Of course you need to do something about pain and inflammation but I'd be cautious about using large amounts of any NSAIDs as they are hard on the gut. You might want to look for something enteric coated to avoid irritation to lining of the stomach – see info at this link http://www.tpub.com/content/armymedical/MD0809/MD08090111.htm. You could ask the pharmacist about this. Lynnie 

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

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