Serum tumor necrosis factor-alpha concentrations are negatively correlated with serum 25(OH)D

[A Friend]

[user=31]Lynne G./SD[/user] wrote:

Salut Michou;
     …..A FRIEND   is advocating  magnesium but if I remember correctly  TM has something to say about that also.I want to get the facts,check them out and then maybe try taking some.10 years on AP has been agodsend but if I skip my mino for a few days I get that stiffish feeling again so I know I am far,far away from permanent remission.  
          XXXXX

Lynne G.,

While I report information about a lot of things, I think of myself as sharing what I think is credible, good information, but not advocating or recommending anyone take anything.  I believe each person can read whatever is posted, evaluate it; and if it seems good to them, will hopefully discuss it with an informed health professional.   They should ultimately be responsible for making their own decision as to whether anything is right for them, as they are the most knowlegeable person on their history, and we are all different.   

I sometimes feel a strong obligation to share information on subjects I believe are  important; but what people do with the information is their decision.  The thing I do advocate is that readers become informed and become their own advocate.  I never want the responsibility of telling anyone what they should do, but only what I've done or what I would do under certain circumstances. 

AF

[Michele]

Hi Lynne,

Your orchids sound lovely!

I'm glad your SD is controlled by the current meds you are on.

The MP is creating a new site that is yet to be launched. I don't know their ETA on it, but the glimpses I've seen of it look pretty good. On the main site I usually keep up with Dr. Marshall's posts. He continues to research and present at conferences so his understanding of this evolves. I haven't kept up with some of the newer sites that have branched off of it…maybe when I'm on summer break I'll have some time to peruse them more.

Michele

[Trudi]

[user=50]Michele[/user] wrote:

How are you doing? You are on a lyme protocol? Has spring found Holy Hill? 🙂

Hi Michele–

I've had major improvements, but of late some setbacks (partly I think due to the damp and rainy weather we've been having).  Right now the doctor is backing off on the lyme treatment and wants to get rid of some of my heavy metal–specifically mercury.  Thanks for asking!

Spring is definitely here starting tomorrow when the warmup is supposed to start happening.  By Friday, we are supposed to have a high of 82 degrees in central Wisconsin; we've just had a couple of days of blustery, cold, rainy 40 degree weather–the warm weather would be wonderful!!!!

Take care,

Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Kim]

Hey Michele,

So nice to hear from you and that you are continuing to improve.  Good for you for being determined to make it work.

Take care…..kim

[A Friend]

[user=442]Trudi[/user] wrote:

[user=50]Michele[/user] wrote:

How are you doing? You are on a lyme protocol? Has spring found Holy Hill? 🙂

Hi Michele–

I've had major improvements, but of late some setbacks (partly I think due to the damp and rainy weather we've been having).  Right now the doctor is backing off on the lyme treatment and wants to get rid of some of my heavy metal–specifically mercury.  Thanks for asking!…….

Take care,
Trudi

Trudi,

Even though our basic diagnoses are a bit different (my original dx was said not even to be accurate, but probably was MCTD), I noticed from your post that we have some of the same problems — heavy metals, and for a period of time I had terrible pain reactions seeming to be from a buildup of byproducts from two abx, which put me over the edge. 

When I saw my new, local PCP the first time, he shocked me by asking me if I was familiar with Dr. Sherry Rogers (I had thought he would think a bit “out of the box” and was thrilled when he asked that question!).  I told him I had one of her books, which I had ordered because it had specific information on far infrared sauna use for detoxification.   He said with the ongoing problems I've had, he thought I should try the Detox Cocktail written about in the book. 

This first appointment was at the end of 2006 or first of 2007, when my pain levels had risen again early in 2006 and had escalated over 2006, when my AP physician was retiring and I was to change to Dr. K.  I needed this new local PCP, because I feared that the bone and fascia pain problems were because of something very serious — and I needed a local physician so I didn't have to travel a long way to see a PCP if I had BC.  Sure enough, “Impression” of the bone scans by the radiologist was my worst nightmare (my oncologist had ordered these scans).  Thankfully, after CT-directed bone biopsies were analyzed, no tumor was found.  Unfortunately, this “specialist” was able to tell me what it “wasn't”, but was no help in telling me what had caused these widespread bone lesions.  (Fast forward to finding the links to Dr. Seelig's work which I found many months later, discussing how magnesium deficiency can cause metastasis to bones, and other problems.)  

