RA not responding to minocycline have to take methotrexate

[Coco]

Hi everyone I just had X-rays and ultra sound on both hands and wrists.Bad news stage 4 RA.Have taken mino for 20 years and now this bad news. She recommends methotrexate to stop the erosion and fusion. I’m scared! Any thoughts or help. I thought mino was helping me but no it wasn’t. I’m very stressed and nervous about taking methotrexate. Please help!!!

[PhilC]

Hi Coco,

How much minocycline have you been taking? And are you taking anything else to keep inflammation under control?

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[Coco]

Hi Phil:
I take 100 mg of mino twice a day on Monday Wednesday and Friday.
When I’m pain I take a naproxen 375 mg. But limit naproxen as I have an irregular heartbeat. That’s about it.

[PhilC]

Hi Coco,

It sounds like your inflammation hasn’t been controlled well enough. Since you are on pulsed dosing, you are not getting much anti-inflammatory benefit from taking minocycline. Has your bloodwork been stable?

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[Coco]

Hi Phil
I was following Dr Brown’s protocol for 20 years. Now I’m at a loss as what I should do next to reduce the inflammation without having to resort to methotrexate, which is a highly dangerous drug. I had two great AP’s both are retired. Not many AP’s where I live in Toronto, Canada. Therefore I’m asking this forum for some ideas as I am totally shocked that my RA is out of control. Thanks

[Coco]

Hi Phil. Yes my bloodwork has been stable over the years. A recent new test showed my RA marker is quite high.

[PhilC]

Hi Coco,

Coco wrote:

I was following Dr Brown’s protocol for 20 years.

Dr. Brown didn’t use an antibiotic by itself. He also used an NSAID, and sometimes even a low dose of prednisone.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[Coco]

I have naproxen so should I use it to reduce inflammation or anything else. Just wondering??

[Linda L]

Hi Coco,
How big is your RA marker?

RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygous

[Author]

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