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The worst doctors I've been to were referred by other doctors. The better doctors I usually found through patient referrals or on my own. I'm not sure how much that will help, if any, but I thought I'd mention it in case it helps someone reading this.
Phil
"Unthinking respect for authority is the greatest enemy of truth."
- Albert EinsteinThink everything helps someone Phil … I found a good Dr through Lynnie here & I am sure others found good Dr's through someone else by word of mouth or type by fingers…lol
Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)All off days Probiotics
My worst experiences with doctors over the last couple of years have been with rheumies. I went to 3 different ones trying to get help, and to see if I could get them to rx me Minocin, and all 3 of them shot me down, point blank. All 3 of them tried to force Mthx on me and even wrote me a rx for it. . . even though I specifically told them I DID NOT WANT IT! All 3 of them tried to disuade me from wanting Minocin, and the last one was downright RUDE!
When I asked the first rheumy about minocycline, he didn't know anything about it and wasn't interested in hearing anything, but wrote me a scrip for Mthx instead. :([Next]
When I asked the next rheumy about Minocin, she said that it was a “very old” (= bad) treatment/drug for arthritis, and “on a scale of 1-10 rates only at about a 2 in effectiveness. But Methotrexate, on the other hand, rates at about an 8!!!” She then wrote me a scrip for Mthx, and preceded to tell me I would also need a lot of surgery to replace all of the damaged joints in my body. [Joints were damaged during years and years of conventional rheumy-drug use, btw]. When she began to count the # of damaged joints – hence # of surgeries required – and relalised how many areas there were to replace/surger-ize(hee hee), she laughed and, IN FRONT OF ME, turned to her med student and said “Oh, well, seems like we might risk turning her into a bionic woman or android, won't we? Ha ha ha!” 😯 [Next]
Finally, when I asked the third rheumy about minocycline, I had had a lot of hope b/c I had been referred to him by someone who really said he was good. But hope died quickly. He was just rude. No matter what I said, he insisted on writing me a scrip for – wait for it – Methotrexate! And when I asked him about minocycline he said “Whatever. Don't even bother asking. Just move along from it.” When I persisted and still tried to question him, he got very irritable and said “JUST MOVE ALONG!”:sick: [NEXT, and done].So, so much for rheumatologists. 0 for 3. :headbang:
I eventually got a scrip for Minocin from an integrative medicine Dr. who had never heard of AP, but was willing to try it out on me. He said he needed to read up on it a bit first before trying it, so I gave him the URL for the RBF website and a ref to “The Arthritis Breakthrough” and made a new appointment. On my next visit back, the Dr. was really excited about AP and said that he was totally willing to do it, and that I would be a test case for him!:roll-laugh:
We are now both trying to figure this whole thing out together, but he is very interested and co-operative, more importantly, WILLING TO HAVE AN OPEN MIND!Sorry for the long, rambling post. I guess I just needed to vent as well!
But my advice it to not go with a rheumy just b/c you think they are a specialist or the “experts” in RA. Better go with a doc who has an open mind, and who you can communicate with. Besides, didn't Dr. Brown prefer having GP's not rheumies administer AP. . . and for a reason!!!Edited to add: I've been on AP for almost 4 months now and my labs did get worse initially and I've been herxing like hell, even on a puny dose. But I got results back last month and. . . ESR down from 58 to 38 (was up to 69 at one point), CRP down from 32 to 16, iron up from 96 to 108 (the highest it's ever been), and, I'm starting to feel better!!!!!!!!! :roll-laugh: :dude: :blush: [Yaaaay! I rock! Hallelujah!]
Niki,
good you got this of your chest. Buy your GP the book and gift it to him so he can read how Dr. Brown worked. I bought a book for my daughters doctor who is interested, one for my pulmonary doctor and my allergist. It helps to spread this book around to doctors that seem to have an interest in your health and will listen to you.
I have been in your place but I had only two rheumatologists. I fired the first one because he didn't care and I mean didn't care and the second one I walked away because she does not beliefe in the antibiotic protocol, not even Minocin. Suprisingly she has called me and asked how I was doing and my choir director works in her clinic as administrator so he tells her how I am doing. He came to see me in the hospital when I had broken my hip. He also told me a greeting from her hoping I was getting well soon. So this bridge hasn't been burned, One of these days I will go back to visit with her but not as a patient, just to show her how good the AP works.:roll-laugh: :roll-laugh::roll-laugh:.
Eva:D
Eva Holloway
Great post, Niki. Good on you for trusting your gut and insisting on the protocol that made sense to you. Seriously, AP is not for sheep, it really does take guts to challenge a doctor and be willing to fire a few to get to one that will help you.
So happy you’re seeing results after 4 months, that’s about when things started kicking in for me too.
Take care…..kim
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