Is AP Successful in Treating Longstanding Pulmonary Fibrosis

[sjess]

Hi JB,

I'll make a note to say hi to Dr. S for you 😀

Sharon

[JBJBJB]

[user=1956]sjess[/user] wrote:

Hi JB,

I'll make a note to say hi to Dr. S for you 😀

Sharon

Sharon,

If you will end up give Dr. S a hug, one will be for you and one will be for me. 😀

I sure hope you will respond the medicine well. 33% is really very very low….. a lot of people would need lung transplant after it goes down to 40%. Some folks went ahead and do the Stem Cell Transplant and found some good results. However, it is risky.

Are you on oxygen now? I have 76% PFT and I am going to the doc next week to do annual check up for my lungs. I was also told I had MCTD, later the doctors gave up on me, told me I had UCTD….. Lupus, scleroderma….poly arthritis…. reactive arthritis…. colitis arthritis…. anything you name it…. they just don't know.

Hang in there! Glad you found us.

JB

 

 

 

 

[Eva Holloway]

JB and Sharon,

 five years ago I was 63% on my PFT and I know what you are talking about, now I am at 123% and doing well. I never was on oxygen just when I was in the hospital when they did that open lung biopsy.Hope both of you will be getting those readings soon.

Eva:D

Eva Holloway

[JBJBJB]

[user=236]Eva Holloway[/user] wrote:

JB and Sharon,

 five years ago I was 63% on my PFT and I know what you are talking about, now I am at 123% and doing well. I never was on oxygen just when I was in the hospital when they did that open lung biopsy.Hope both of you will be getting those readings soon.

Eva:D

Very encouraging!!!

[Author]

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