Church Shooter had mental illness due to LYME

[Maz]

[user=40]Kim[/user] wrote:

My brain MRI showed lesions “unknown cause” so if I go postal maybe there will be a precedent set. 😉

Kim, you can count on me to testify on your behalf! :roll-laugh:

Peace, Maz

[Kim]

Thanks, Maz, I knew I could count on you. :roll-laugh:

[linda]

Now I'm kinda sad that my Lyme test came back negative…no excuse for my behavior, I guess I'm just wired differently!:dude: No biggie, I guess I'm back to the alien hybrid theory…

[louris]

It sure does.  But I think the biggest coverup was President Bush's bout with lyme.

It wasn't reported at all when it happened.  One year later it is discovered during a review of his medical records and even though step by step details had been given for some other medical procedure (colonoscopy?) they refused to detail how he was treated for Lyme.

[user=27]Maz[/user] wrote:

I wonder if Bush was treated for coinfections and given any cyst-busters? 😕 Wouldn't that be a revelation? It is pretty sad to see how he degenerated over the years from a fresh-faced, energetic guy to a run-down, exhausted-looking one. Of course, he had a pretty full couple of terms in office, too. This kind of degeneration is sad to see in anyone…his signs have been so classic for neuroborreliosis…poor word recall, confusion, inability to string a full, comprehensible sentence together, etc. I guess we'll never know the full extent of his run-in with Lyme? :doh: There's a good chance even he doesn't know the full extent of it. A lot of ex presidents go on to do good works…maybe something good will come of it and one day we will see him advocating for Lyme patients?

Peace, Maz

How was former President Bush diagnosed?  Does anyone know?

Does this say anything about our new President?  It appears he has much difficulty speaking in public without the aid of his teleprompters.  He's Ivy League educated and a “professional” politician.  Are we to believe that his inhibitions about public speaking are that great that he cannot competently speak in public without them?

Here's an article citing his reliance on the teleprompters.

http://news.yahoo.com/s/politico/20090305/pl_politico/19663_1

Here's a clip of him “stumbling” badly during a campaign speech.  Maybe it's just routine fatigue from being on the campaign trail, but I can't help but wonder if there is something more regarding his need for the teleprompters.

http://www.youtube.com/watch?v=omHUsRTYFAU

This is not intended to be a politically motivated post.  It just piqued my curiosity that President Obama seemingly suffers from some of the same difficulties (poor word recall, confusion, inability to string a full, comprehensible sentence together).

[Maz]

[user=290]louris[/user] wrote:

This is not intended to be politically motivated post.  It just piqued my curiosity that President Obama seemingly suffer from some of the same difficulties (poor word recall, confusion, inability to string a full, comprehensible sentence together)

I understand your rationale for posting this, Louris, quite aside from the polarity of politics. Seems the presidential office or simply on the campaign trail, no matter how intellectual or qualified a person may be, brings enormous strain and fatigue. It will be interesting to watch how the stresses of such high office play out for this new president.

All in all, though, seems Bush had quite a noticeable decline after his run-in with Lyme. Coincidence or not, we'll probably never know if it was the cause or just the pressure of the job at a very pivotal time in American history – maybe both. One of those things that will probably always remain in the realms of the unknown. If he starts coming down with some neuro-degenerative illness as he ages, though….I'd bet my bottom dollar it's those dastardly spirochetes. :sick:

Peace, Maz

[Susan LymeRA]

One of the first things I noticed about Obama was his reluctance to speak boldly.  I noticed it at the Rick Warren event.  John McCain, on the other hand, spoke swift and decisive. 

Obama is a gifted and charismatic speaker and I don't believe I see signs of lyme disease in him.  I think it is more an ability to morph into the same thought pattern as those he is speaking to.

My husband has this ability and sometimes it is a gift and sometimes it is a detriment for him personally.  He has a sensitivity about him that allows him to immediately sense really deep things about your personality.  So when he is speaking with you, he seems to be right on your page of life. 

Everyone walks away from my hubby with a glow and incredibly complimentary words about hubby.  People love him.  It has served him very well in business.  He seldom says what he means in public.  After 23 yrs of marriage, he has no problem telling it like it is to me.  Ha!!  We have a great marriage and I much prefer the “real” hubby, but have learned to appreciate the giftedness of the public hubby.

However, he does have a bit of an identity crisis because he doesn't ever express himself and often has trouble understanding his own wants and needs.  It makes him crowd shy because it is hard work always trying to be liked by everyone.  He is happiest with just me and our animals where he does not have to pretend.

