In need of AP Doctor

[hbell]

On 14th July 09 I was hit with the pain suddenly.  Blood test indicates RA factor.  The closest Rheumy is 300 km away and finally get to see her on 27th Oct 09 for a final diagnosis.  My mother had RA so I am pretty certain this what I have got.  Pain in toes, balls of feet, ankles, knees, fingers, wrists, shoulders and neck.  Naprosyn was no good.  Prednisolone 25mg/day for two weeks worked overnight and was pain free.  Dr. decreased dose to 20mg/day and within three days I could feel niggling pain that just got worse each day.  I could not get out of bed or off a chair without help even swallowing was painful.  Back to the Dr. with knees the size of footballs and he increased Pred to 30mg/day (it took 4 days to kick in), but wants me back down to 20mg/day before seeing the Rheumy so I will be “at my worst”.  Needless to say, I'm still on 30mg/day so I can function at work.  I will cut my dose down after a job I need to do next Tues/Wed.  I am keen to start AP in conjunction with Pred.  I am glad I have found this site as I feel scared and alienated.  This site has given me great insight and I will not be timid in asking the Dr's much needed answers.  Can anyone help out in regards to AP Doctors / Rheumys in the Northern Territory?  I will travel i/state.  Thanks.

[Maz]

[user=1738]hbell[/user] wrote:

Can anyone help out in regards to AP Doctors / Rheumys in the Northern Territory?  I will travel i/state.  Thanks.

Hi Hbell,

Lynnie_Sydney is RBF's Australian volunteer and link to AP doc down under. I have the list, too, and will send you the doc list for the NT, but I would recommend speaking with Lynnie, as she will be able to help guide you to a doc to whom you can travel. It appears there is just one doc for your neck of the woods and there are no notes to say just how AP Literate this doc may be.

Until you get an opportunity to speak with Lynnie, hang in there, HBell. RF can be elevated in any number of conditions, including infections. 😉 

Wishing you all the very best and hoping Lynnie sees your post very soon. I'll private message her with this thread link so she can find you easily.

Peace, Maz

[lynnie_sydney]

Hi Hbell – I have sent you a Private Message. To retrieve, look at You Have 1 new message above right next to login/logout. Lynnie

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[Author]

Posts