Home › Forums › General Discussion › website on a patients fight with lyme disease
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March 22, 2010 at 5:16 pm #303767caseyParticipant
I found this personal story well done. Includes latest blogs, publications, upcoming events, videos etc.
March 22, 2010 at 7:37 pm #343787TrudiParticipantThanks, Casey, for posting this website. Probably the most comprehensive website on Lyme, from a personal perspective, I have come across. He has left no stone unturned and shares it all. Wow, I was really impressed!!
Trudi
Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?
March 22, 2010 at 8:46 pm #343788caseyParticipantTrudi , i was really impressed as well. Lots of reading material.
Have you read the article yet under “latest news” on the right of his home page (2nd one down) called Kryptopyrroluria. I had never even heard of this before anywhere, have you?
Well wishes,
Casey
March 22, 2010 at 9:23 pm #343789TischSEBParticipantI just found this one today too…
http://www.surfnation.co.uk/page/2/
and an article he wrote:
http://times.cluster.newsint.co.uk/tol/life_and_style/health/article7016850.eceMarch 22, 2010 at 10:58 pm #343790TrudiParticipant[user=1536]Tisch&SEB[/user] wrote:
I just found this one today too…
http://www.surfnation.co.uk/page/2/
and an article he wrote:
http://times.cluster.newsint.co.uk/tol/life_and_style/health/article7016850.eceHi Tisch–
I was able to get on the first one, but not the second one. Lyme is just all over :doh:!!
Hi Casey–
No, I haven't heard of Kryptopyrroluria. Quickly scanned the beginning of the article, sure hope I don't have the gene for it–that would just be one more thing to treat :(–hope what I'm doing now will give me much improvement.
Trudi
Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?
March 22, 2010 at 11:22 pm #343791lourisParticipantHe hits a home run of sentiment in his third paragraph (main page).
March 23, 2010 at 4:08 am #343792JBJBJBParticipant[user=9]casey[/user] wrote:
I found this personal story well done. Includes latest blogs, publications, upcoming events, videos etc.
Wow, this patient is like a guinea pig for us. He seems to be very open to try ANY thing which makes sense to him. Very informative! Thanks, Casey!
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