One on one this morphing  can be done easily but to sway a large crowd, I think, would be incredibly stressful and difficult.  How do you morph into everybody? I believe that is why Obama uses telepromters.  In other words, much of what he says does not come from his heart so he needs to read it.  That doesn't mean it isn't good or that it is all a lie, just it may not be how he really feels.  Or perhaps he tends to get a little lost in how he feels when he is trying to placate so many at once and the teleprompter helps keep him focused.

John McCain, on the other hand, had none of that sensitivity nor ability to morph.  He just is who he is.  During the campaign, he tried to morph and failed at it miserably.  He is very comfortable when speaking his mind which isn't always well recieved and he flailed terribly when he tried to do otherwise.

I do believe a public personality needs that ability to morph and it is a trait that will help Obama in the relationships he must make to bring about peace.  At least, I'm sure hoping so. 

The job will definitely age Obama but I am quite certain Bush had more going on then just the stress of the job. 

Susan

 

[Joe M]

[user=86]Susan Lyme/RA[/user] wrote:

Everytime I read about how it can be cured in 30 days if caught early, I always ask the same question which I think is so obvious yet they never address it.

How do you know the person is cured if the tests are so inaccurate?

Hi Susan,

Maybe that question is not addressed because if it is, the other side of the coin has to be addressed; which is, How do you know the person even has Lyme if the tests are so inaccurate? 

At least Lyme is now getting some attention.  Any PR is good PR?  Here was an article from WebMD today:

http://www.webmd.com/news/20090310/lyme-disease-and-violence-no-link?src=RSS_PUBLIC

[tainabell]

[user=20]Joe M[/user] wrote:

Maybe that question is not addressed because if it is, the other side of the coin has to be addressed; which is, How do you know the person even has Lyme if the tests are so inaccurate? 

The whole thing is enough to drive any sane person crazy.  One simple answer is, you have to go by a doctor's clinical diagnosis, and whether or not your symptoms have abated.  Also things like sed rate and CD57 wil give you an indication of whether or not you're improving, I suppose.  But there are hundreds of illnesses where a doctor can give a clinical diagnosis of recovery.  It comes back to this question – why is Lyme such an “other” when it comes to illness?

As for the whole PR thing, I've been thinking about this a lot lately.  I'm not sure I want people associating Lyme as a “killer's disease”.  It seems like the lawyer is going to use Lyme as a defense in his client's case and I feel like its definitely possible there will be a public debate.  Unfortunately, the only two options coming out of it are that a) Lyme is a harmless cupcake disease or b) Lyme is the disease of serial killers.  The press is a tricky thing – it tends to paint with broad strokes and I fear the repurcussions of that when the issue is so complex.   

[Trudi]

Tainabell–

Unfortunately, Lyme disease is what it is and according to this article known for what it can do to “affect the central nervous system (CNS), causing neurologic and psychiatric symptoms.”

http://www.ncbi.nlm.nih.gov/pubmed/7943444

The article concludes:

“Psychiatrists who work in endemic areas need to include Lyme disease in the differential diagnosis of any atypical psychiatric disorder. Further research is needed to identify better laboratory tests and to determine the appropriate manner (intravenous or oral) and length (weeks or months) of treatment among patients with neuropsychiatric involvement.”

It is high-time these warnings are heeded by the medical community!!

Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Susan LymeRA]

Hi Joe and others,

Joe, I went to CDC to give you their position on lyme testing.  3 yrs ago when I was diagnosed and I did extensive research, the CDC was clear in their statement that lyme testing can miss the lyme diagnosis with a false negative but not a false positive.  The test looks for antibodies the immune system produces against lyme.  It has to test this way because the bacteria does not remain in the blood but moves quickly into the tissues and joints.  Hence why it affects the brain, heart, joints and nervous system.  CDC, at that time, clearly stated false positives were not an issue. No one's immune system falsely produces antibodies.

But now, they have completely changed their position regarding testing.  They do still say clinical diagnosis is preferred to testing but they also now say false positives are common.  I am stunned.

What government cover up is at play here?  I am not a fan of conspiracy theories but  Drs who treat lyme longterm are harrassed, people with ongoing symptoms are belittled and a disease that is very difficult to prove by bloodtesting is simply being treated as no more serious than the common cold.

Yet, even as they take this public stance, they are including lyme in their bioterrorism studies in Texas.  Huh???

http://www.kwtx.com/home/headlines/1967792.html

I'm just speechless.

Susan

 

[Trudi]

[user=86]Susan Lyme/RA[/user] wrote:

What government cover up is at play here?  I am not a fan of conspiracy theories but  Drs who treat lyme longterm are harrassed, people with ongoing symptoms are belittled and a disease that is very difficult to prove by bloodtesting is simply being treated as no more serious than the common cold.

Yet, even as they take this public stance, they are including lyme in their bioterrorism studies in Texas.  Huh???

http://www.kwtx.com/home/headlines/1967792.html

I'm just speechless.