I am continuing with my local PCP (I think he is the greatest!), and Dr. K  (I think she is the greatest, too!) has me see her only when I have an AP-type problem, or think I need to see her.  I am so very greatful to have these two physicians in my life.  I began on this “road back” in January 1997, driving all the way from NE Texas to Iowa — yes, you guessed it, in blizzard kind of weather.  I'm grateful not to have to go that long way now, but I wouldn't take for the experience of having gone to IG, Ia, for seeing Dr. JS over nearly a 3-year period, and for things turning around like they did.  It was only about 7 years later that apparently waste toxins built up and led to the problems from about 2003-2006 when I “found the cause” of these new problems.  Now that I've FINALLY learned how my body needs help with detoxification and keeping my pH in balance, I am so very grateful for what I've learned so far.  It has greatly turned things around.  Being very acidic leads to multiplication of all kinds of viruses, bacterial, fungus, etc. [See post, can do search on RBFBB, for excerpt about this from Dr. Garth Nicolson about addressing these organisms — if you use these words, it finds Dr. N's words on this:  “nicolson + fungus”]

Sorry for the length of this.  It is not meant to tell you or anyone what to do — just to share my own experience, in case knowing this may be helpful to you. 

AF

[Michele]

Hi Kim,

I think of you often and wonder how things are going with your new LLMD treatment. The Lyme information you sent me was so helpful. I read a link Maz just posted last night about Lyme and it reminded me of the info you sent. I'm grateful my local doc will support MP for me as it addresses lyme and RA. You have a great line of focus to getting well…”whatever it takes.” So true. We all have to follow our intuition and experiences to find our path towards wellness. Finding the right doctor to help is critical. We just had an infectious disease specialist move into our community. Another RA MP-er and I were wondering how this new doc views Lyme. CDC narrow mindedness or practical field experience.

How are those grandkids? Still in Chicago?

I'm smiling now as I think about your advice of where to stop for fun in Indy last summer. That indoor water park was fun! Loud…but the boys had a blast. We'll be coming through Indy again this summer as we have our parents to visit and our annual Iowa reunion to attend.

Michele

[Kim]

Hey Michele,

I just answered your PM before I saw this post.  Yes, I have a great LLMD and am so much better.  I honestly believe there will be an end to this now.  Just hope I don't collect any new tick bites this year. :X  Staying indoors is just not an option after a particularly long winter.

Glad your little guys enjoyed the water park…..what little boy wouldn't?  Yes, I'm still making lots of trips to Chicago to see the grandchildren.  In addition to the twins we have a new granddaughter too (5 months).  Sooooooo sweet.

So happy to hear you too are lots better.

Take care………kim

[SilviaM]

hello all:

just thought I'd visit the site, I haven't been here in a few months, as I started MP in december '08.  It's been an interesting ride so far, I'm on modified phase II of MP, and I'm herxing a lot, definitely more than I ever did with AP, including IV clindy. So, I'm in pain pretty much all the time, with a few ups and downs, but I know it's killing the bugs, so I try and be stoic about it (and take pain meds!).  When I need to ease off because of business or social committments, I go down to the previous dose of abs, or take mino or benicar more frequently and in lower doses, which have a palliating effect.

I like that fact that on MP you don't have to worry about what bugs you have, what abs combo you need, one size does fit all.  And there are no additional supplements, so easier to do, and easier on the pocketbook.  As Michele said though, it's a long haul and you want to speed up the process, but it doesn't work that way!  I think I've become a total convert now.  Warmest regards to all APers, all the best,  Silvia

[Lynne G.SD]

Hey Sylvia;
     Nice to see you again.I have a friend in Toronto who is seriously thinking of trying MP but can't find a doctor.Could you pm me with his name and phone number and where she can get the olmesartan.
    I have often tought of trying this protocol but there is no way to avoid light when working in a greenhouse.
                      Lynne

[Trudi]

[user=28]A Friend[/user] wrote:

I am so very grateful for what I've learned so far.  It has greatly turned things around. 
Sorry for the length of this.  It is not meant to tell you or anyone what to do — just to share my own experience, in case knowing this may be helpful to you. 

Hi Friend–

Thanks for your input–the more I learn the better I'm equipped to fight this disease!!!!  Your posts have a lot of information and I appreciate the time you take to research on our behalf–

I was in the “northern woods” for the past four days.  Definitely tick country.  Hesitated to go, my stomach actually twisted with fear of the ticks; however, decided to go and spend time with family.  Glad I did–weather wasn't cooperative–rain most of the time, but definitely cozy inside.

Take care,

Trudi

 

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Michele]

Salut Michou;
…..A FRIEND is advocating magnesium but if I remember correctly TM has something to say about that also.I want to get the facts,check them out and then maybe try taking some.10 years on AP has been agodsend but if I skip my mino for a few days I get that stiffish feeling again so I know I am far,far away from permanent remission.
XXXXX

Lynne G.,

While I report information about a lot of things, I think of myself as sharing what I think is credible, good information, but not advocating or recommending anyone take anything. I believe each person can read whatever is posted, evaluate it; and if it seems good to them, will hopefully discuss it with an informed health professional.

All good discussion here…I just wanted to point out that I know Dr. B of MP fame also will suggest magnesium to patients.

Cheers!
Michele

[Author]

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