Home Forums General Discussion Unbelievable !!!!!!!!!!!!!!!!

This topic contains 15 replies, has 8 voices, and was last updated by  CurlyinNC 6 months, 2 weeks ago.

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  • #458715
    richie
    Participant

    I decided on using Torrent generic minocycline -since they are fairly big suppliers to the US and even the generic is tight right now !!! –I check the capsules at home and lo and behold its Ranbaxy capsules —-Seems Ranbaxy sold out to Sun but our FDA made Ranbaxy sell out to Torrent minocycline as to not limit competition -there is also a proviso that Ranbaxy {now Sun } must keep supporting Torrent with product until they set up their own production —-thats not all -seems Ranbaxy sells to at least 4 other companies using Ranbaxy product –these other companies are listed with the FDA as repackagers —I follow the drug industry and thought I understood it but this one has me scratching my head –I would advise everyone when receiving a prescription to look up the pill or capsule to at least find out the original manufacturer —hopefully when this shortage clears up in a few months I can have a better selection !!!!!!!!!! Unbelievable

    #458725
    whaleharbor
    Moderator

    crazy

    200mg Celebrex 1 times per day.
    100 mg Minocycline every other day (Actavis Brand)

    #458726
    vinny
    Participant

    Welcome to the real world Richie. Now you know what most of us have been facing for years. At some point in time you will come to realize that the most effective Minocyclines are tablets made in India. I am currently using Minoz tablets made by Sun Pharma and buy from India with a prescription and doing really well.

    Psoriatic Arthritis: 250mg Azithromycin tue,thur,sat; Plaquenil 200mg daily; 100mg Minocycline TABLET M,W,F; Doxycycline 100mg Tue, thur, sat, sun; twice daily 400mg Pentoxifylline;100mcg Levotyroxine; 4mg LDN at bedtime. Have been using some level of Minocycline since 2008

    #458729
    richie
    Participant

    Firstly I am glad you are doing well –Minoz is made by Croslands -a Ranbaxy division –I guess this unit was bought by Sun —I hope you are correct –I get the sense that quality has improved quite a bit in India after the FDA got after Ranbaxy –sure hope so !!!!!!!!!!!!!!!!

    #458730
    Spiffy1
    Participant

    And what is “funny” to me is that I could not get my hands on Ranbaxy tablets to save my life! I think they are enjoying the big switch! Why is it in such short supply? Why can’t they just make more? I bet they slowed down on manufacturing to drive up the price.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 28 as of September 2016
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #458732
    richie
    Participant

    You are absolutely correct –my druggist just yesterday told me the same thing !! Holding back supply to raise prices

    #458736
    Spiffy1
    Participant

    It ought to be illegal to play with people’s health. It is never about health though. It is about money.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 28 as of September 2016
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #458749
    whaleharbor
    Moderator

    So let me share with ya’ll what happened today in the great search for “the right” generic minocycline. So…I was taking the Actavis (Watkins, now owned by Teva) brand and the pharmacy switched me to Ranbaxy which did not work for me. My pharmacy a big box store was able to get the Actavis brand…after they told me they could not when my doc insisted.

    Fast forward to today…knowing what I know now, I start EARLY…when it is refill time. I literally went to the big box pharmacy on Monday – in person – to make sure they could still get it. They confirmed yes and that they had some in stock but would need to order more. I literally called Tuesday, Wednesday and Thursday each day being promised that it was coming in and each day being told there are no issues, we will get it. Today I called and the same man I spoke with in person on Monday…the same man I had explained that I have RA and what this medicine and the right generic for me, means to me…told me, “well we can’t get it and I made no promises and it is out of stock from the manufacturer until at least June.” Ya’ll I lost it…and I don’t mean, I got nasty lost it, I mean I started to sob like I’ve never sobbed before. People don’t get the stress and worry that rheumatic disease causes and then add to the stress of trying to make sure you have enough of the brand or generic that you need to LIVE…literally to live.

    Long story longer, I called Teva (who now owns Actavis) and they assured me that are absolutely zero backorders. They said there is no reason why this big box national chain can’t get it…zero. They gave me the name of another big box chain and told me to call them. I did..they were more forthcoming in telling me that their distributor flat won’t order it…and they don’t know why.

