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  • #300660
    Donna RA
    Participant

    I am at a point where I feel the need to begin some exercise.  I am hesistant because I don't want to begin to hurt all over again.  Has anyone joined Curves for their circuit type training, and if so, is it tolerable?  What other sorts of exercise is good to start with?  I do some walking already, but I'm ready for a little sweating.  Just wanted to hear what some others are doing, thanks.

    Donna RA

     

    #315508
    DianeTX
    Participant

    Donna,

    I have been working with a physical therapist for the past 6 months on my shoulders and back and just now started back with very basic weight lifting.  I mean basic –  1 to 3 lb weights.  I have been walking and started working on my pilates reformer again, very moderately.

    I believe start really slow.  I dont know if I would jump into a whole circuit training routine but start at half and build your way up.  I admit it is nice working out again! Just dont over do it.

    Regards,

    Diane

    #315509
    lynnie_sydney
    Participant

    Hi Donna – This is the exercise my AP Doc advised as part of my holistic protocol:

    • To reduce lactic acid acid pain: Interval Training 8 on 4 off – OR aerobic exercise – walk/row/swim/cycle 20 mins daily max heart rate 120/min [/*:3t79hhnt]
    • legs up against the wall in morning before arising [/*:3t79hhnt]
    • Diaphragm breathing [/*:3t79hhnt]
    • Stretching exercises[/*:3t79hhnt]

    Hope you continue to feel better – feeling the need for exercise sounds like a really good sign! Best, Lynnie

     

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
    rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

    #315510
    Patti D
    Participant

    Hi Donna,

    I am a bit of a curves junkie! I was a regular before my lyme/RA and really missed it. Actually I had a curves member tell me she got rid of her RA for 9 years now since she engaged in some serious exercise. She does Curves 3 days a week, walks 3 miles the other days and does some swimming, gardening and golf.

    A Curves workout is equivent to a good aquatic workout. The new curves smart program may be to much if you are just starting out. Take it slow but do exercise. I really want to get back to my old routine also but am careful as well. Donna, we are going to get better you know so be positive;) I too want to start sweating.

    Happy days!

    Patti

    #315511
    bonnielou
    Keymaster

    Hi Donna. Have you considered yoga? I know many people don't think of yoga as strenuous exercise — but it is as tough as you want it to be. With a good instructor and the right props you can be very gentle on those parts/days when you need to be gentle, and vigorous when you have the strenth and stamina. How long and how deep you hold a pose is controlled by you.

    I had been doing yoga for many years when I developed RA — and with my shoulder and hand problems I had to stop for awhile, and then modify many, many poses when I first returned. But it is wonderful conditioning, and is also good for the spirit. If you don't have a studio you can get to, try one of the simple videotapes — like Pat Walden's Yoga for Beginners.

    In my new photo, I am at the top of Mount Royal — a park in Montreal with a pretty steep incline. We went there over 4th of July weekend, and I hiked up and down with no problem — and walked all over the city as well. I was tired at night, and went to bed early — no late night revelry. But I am fine with that. I saw my rheumatologist today and she is thrilled with my condition — exercise is a big part of it. Just go slowly and listen carefully to your body.

    Bonnie

    Bonnie Lou
    RA 02/07,AP 10/07
    Minocycline 200mg MWF; Plaquenil 100mg 3 days/week
    Fish Oil, Ubiquinol, Turmeric, Vit C (2 grams) , MultiVit, Magnesium, Astaxanthin, D3 (5000), probiotics and a daily dose of yoga!

    #315512
    Maz
    Keymaster

    [user=61]bonnielou[/user] wrote:

    In my new photo, I am at the top of Mount Royal — a park in Montreal with a pretty steep incline. We went there over 4th of July weekend, and I hiked up and down with no problem — and walked all over the city as well.

     

    Bonnie, I thought I recognized the vista! We lived in Montreal for almost 7 years till 1995. That sure is a hike up Mt Royale!!! I've done it, too, but not sure I'd make it today. Beautiful city, though….we lived on the West Island, which is the “anglophone” area of the island, but it was only a 30 min trip into the city where hubby worked. Wintertime is amazing in Montreal, too, with the underground skating rink and shopping centers. You never have to step into the snow…just park underground and shop till you drop. Did you go on the tourist bus-boat on Lac St Louis? We still giggle about that today. Glad you had a nice experience there. 😀

    Peace, Maz

     

    #315513
    bonnielou
    Keymaster

    We loved Montreal! We did not do that boat tour, but we did do one on the St. Lawrence Seaway. I think I would enjoy living there — if it weren't for the French/English issues. The food was divine. It was easy to eat well — plenty of fruits and vegetables, portions were modest, lots of fish available.