 I'm totally with you here.  Well said!!

Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Maz]

[user=854]tainabell[/user] wrote:

The whole thing is enough to drive any sane person crazy.  One simple answer is, you have to go by a doctor's clinical diagnosis, and whether or not your symptoms have abated.  Also things like sed rate and CD57 wil give you an indication of whether or not you're improving, I suppose.  But there are hundreds of illnesses where a doctor can give a clinical diagnosis of recovery.  It comes back to this question – why is Lyme such an “other” when it comes to illness? 

That's a good question, Trudi. There are many diseases diagnosed when a person is seronegative, RA not being an exception. It is made by a rheumatologist's observation of clinical signs and symptoms. 

I bumped into an acquaintance of mine recently (our daughters were friends in elementary school), who went for a year trying to figure out her neuro-psychological and physical symptoms, because she tested negative for Lyme initially. She went from physician to specialist in nearly every field and had every part of her body tested, poked and prodded. Nothing! Eventually, she was sent to a psychiatrist (because her docs didn't know what to do with her). The psychiatrist had the wherewithal to re-test her for Lyme. She was one of the 'fortunate' ones and this time her test came out CDC positive, so she was sent to an infectious disease doc. She was treated with oral doxy for 3 months and became well. Three years later, it's back with avengence and she is now suffering from all the of the above, including MS-like symptoms. Again, she was treated with 3 months of oral doxy (nothing for the likely coinfections). She started to feel well again with only mild, lingering symptoms. Over time, these have gradually crept back and she is back to square one. She was totally unaware of the Lyme controversy, that Lyme needs combination treatments to hit coinfections and the cystic form of Lyme, and she is now worried she has MS. She's a changed woman…nothing like the bright, feisty, happy personality I knew all those years ago. Her next step is to try IVs for a month, which should have been done right off the bat for neuro-Lyme. After that her insurance cuts her off and she'll have no option but to seek out an LLMD and pay out of pocket. Of course, she no longer works and with just one income and kids about to enter college, this is a pretty daunting prospect. The irony being that if she was given a month of doxy when she first presented to her GP, in spite of a negative test for Lyme, she may not be where she is today….of course, it isn't known how long she had Lyme prior to that first visit, either, as she never saw a tick or had a rash. :doh:

This lady is one example of the human fall-out and reality of Lyme that is being brushed off as easy-to-diagnose, treat and cure. It's pretty heart-rending stuff and it all leaves me speechless, too, Susan. If anything, we can hope that this press – negative or not – will cause people to sit and realize that there is this controversy. Lymies who go to infectious disease docs and question no further have no clue. They are just accepting that what they have is a “post-Lyme” syndrome and whatever symptoms they have after short-term treatment is, just by coincidence, MS, or ALS, or Parkinsons, or Alzheimers, or RA, or dermatomyositis….the list is endless. Can you imagine the exorbitant cost of treating these patients with the standard drugs for these diseases? Cheap antibiotics are nothing by comparison.

I don't know if bio-terrorism is involved, but whether it is or whether it is not, this disease is one sure-fire way for human populations to be disabled and weakened….and leave the entire medical community reeling, scratching their heads, and at odds. 

Peace, Maz

PS Susan, your hubby sounds like a real treasure!

[Susan LymeRA]

Maz,

How sad about your friend.

My husband really is special and I found that out in a big way when I was first stricken by RA.  I was helpless!  He tended to me like I was the most important thing in his life.  He waited on me hand and foot and would get upset if I tried to do things on my own.  I almost think he enjoyed his “nurse” role too much.:P

He never made me feel I was a burden. 

I thank God everyday for him.

Susan

[tainabell]

Susan, that's really sweet.  One quick way to find out if people really are around for the long haul is to come down with a chronic illness and see if your spouse can take you moaning and complaining for months straight!  😛  But seriously, its very rare to have a husband/wife who can put up with all the stress that comes with a sick spouse.  They say “for better or for worse, in sickness and in health”, but relationships these days are sadly, more tenous that that.  I also thank God for my husband every day.  He's pretty great.

Maz, the story about your friend makes my heart break.  It can be a very overwhelming and dark place, living in the knowledge that your own government has let so many people down.  I'm glad I know what I know now, and can help out people I see with problems in the future.  That's all we can do, I think is, “pay it forward” as much as possible.  That's why we all appreciate you, Maz, for all the hard work and time you put into this board!  🙂

[Susan LymeRA]

Tainabell said:

I think is, "pay it forward" as much as possible.  That's why we all appreciate you, Maz, for all the hard work and time you put into this board!  :)

 

Amen!

 

[Author]

Posts