Home Forums General Discussion Bloodwork – herxing/SD related, or something else (Multiple Myeloma)?!

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  • #465813

    Hi guys,

    Yes will talk to the pharmacist, see if there is anything we can do. This is a way off yet, really she needs to be settled with everything else before we attempt something so extreme…!

    As for the iron, we managed to find Chelated Iron Glycinate over here (we read this is supposedly better-absorbed, and less nasty on the digestive tract/constipation etc. However, its not sold as a ‘supplement’ over here, but as a medicine, therefore there is no recommended dosage on the packaging (presumably nbecause your Dr would usually advise how much).

    The dosage her tablet is as follows:

    Chelated Iron Glycinate: 150mg
    Folic Acid: 600mcg

    I’ve read online that a typical dosage for iron sulphate would be 50-60mg, twice a day. How does this compare with 150mg of Glycinate? We would ask the Dr, but we don’t have an appointment for some time and it would be great for her to start taking some Iron, just to see if this picks things up for her.

    Thank you everyone!

    #465814
    Linda L
    Participant

    Steve, before she starts taking iron check her results. It is dangerous to overdose iron because it accumulates in the body. Also iron should be taken with vitamin C.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, LDN, supplements incl. milk thistle, vitamins and minerals.
    MTHFR heterozygous

    #465853

    Thanks for this Linda. It turns out that she does indeed have normal level or Ferritin in her blood, which is iron right? Which is pretty much what you and Maz have both said… we did realize this before she started taking it, so we are avoiding it for now until we get the final results back…

    Dizziness has in general been slightly better, still present but that’s to be expected. Hopefully when we get the results back, one of her doctors can suggest the next logical steps.

    I’m actufly starting another thread now as the topic is slightly different. It’s to do with Rifampin and Prednisone, if you have any thoughts it would be great to hear them. Thank you as always for your kind words and thoughts.

    #465860
    Linda L
    Participant

    A high or normal ferritin doesn’t mean that her iron is OK.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, LDN, supplements incl. milk thistle, vitamins and minerals.
    MTHFR heterozygous

    #465861

    Interesting – how so? Still awaiting final results will post them here when available!!

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