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  • #303767
    casey
    Participant

    I found this personal story well done. Includes latest blogs, publications, upcoming events, videos etc.

    http://betterhealthguy.com/joomla/  

    #343787
    Trudi
    Participant

    Thanks, Casey, for posting this website.  Probably the most comprehensive website on Lyme, from a personal perspective, I have come across.  He has left no stone unturned and shares it all.  Wow, I was really impressed!!

    Trudi

    Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

    #343788
    casey
    Participant

    Trudi , i was really impressed as well. Lots of reading material.

    Have you read  the article yet under “latest news” on the right of his home page (2nd one down) called Kryptopyrroluria. I had never even heard of this before anywhere, have you?

    Well wishes,

    Casey

    #343789
    TischSEB
    Participant
    #343790
    Trudi
    Participant

    [user=1536]Tisch&SEB[/user] wrote:

    I just found this one today too…

    http://www.surfnation.co.uk/page/2/

    and an article he wrote:
    http://times.cluster.newsint.co.uk/tol/life_and_style/health/article7016850.ece

    Hi Tisch–

    I was able to get on the first one, but not the second one.  Lyme is just all over :doh:!!

    Hi Casey–

    No, I haven't heard of Kryptopyrroluria.  Quickly scanned the beginning of the article, sure hope I don't have the gene for it–that would just be one more thing to treat :(–hope what I'm doing now will give me much improvement.

    Trudi

     

     

    Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

    #343791
    louris
    Participant

    He hits a home run of sentiment in his third paragraph (main page).

    #343792
    JBJBJB
    Participant

    [user=9]casey[/user] wrote:

    I found this personal story well done. Includes latest blogs, publications, upcoming events, videos etc.

    http://betterhealthguy.com/joomla/  

    Wow, this patient is like a guinea pig for us. He seems to be very open to try ANY thing which makes sense to him. Very informative! Thanks, Casey!

Viewing 7 posts - 1 through 7 (of 7 total)

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