    So I remembered what Richie has always talked about…make a relationship with your local independent pharmacist. I haven’t done that but my sister has a relationship with her local independent pharmacist. I called him and he had it…plenty of stock…tons of stock. I transferred my prescription to them and they were able to fill a 3 month supply in an hour. I had to drive 45 minutes one way to get it, but it’s worth it.

    Long story even longer…what we all go through to get the meds we need is ridiculous. I’m exhausted now mentally, emotionally, physically and oh my…I don’t even know.

    So what’s the truth…is the Actavis brand (or any other brand) available everywhere or not? Are certain pharmacies just telling us certain generics are unavailable because that’s what suits them? The good news is I have what I need for now but everyone should. We all go through enough without having to worry about access to a simple antibiotic.

    Ok…end of my rant.

    200mg Celebrex 1 times per day.
    100 mg Minocycline every other day (Actavis Brand)

    #458754
    lynnie_sydney
    Keymaster

    Sorry this has been so stressful for you – and for many others too.

    Sounds like there is a very good reason for people to develop a relationship with an independent pharmacy and/or a compounding pharmacy.

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #458755
    Linda L
    Participant

    Whale, it is so stressful. Still there are many people who want to help each other.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia Very low iron Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Oroxine, Mobic, Panadol Osteo, supplements incl. milk thistle, NAC, vitamins and minerals.
    MTHFR heterozygous

    #458756
    MarlaCL
    Participant

    Hi
    This is my first post. Looking for Scleroderma Lung Fibrosis AP testimonies.
    Thank you so much
    Marla( mtlcute)
    mtlcute@aol.com or email me Roadback:)

    #458761
    lynnie_sydney
    Keymaster

    Hi Marla
    Have you looked at the Scleroderma stories in our Stories section of the website?
    Also suggest that you go to the front page of General Discussion (where all topics are listed) and type ‘lung fibrosis’ into the search box. All posts mentioning this will come up and include some really useful information

    Be well! Lynnie

    Palindromic RA 30 yrs (Chronic Lyme?)
    Mino 2003-2007 100mg MWF - can no longer tolerate mino/doxy
    abx: MWF a.m. Augmentin Duo (1/2 x 875mg) + 250mg Klacid p.m. Cefaclor (1/4 x 375mg) + 250mg Zithromax. Annual Clindy IV's
    Diet: no gluten, dairy, sulphites, low salicylates
    Supps: 600mg N-AC BID, 1000mg Vit C, CoQ10, P5P 40mg, zinc picolinate 60mg, B3 1000mcg, EPO 1000mg, Lithium orotate 20mg, Magnesium Oil equiv 400mg
    Topical bio-identical estradiol + DHEA caps + Progesterone caps

    #458780
    richie
    Participant

    Hi –good job Whale !!! Another hint –you probably get a three month supply at once –ALWAYS reorder 10 daYS IN advance
    Over time you will build up a reserve -its important to have a reserve on hand in case of shortages etc –For example I had a reserve of minocin brand –I had to order generic now —AS a result for the next six months -I will take 100mg generic and 100 mg minocin daily –At the three month mark I will reorder generic –in this way I will always have a three month reserve on hand —Right now I cant get Actavis –hopefully this will change !

    #458792
    Spiffy1
    Participant

    I totally get it, WhaleH! I got messed with for sure. I hope this compounded minocyclene is as effective as the other. I totally understand your frustration. Now I would even be afraid to try my
    Ranbaxy again. Now I am paying out of pocket and have dropped to 100 milligrams MWF. It is scary.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 28 as of September 2016
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #458796
    whaleharbor
    Moderator

    Richie, I’m on the Actavis brand and when the big box store told me it was on backorder, I called Teva (who now owns Actavis) and they assured me that there are no backorders on their “actavis” minocycline. I made her repeat it to me several times because I was so shocked as it was 100% different from what the big box told me. The independent pharmacy had some in stock but also confirmed no known backorders. Isn’t that weird. If the Actavis is what you need, perhaps check again with your pharmacy? Perhaps something has just changed?

    Great insight also as the early reorders. I’ve never done that and it makes so much good sense…I’ve learned so much from you, Richie and I appreciate you….

    I appreciate everyone!

    Spiffy, I pray you are doing well on the compounded minocycline.

    200mg Celebrex 1 times per day.
    100 mg Minocycline every other day (Actavis Brand)

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