Hi all,

I just wanted to write a quick update. I am back on 200mg of Minocycline after taking a few weeks off. Needless to say all disease symptoms came back during this time. I had the original Par Tablets crushed and placed into an acid resistant capsule by a compounding pharmacy. They seemed to not irritate my stomach as much but after being on them for a week the disease symptoms continued to get worse. I believe the pharmacist may have put some filler in the capsules and I just don’t think they are as strong as the original tablet form.

I began taking 50 mg of Par tablet every other day and that seemed to work better and I have finally worked my way back up to 100 2x a day. The difference this time is that I take one in the morning with food and a bottle of water, and I take my second dose at dinner again drinking a lot of water. Previously I had been taking them without food and although the medicine worked better I think overtime there was too much irritation in my stomach. I hope that the pain does not return . I continue to take milk thistle , slippery elm, probiotics and digestive betters.

On a separate note I am currently seeing a AP rheumatologist who personally knew and worked with Dr. Brown. Although he is retiring in August I hope to learn as much as I can from him. He reviewed my lab results and was interested in retesting for Myco P. to see if it went down since initiating AP. He gave me a script for Zyduss capsules and told me that some of his patients did better on them . He also told me that for those patients who experienced sided effects from Mino, he would lower the dose and add Doxy. He also stated that he and Dr. Brown would use Ampicillin with Mino but I unfortunately have an allergy to penicillin. I will follow up with him in a few weeks. If anybody has any questions they would like for me to ask him let me know.

Hi Lucy,

As Maz stated he’s unfortunately not accepting new patients. I think Lynne is right and I myself will probably seek out a Lyme doc next . They are not as hesitant to treat with abx and if you are having symptoms I believe most will take you as a patient . Often times it takes more than one abx to put us in remission and I really would like to pulse Zithromax . The few Lyme docs I’ve tried calling would haven seen me as a suspected autoimmune case. Lyme patients are treated with multiple abx and iv for a number of years . Many do not have positive Lyme labs and it is my belief that Lyme docs are actually treating autoimmune patients who are infected with other organisms. I wish they were more transparent but it doesn’t hurt to call them up and explain your situation . Feel free to private message me.