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March 18, 2010 at 5:04 am #303741lizbethParticipant
Hi All,
I have finally got my book and finished it (fantastic):). I am now waiting for my AP appointment. My question is that I already had an appointment scheduled with a new rheumatologist since last year before deciding to try AP, should I keep my rheumy appoint. He will no doubt love the idea of me going on AP and be even more pleased to find out that I got the info from the internet!!!!!! Please let me know what you think.
Thanks
March 18, 2010 at 5:52 am #343591mschmidtParticipantLizbeth,
The best advice I can give you is to do what you are comfortable with. If you're prepared mentally to deal with possible rejection of your treatment path, and you have a medical need to see him/her, then do so. If you feel uncomfortable or apprehensive about going, then don't. The ultimate decision is up to you. Whatever you decide, I wish you the best.
Maria
March 18, 2010 at 6:14 am #343592lynnie_sydneyParticipantLizbeth – I agree with Maria that only you can make this decision. Seeing the rheumie may help in you in making a decision for yourself regarding the treatment path you choose. However, if you are going to keep the appointment with the view to him supporting an already-made AP decision, then it may be a waste of time. Most rheumies in Oz dont even know that mino is at least listed by the American College of Rheumatology as a DMARD, even if infectious theory is not subscribed to. He may well not have even heard of AP (the book covers the subject of rheumatologists pretty well). It may be interesting to listen to what he has to say, so you can look at all sides to this. What do you think will serve you best? Your call. Lynnie
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)March 18, 2010 at 8:47 am #343593maz.austParticipantHi Lizbeth,
Glad to hear you are taking it all in .. I know with the costs of specialists it is sometimes difficult to make that decision .. I only know that it was because of my consults with rheumies & my AP doctor that I was able to make the decision to try AP; to my mind it was well worth the money going to see yet another rheumy before I finally made up my mind which way to go. I am a firm believer in researching all possible treatment paths & talking to doctors & specialists along the way so I have a clear understanding of what is in store & what all my options are both short & long term.
As everyone here will tell you 'it's your call'!!
Good luck
Maz – AustDec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)All off days Probiotics
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