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Hi,
We are about 65 days in on just Minocin, and in the last week or so, SEB has been complaining of
1. feeling like he has the flu-achy all over, difficulty regulating temperature
2. increased weakness – regression in some abilities (getting out of car, walking)
3. zero energy
4. extreme depression
5. had an extreme spike in CPK last week – this is the most alarming thing, because it had started to go down over the last two months.Has anyone (the MCTD, PM, DM, and any other overlap crowd) had a documented spike in CPK coinciding with a suspected herx?
Does 2 months into AP seem about right for this to happen?
It's just nerve wracking not knowing what is a herx and what could be an actual deterioration due to illness. Any thoughts on this really appreciated!
😕Tisch
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