    I could not have done that walk last summer — had large Bakers cysts behind both knees last year. I guess that's why I was so excited — this is a much better summer for me, thanks to AP and this board. I started treatment early, and my RA did not have a chance to get aggressive. I am lucky. My doctor does not believe in AP — but she is willing to continue the prescription. I am also taking 1 200mg plaquenil daily — less than a therapeutic dose at my size. With the mino only 3 days/week, and the low dose plaquenil, and no need for NSAIDS or pain meds, my stomach is not suffering anymore. I feel like I have a new lease on life, and I am appreciating every day.

    Keep up the good work. You are all a blessing.

    Bonnie

    Bonnie Lou
    RA 02/07,AP 10/07
    Minocycline 200mg MWF; Plaquenil 100mg 3 days/week
    Fish Oil, Ubiquinol, Turmeric, Vit C (2 grams) , MultiVit, Magnesium, Astaxanthin, D3 (5000), probiotics and a daily dose of yoga!

    #315514
    Lynne G.SD
    Participant

    OH MY GOD!!! where did you live MAZ?  I am from Baie D'Urfe.Now I live just across the border in Ontario because I could not find the right spot in Hudson or St Lazare that did not cost a fortune.We were at the Jazz festival last week and are going back for the “Just for Laughs” fest.In 2 weeks back again for the summer dance fest where ballet groups from all over the world put on shows in the evening at Parc Lafontaine .The Nuits D'Afrique group is playing and dancing all this week.I feel like a yo-yo in the summer.Top all the running around with tons of work and you sure don't see much of me on the board anymore. hehehe

    #315515
    Maz
    Keymaster

    [user=31]Lynne G./SD[/user] wrote:

    OH MY GOD!!! where did you live MAZ?  I am from Baie D'Urfe.

    Lynne, what a crazy, small world! 😯 To think you just lived down the road from us in Beaconsfield. We lived right off Boul St Charles, down Sherbrooke a ways. We left just as house prices had taken a plummet…would have been a good time to buy then, but horrible to sell and then move to CT where everything is so costly. Our old neighbors were just looking for a place in Hudson and said the same thing. Quebec does that yo-yyou tihng about every 8 years or so after each mass exodus. You're a pretty amazing lady, Lynne…had a look at your beautiful orchid website!!! WOW!

    You know what's also synchronous? John McD mentioned to me that he used to do a lot of work right here in our new town in CT about the same time we moved here. Spooky…feels like I'm following the RBF gang around before I even knew I'd get here!

    Bonnie…it's GREAT to hear you're doing so well now you've lowered your plaquenil. I remember you saying you were going to do that and so wonderful you're doing so well and no whiplash. YAY!!! 

    Peace, Maz

     

    #315516
    A Friend
    Participant

    Donna RA,

    If you have access to a Far Infrared Sauna (FIR), it is a terrific way to safely detox through the sweat glands.  You will need to have on hand some replacement minerals for those that are sweated out, along with the toxins.  This is a lower heat sauna, and even Mayo Research used it successfully for end-stage cardiac cases a number of years ago. 

    It is helpful to walk (on the street or on a treadmill, etc.) for about 15 to 30 minutes.  Have the sauna heating and get in it.  With the circulation increased from walking (or other excercise), it is written that this is very helpful for detoxing.  Dr. Sherry Rogers (in Detox or Die AND in Painfree in Six Weeks gives good suggestions about effective/safe ways to accomplish some detoxing.  Detoxing, using sweating, I just re-read a day or two ago, is one of the safest ways to detox because the toxins are close to the skin and can exit through the pores. 

    Even as hot as it is here where I live, I try to walk at least 15-30 minutes on the treadmill in my garage and then get into the sauna.  I've found, whether I use the sauna or not, a 1 lb. box of Baking Soda (about 80 cents) in a tub of comfortably hot water for 20 minute soak, really makes a difference.  I usually do this regimen at bedtime, and I usually sleep like a baby.  The soda is very alkalinizing, which I really need since I've discovered just how acidic my body is — and the reason for this, I believe, is because my body over the past several years has built up so much acid from being off Mino and not addressing the organisms and from my body's using up the minerals in my body's mineral store…. and HAVING to store these toxins in my tissues.  I've made progress, but still lots of work to do yet!!!  Also, the epsom salts baths are helpful, because probably all of us are deficient in magnesium. 

    AF

    #315517
    Cheryl F
    Keymaster

    Hello All:

    I came across this reference in a book that I am reading, and I thought it might be interesting to those who are thinking about undertaking an exercise program.  It actually relates to an issue that has been discussed before on this board, with good information provided by A Friend.  Basically the message is “slow and steady wins the race.”  It has long been a concern of mine that one contributing factor to Jess' illness onset was the fact that she was training as an elite athlete.  In addition to being worn down all the way around, it turns out that there are biochemical ramifications of overtraining.  This came as no surprise to me.  Anyway, it is a relatively easy to read article and it may help you to exercise effectively without falling into some common misconceptions about optimal heart rate during exercise.

    http://findarticles.com/p/articles/mi_m0ISW/is_257/ai_n7638047

    Cheryl

    #315518
    A Friend
    Participant

    Cheryl, All,

    Have recently had a need to be checked out by a cardiologist.  Among other things, he found reasons my ATP energy is not what it should be.  Have known for some time that I could use some more oxygen here and there. 

