New Member/Dakos peptides?

[zippy]

Hello,
 
     I'm a new member.  I hate to be off topic on my very first post, but this is time sensitive material that I need to make a decision and act on soon.   Some friends are going to Dr. Dakos, and are offering to take me with them.   But, I'd like to get a little more info. before I decide, if I could.   Here is the link to Dr. Dakos website
http://www.autoimmunedoctor.com/index.html
It's a little light on detail, if you ask me.   Does anyone have an opinion on this?
Is this for real, or what?   (Replies can be sent backchannel if wished to zippy890@juno.com )
 
      With that said, here is a brief bio. :   I have had Chronic Fatigue Syndrome for about 25 years, beginning with a bad case of mono from which I never fully recovered.   I am 45 years old.   I live half way between Knoxville and Chattanooga TN. USA. In the last four years, I have begun to have more joint pain, stiffness, and redness.   Almost all my peripherial joints are now involved, but no spine and neck so far.   On testing, I show no RA or other autoimmune antibodies, and no elevated C-reactive protein.   These were just screenings by a General Practioner though.   I have not been to a Rheumatologist, yet.  I imagine they might be able to go a bit more indepth.   Too, I seem to have some sort of ill-defined mast cell disorder.  I don't think I have classic Mastocytosis, but a lesser form of something likened unto that.   Again, undiagnosed, however.    I am currently a patient of Dr. R.S. in Pocomoke M.D.   So I'm looking into the mold angle of things.   And I'm also planning some dental surgery for possible osteomyelitis of the jaw and mandible too  (I have dealt with this some previously with positive results).   I'm also currently a patient of Dr. P.C. in Asheville, N.C..   He's a CFS specialist.  So that's my quick bio.
         
     Still reading and learning on this site.   I have heard of AP for a number of years, but have never focused on it, so I have a lot to learn.
 
Thanks,
Todd in TN.
 
 
 
   
Hi Todd, just edited out the doctor names and left initials. RBF has a longstanding policy of not using Dr. names on the BB, explained in this thread: http://www.rbfbb.org/view_topic.php?id=421&forum_id=1. Thanks for your understanding. 😉 Peace, Maz

[Maz]

Hi Todd,

Yes, I was looking at this website that was shared in a post on rheumatic.org's BB only this morning (was that you?). I was planning on spending some time figuring out how it may interact with an infectioun connection…that is, by feeding the body “natural materials such as amino acids and peptides,” is it possible that this is feeding the mycos? In line with infectious theory, we herx/flare when mycos are under threat, so I have to wonder at anything that may provide swift relief possibly providing them with a ready food source? It's at times like this that I wish I was a scientist!!!:doh: 

In further contemplating this, it crossed my mind that the use of minocycline isn't to kill mycoplasma, like a bacteriocidal kills bacteria. As a bacteriostatic antibiotic, mino interferes with myco protein sythesis and certain enzymes needed by them for growth and reproduction…..and, amino acids (used in this treatment) are the building blocks of proteins. As such, could this treatment actually be at odds with AP?

http://en.wikipedia.org/wiki/Amino_acid
 
Just wonder if this might be worth some in-depth research before commiting to this therapy. 'On paper,' it really sounds wonderful, but I think I'd write to/call this doctor and ask about this possible connection…and then I'd also ask someone like Dr N at immed.org what he thinks for a second opinion.
 
Really don't want to sound like the harbinger of doom and gloom:sick:…just feel it might serve you well to err on the side of caution just to feel absolutely sure before commiting.
 
Peace, Maz

[Parisa]

Zippy,

Have they tested you for Lyme disease?

[zippy]

Maz,

    Thank you for your kind and lengthy reply, esp on an off topic subject.    Don't worry about raining on my parade.   I don't have any emotional investment in this.    Just a serendipious possibility that I needed to get a quick education on , if possible.  I won't dismiss it out of hand.   But I just don't know.

   There are things called cell signaling peptides.   They are transspecies, and I have had some experience with them.   They are quite facinating and powerful, in my experience.   You see, similar to vitamins (like B12, which was originaly porcine derived), there is conservation of many cell signaling peptides across higher mamilian species.   If I am not mistaken, cell signaling factors will be the next “vitamins” in years to come.    But I am really wandering off topic here.    I say this just to put a possible best face on these Dako peptides.   I really don't yet know what they are.  

    Thank you again for your kind reply and tolerance,   Todd

     

 

    

[zippy]

Parisa,

      I was tested for Lyme, via Western Blot, last November by Dr. R S.   He seems to be a Lyme believer.    I have not spoken to him about my results yet.   To my uneducated eye, they appear to be negative however.   (I may not know how to read the results?)    I know I tested low in VEGF (Vascular Endothelial Growth Factor), MSH (Melanocyte Stimulating Hormone), and high in MMP-9 (Metalomatrix Protease 9).    I also had  a high Ca4 (Compliment Alternative Immune …. something? 4)

      This does seem to be consistent with biotoxin mediated illness, possibly mold related.    That's all I know.  🙂

Best,

Todd

  
Hi Todd…just edited out Dr name, as per RBF policy. Thanks.

[Maz]

[user=384]zippy[/user] wrote:

There are things called cell signaling peptides.   They are transspecies, and I have had some experience with them.   They are quite facinating and powerful, in my experience.   You see, similar to vitamins (like B12, which was originaly porcine derived), there is conservation of many cell signaling peptides across higher mamilian species.   If I am not mistaken, cell signaling factors will be the next “vitamins” in years to come.    But I am really wandering off topic here.    I say this just to put a possible best face on these Dako peptides.   I really don't yet know what they are.  
 

Todd, this is very interesting and would love to know more about what you discover. Feel free to share as it all unfolds for you. We all discuss adjunct therapies here and the BB just has a policy regarding advertizing or attempted profiteering of/from these. Your questions are very valid ones, as you are considering a therapy that delves into unknown territory and many of us here are trying or have tried adjunct therapies with varying degrees of success, like bio-identical hormone supplementation, for instance. Finding out more about this, one way or another, may help to broaden the knowledge base of us all in some way.

Thanks for sharing!

Peace, Maz

[zippy]

Maz,

   Thank you for the well wishes and indulgence.   I'm probably will back down on the Dakos peptides.   I just can't seem to find any information on these things, and I'm taking that as a bad sign.  If there was something to it, it seems more people should know about it.

  

 

Best,

Todd

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