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Just Yay! 😀
Dx: Diffuse Systemic Sclerosis/SLE overlap, Raynaud's June 2013, Lyme August 2013
AP: Azithromycin (Teva) 250mg BID, May 2014, Clindamycin 600mg every 8 hours for 2 weeks July 27, 2015 - Aug 10, 2015
Minocycline (Teva generic) 100mg BID November 20, 2014
Meds: LDN 3.5 mg, Prednisone 5 mg (discontinued), Aspirin 81mg, Liposomal Artimisinin 50mg QID x 3 weeks, 4th week off, rotating (discontinued May 2015, restarted 2016 7 days per month), Daily Nystatin, 2 tabs BID, as a preventative measure
SupplementsAnd double YAY.When I googled our site and a page came up with all sorts of links to main stream medicine
I swore that someone brought down our site on purpose. heheheI freaked out and thought I lost you guys forever. All of you have been a god-send to me for which I’m most grateful.
The site was weird and thought it got hacked. They even asked for money. I just logged off. I hope no personal information was obtained.
Does anyone know what that was all about?
A heartfelt thank you to the administrators and volunteers who keep this site alive. You’re all so amazing! 🙂
Dx: Diffuse Systemic Sclerosis/SLE overlap, Raynaud's June 2013, Lyme August 2013
AP: Azithromycin (Teva) 250mg BID, May 2014, Clindamycin 600mg every 8 hours for 2 weeks July 27, 2015 - Aug 10, 2015
Minocycline (Teva generic) 100mg BID November 20, 2014
Meds: LDN 3.5 mg, Prednisone 5 mg (discontinued), Aspirin 81mg, Liposomal Artimisinin 50mg QID x 3 weeks, 4th week off, rotating (discontinued May 2015, restarted 2016 7 days per month), Daily Nystatin, 2 tabs BID, as a preventative measure
Supplements@RevereRosie wrote:
Does anyone know what that was all about?
Yes, no worries. It was just that the domain had expired and, as it was the weekend, we had to wait for the webmaster to respond this morning with domain renewal info to get it all sorted. Just unfortunate timing as it happened just prior to the weekend.
See the following RBFV announcement.
Thanks, Calida, we are all just as happy as you that normal service has been restored. 🙂
Thank God you’re back! I was certainly in a panic and when you were down I realized that I didn’t even have your email addresses. With much research I found an email for a few of you. The Roadback is a life line for so many of us! First thing I’m going to do is send in a contribution. I can’t even remember how to get there but I will figure it out. Thank you to all of you!!!!! 😛
CarolDancing feet are Happy feet!
Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, MetaMaybe some of us should exchange e-mail addresses in case we should ever need each other.
I don’t care who knows my add. as I have nothing to lose other than my identity. hehe
lynneandsantos@citenet.netAdding another ‘Yay’ – this place gives me so much support/ helps bolster my hope at times of need – and had no numbers/email written down outside of this site. Felt very lonely on this UK side of pond. Helpers/Admin etc – you do an amazing job.
2013 Poor gut & low white blood cells. Jan 2014 RA symptoms. Diet - no gluten/dairy/nightshades/sugar. Started AP in Oct 2014. On Mino MTWTF. RA improved but still there. Many supplements.
Agree! How comforting to see the familiar site reappear today. Thanks to all of you behind the scenes 😀
Yes, thank you so very much all of you for all of your hard work, and time invested to help people. I have not posted for a while as I have not been feeling that well, but read posts on here still, several times a week. I was so shocked and really thought what on earth would I do if I lost this group.Anyway just to say I genuinely appreciate all the help and insight I receive from this group, and am so happy you are back.
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