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  • #466124
    cookie
    Participant

    My AP mentioned this drug. Has anyone taken it. One of the side effects are vivid dreams???? This scares me. Please advise thank you for your help!!!

    Diagnosed with RA in 2005. Taking minocycline M W F. Taking B vitamins, fish oil, probiotics, vit E, calcium, vit D, DHEA, zinc, magnesium taurine, curcumin, msm, GLA, vitamin C, glutathione capsules. Using topical ointments for pain such as Voltaren. Drinking lactose free milk, eating lean meat such as chicken and fruits and veggies. Exercising 3 times a week.
    My side effects of mino are hyperpigmentation of my face/neck and darkening of my gums and whites of eyes which is very distressing. Diagno

    #466125
    cosmo
    Participant

    I have been taking LDN along with Minocin for about 2 years with no side effects. I am in remission so I would recommend it to anyone with RA.

    #466127
    cookie
    Participant

    Thank you Cosmo for your response. What dosage did your AP recommend for you?

    Diagnosed with RA in 2005. Taking minocycline M W F. Taking B vitamins, fish oil, probiotics, vit E, calcium, vit D, DHEA, zinc, magnesium taurine, curcumin, msm, GLA, vitamin C, glutathione capsules. Using topical ointments for pain such as Voltaren. Drinking lactose free milk, eating lean meat such as chicken and fruits and veggies. Exercising 3 times a week.
    My side effects of mino are hyperpigmentation of my face/neck and darkening of my gums and whites of eyes which is very distressing. Diagno

    #466136
    Linda L
    Participant

    Actually the LDN dreams are very nice. I am sure that many today’s novelists use it in order to find the subjects for their books. The important thing is to find a proper dose for you.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    #466138
    PhilC
    Participant

    Hi Cookie,

    What dosage did your AP recommend for you?

    LDN is a drug that you should be very careful with because it has the potential to make your RA worse (much worse in some cases). A cautious approach would be to start at a low dose (e.g., 0.5 mg) and slowly increase the dose until the optimum dose is reached (without exceeding 4.0 mg). Unfortunately, many doctors are not that cautious.

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

    #466151
    cookie
    Participant

    Thanks for the information Phil

    Cookie

    Diagnosed with RA in 2005. Taking minocycline M W F. Taking B vitamins, fish oil, probiotics, vit E, calcium, vit D, DHEA, zinc, magnesium taurine, curcumin, msm, GLA, vitamin C, glutathione capsules. Using topical ointments for pain such as Voltaren. Drinking lactose free milk, eating lean meat such as chicken and fruits and veggies. Exercising 3 times a week.
    My side effects of mino are hyperpigmentation of my face/neck and darkening of my gums and whites of eyes which is very distressing. Diagno

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