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It is my understanding that the Scleroderma Foundation is having their annual conference in July in St. Louis. Has anyone ever attended one of their national conferences? Do they discuss AP at all? I am trying to figure out if it is worth the time and money to attend. Thanks for your help, JoAnn
I don't know for sure but I would guess the answer is a big negative. Maybe some whispers in the corners. But I may well be incorrect.
Jeff and JoJo:
I think that Jeff is, in general, right on in his assessment of whether AP would be discussed at the SD Foundation National Conference. HOWEVER, I would like to share with you that at least the Texas Chapter of the Scleroderma Foundation has allowed a Road Back Volunteer to present information on AP at their meetings. It is a baby step, but a step forward none the less.
Cheryl
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