    I've been an admirer of the work of Dr. Stephen Sinatra (internationally known preventive cardiologist) for a number of years now.   I was glancing over some of his latest books to choose one for a relative, and found one for myself.  Dr. SS has discussed three supplements that certainly sound promising for those of us with chronic fatigue, fibromyalgia, etc.  I believe they are worth a 3-month trial for myself.  (The lecithin is mentioned in the whole lemon/olive oil drink many of us have used.)

    http://www.discount-vitamins-herbs.net/sinatra-solution.htm
    The Sinatra Solution: Metabolic Cardiology
    [font=”Arial, Helvetica, sans-serif”]by Stephen T. Sinatra, M.D., F.A.C.C.
    [font=”Arial, Helvetica, sans-serif”]
    [/font]

    • [/*:2tgyma3u][font=”Arial, Helvetica, sans-serif”]New 2008 Edition[/font]

    [font=”Arial, Helvetica, sans-serif”]Discover the triad of cardiac health – Coenzyme Q10, L-Carnitine, and D-Ribose.  In combination, they help prevent and overcome heart disease, fibromyalgia, chronic fatigue, and Syndrome X.[/font]

    [font=”Arial, Helvetica, sans-serif”]Hardback: Basic Health Publications, 254 pages[/font]

    It?s a fact, people with heart disease lack energy. The heart needs a large amount of oxygenated blood flow to continually meet its huge energy demands. That?s where the new triad of cardiac health comes in ? Coenzyme Q10, L-Carnitine, and D-Ribose. The synergistic combination of these energy-supplying nutrients maximizes the amount of oxygen that the heart and skeletal muscle can extract from the blood by accelerating the rate at which cells convert nutrients to energy.

    Board-certified cardiologist Dr. Stephen T. Sinatra discusses the importance of energy metabolism on cardiovascular health and the positive impact these three energy-supplying nutrients have on the cardiovascular system. He guides you through the basics of energy metabolism and cardiac bioenergetics, and clearly explains the role of Coenzyme Q10, L-Carnitine, and D-Ribose in the body and specifically how they affect your heart health. He also provides concise and informative examples of case histories and scientific studies that are testament to the important contribution the supplemental use of these energy-supplying nutrients makes in the lives of people with heart disease every day.

    While the main focus of The Sinatra Solution is on improving heart health, this new, (published in 2005), hardcover book also touches upon the positive effect the triad has on other diseases and disorders. You?ll learn that the supplemental use of these nutrients isn?t limited to healing a sick heart and preventing heart disease. Their energy-enhancing abilities work throughout the body, essentially charging up every body cell to function at optimal capacity.

    ABOUT THE AUTHOR: Stephen T. Sinatra, M.D., is a board-certified cardiologist, a certified bioenergetic psychotherapist, and a certified nutrition and antiaging specialist. At his practice in Manchester, Connecticut, Dr. Sinatra integrates conventional medicine with complementary nutritional and psychological therapies to help heal the heart. He is an assistant clinical professor at the University of Connecticut School of Medicine, and is the author of several books, including Optimum Health, Heartbreak and Heart Disease, Heart Sense for Women, and Eight Weeks to Lowering Blood Pressure.

    The information contained in The Sinatra Solution is based upon the research and personal and professional experience of Dr. Sinatra. It is not intended as a substitute for consulting with your physician or other healthcare provider. Any attempt to diagnose and treat an illness should be done under the direction of a healthcare professional.

    [align=left]If you suffer from heart disease, Dr. Stepen T. Sinatra has the solution you've been looking for: Maximize the amount of oxygen your heart extracts from your bloodstream by accelerating the rate at which your cells convert nutrients to energy.[/align]
    [align=left]This can be achieved by following Dr. Sinatra's energy-enhancing nutritional approach.  This approach focuses on the supplemental use of three amazing bioenergetic nutrients: Coenzyme Q10, L-carnitine, and D-ribose[/align]
    [align=left]The synergistic combination of these nutrients essentially charge up every body cell to function at optimal capacity.  So, not only will you experience renewed heart health with all that energy, you'll also gain a greater sense of overall well-being. [end of quoted material][/align]
    [align=left][/font][/align]
     

    #315519
    maz.aust
    Participant

    Just giving you my 5 cents worth —

    For exercise – you can't really go past pilates – it takes all muscle groups into account and you can take it easy and get terrific results.  You can build up core strength (which is really important) as well as trim and tone. 

    It has always been my view that slow and controlled exercise is always a better option.

    Good luck

    Maz-Aust

     

     

     

    Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
    Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)

    Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
    1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
    1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)

    All off days Probiotics

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