CT Lyme Bill 6200 passed by Public Health Committee

[Maz]

Please note this bill has moved from the Public Health Committee; it still
needs to be passed by the House; Senate and Governor Jodi Rell. However, it's a promising step in the right direction!

http://www.newstimes.com/ci_12005818

Controversial Lyme disease bill passed by legislative Public Health Committee

By Brian Lockhart Staff Writer Updated: 03/26/2009 11:03:49 PM EDT

“HARTFORD — The Legislature's Public Health Committee unanimously passed
a bill about tick-borne Lyme disease Thursday that could rock the health
care industry if it becomes law.”

Peace, Maz

[Trudi]

Maz–

Thanks for posting this article–

Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[tainabell]

Wow! I'm thrilled about this.  Maz, I have a question you might know the answer to.

Here's a quote from the article….

“There are no convincing published scientific data that support the existence of chronic Lyme disease,” Anne Gershon, president of the Virginia-based society, wrote lawmakers in February.

I think we all know that's true, but can you link me to the studies that do support the existence of chronic Lyme.  And do you know why the IDSA continues to drag out this old line?  I'm thinking about writing a letter and I'd like to be armed with facts.

Thanks!

[Kim]

Thanks, Maz, sounds encouraging. 🙂

[Maz]

[user=854]tainabell[/user] wrote:

I think we all know that's true, but can you link me to the studies that do support the existence of chronic Lyme.  And do you know why the IDSA continues to drag out this old line?  I'm thinking about writing a letter and I'd like to be armed with facts.

Hi Jen, Kim and Trudi

Yes, very encouraging news! Still a ways to go to turn it into legislation but the CT Medical Association is backing it. 😀

Jen,

Lots of reasons why the IDSA treatment guideline panelists continue to drag out this “old line” that chronic Lyme doesn't exist. Largely, BIG egos and BIG money…they only selected their own research and research that agrees with theirs to draw up the 2006 Lyme Treatment Guidelines, some of the panelists received extremely lucrative payouts from insurance companies for consulting on Lyme (what insurance co wants to pay out for a chronic disease if it can be “cured” within a month with cheap oral doxy?), some of the IDSA panelists have investments in Lyme testing kits (that likely won't be any better than standard tests now), etc. You can read more about this at this historical medical horror show of events at informative link:

http://www.myleftnutmeg.com/showDiary.do?diaryId=8493

There is a plethora of evidence-based research to demonstrate the persistence of chronic borreliosis that has been ignored by the IDSA! :angry:

 

These first two studies were in the Fall eBulletin:

 

Persistence of Borrelia burgdorferi Following Antibiotic Treatment in Mice March 2008

 

Emir Hodzic, Sunlian Feng, Kevin Holden, Kimberly J. Freet, and Stephen W. Barthold*

 

http://aac.asm.org/cgi/content/abstract/AAC.01050-07v1

 

Persisting atypical and cystic forms of Borrelia burgdorferi and local inflammation in Lyme neuroborreliosis September 2008

 

Judith Miklossy1 , Sandor Kasas2 , Anne D Zurn3 , Sherman McCall4 , Sheng Yu1 and Patrick L McGeer1

 

http://www.jneuroinflammation.com/content/5/1/40

 

 

The Lyme Info site has about 70 studies listed here, demonstrating persistence:

 

http://www.lymeinfo.net/lymefiles.html

 

The Columbia Lyme Research group also has both ongoing research into chronic Lyme currently being conducted, as well as articles you can wade through demonstrating persistence:

 

http://www.columbia-lyme.org/

 

I've posted this one before that is on the Columbia Lyme site about how TNF blockers reactivate borrelia seropositivity in mice previously treated with IV ceftriaxone:

 

http://www.columbia-lyme.org/research/keyarticles.html  

 

http://www.ilads.com also has plenty of research demonstrating persistence. Here is a partial slide show prepared by my LLMD on this topic and includes endless research studies on this:

 

http://www.ilads.org/lyme_research/chronic_lyme.html

 

This should keep you pretty busy for a few years, Jen! :roll-laugh: 

 

Peace, Maz 

 

 

 

[Maz]

Jen, note the irony in the slide show presentation by Dr P….”in their own words.” Many of the studies included in the slide show (in red) note that some of the IDSA panelists have actually produced studies themselves that contradicts what they are saying now.

Peace, Maz

[tainabell]

Thanks for the links, Maz.  I have a friend who is in med school and many friends and family members who are nurses, so I'm going to make sure that they are also informed about the other side of this.  The IDSA letters can be very convincing, they make it sound like all the Lyme docs are a bunch of Quacks!  I want to make sure my friends and family are “in the know.”

[Maz]

GREAT NEWS TO SHARE!!!!!!!! 😀

Ct Lyme Bill 6200 passed unanimously through the senate today and just requires the signature of the Gov Jodi Rell to be passed into Law. To read CALDA article, click here:

http://www.lymedisease.org/news/lyme_action_alerts/127.html

As CT is regarded as the epicenter of the Lyme disease epidemic and where it all began (politically speaking), let's hope this becomes a legal precedent that will encouage other states to follow!

Peace, Maz

[Kim]

Awesome!  Well done, Connecticut. 😀

kim

[Trudi]

Such good news!  Yeah!!!

Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Maz]

Just received notice that Gov Jodi Rell signed CT Lyme bill 6200 yesterday and it has now been passed into law and named Public Act 09-128 !!!

http://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Public+Act&bill_num=128&which_year=2009

It's a day of celebration for CT Lymies and our wonderful LLMDs and can only hope that other US states will now take CT's lead in protecting those brave physicians who are willing to step out outside of the ridiculously restrictive treatment guidelines for the treatment of this devastating disease and patients everywhere can get the life-saving treatments they so desperately need!

Peace, Maz 

[Kim]

Awesome!!!!! 😀

[Maz]

Kim, here's the list of presenters, mostly physician/scientists and just two patient advocates who will be speaking to the newly formed IDSA panel on July 30th. Looks like a pretty interesting mix, ranging from the anti-Christ of Lyme denialists to my doc. Boy, I'd love to be a fly on the wall that day, but I read that the IDSA is not permitting outsiders to the hearings, though it will be televised online. I'll be getting my popcorn ready for that show!

http://www.lymedisease.org/news/lymepolicywonk/130.html

With bated breath…

Peace, Maz

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