Update on daughter – azithromycin reaction. Now what?

[PhilC]

[user=1830]bizzylizzy[/user] wrote:

I will discuss with her Dr. Ever since she was a baby, we have struggled finding antiobiotics for her to take that didn't cause a reaction – even if they were in liquid form, or in tablet. There have been many we've tried. So it is unlikely that there is some common inert substance that she is reacting to.

It brings the diagnosis back to this multiple sensitivity thing going on. Something to do with the blood brain barrier.

Actually, I think you are incorrect about that. It sounds to me like some kind of immune system dysfunction.

[user=26]superperro(RA)[/user] wrote:

I don't know how possible or advisable it would be, especially with a child, but if her life depended on it (antibiotics could some day save her life from an infection), maybe it should be done? I believe Dr. F at Riverside tries to de-sensitize some patients to antibiotics by starting with very small doses.

That's actually a very good idea, one that I was thinking of suggesting. Since your options are somewhat limited by your daughter's drug allergies, Liz, you should look into having your daughter go through a desensitization protocol for azithromycin.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[A Friend]

Liz,

With urticaria, my first thought is:  “Think yeast!” 

Edited/added:  This dilemma has stayed on my mind.  Am wondering if this link may give you some answers to some of the problems: 

http://www.urticaria.thunderworksinc.com/pages/lowhistamine.htm

Our unhealthy bodies are very acidic.  Zithromax is also very acidic.  The worst reaction I've ever had (and haven't had but about one or two at the most), was Zithromax.  When our bodies are already very acidic, and the liver, etc. are struggling to try to handle the acidic load, my experience would say to you:  get some pH strips, do searches on the board for links about how to properly test you pH and when.  If you find yourself very acidic (I'm betting you will), then educating yourself to get your body in a healthier, more normal pH, can not only make your body less reactive (adverse reactions), but this can also address pain and stiffness, etc. 

Even though I was on a very healthy diet …. almost always… with the acidic condition of my body that I only figured out in 2006, the acidic wastes were counter-acting all the good things I was consuming.  (Even bone scans last November show visual improvement.) 

Good luck to you… there are answers to our problems… answers that will “first do not harm.” 

AF

[maz.aust]

[user=1429]PhilC[/user] wrote:

 
Actually, I think you are incorrect about that. It sounds to me like some kind of immune system dysfunction.

That's actually a very good idea, one that I was thinking of suggesting. Since your options are somewhat limited by your daughter's drug allergies, Liz, you should look into having your daughter go through a desensitization protocol for azithromycin.

Phil

Sorry to disagree PhilC — it isn't necessarily some kind of immune problem, it can simply be an allergy. 

I had the option (way back then of course) to try desensitising my daughter, but her reaction was so severe I refused to chance it.

Something else to think about is — try to think, is your daughter also allergic to preservatives, because in our case the allergy to preservatives added to her allergy to abx;  any reaction was a double whammy if you like. 

Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)

Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)

All off days Probiotics

[bizzylizzy]

Have talked to the Dr. about it and we will be starting Plaquenil on our next appointment (end of April.) We will stay a few days in case we have a reaction. (Dr. in Sydney).

She does take probiotics.

THanks for the tip about Dr. F at Rvierside.  Her cousin has visited him (she has RA). Do you know how long it takes to do a desensitising thing for abx? Is it 3 weeks or more like 3 years??

Thanks

Liz

[bizzylizzy]

If it was an immune system disfunction, wouldn't she be sick – she doesn't get anymore colds etc than most other kids. THe only wierd thing is that she does gets mouth ulcers easily – so does her Dad, and his family. She gets knocked around with sore throats etc but in the last few years has been able to manage without getting admitted to hospital with any infections.

Liz

[PhilC]

[user=492]maz.aust[/user] wrote:

Sorry to disagree PhilC — it isn't necessarily some kind of immune problem, it can simply be an allergy.

Hi Maz,

Do you understand that an allergic reaction is an overreaction by the immune system? Anyway, the point I was trying to make is that Liz's daughter's many allergies are not being caused by her brain but by her immune system.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[PhilC]

[user=1830]bizzylizzy[/user] wrote:

If it was an immune system disfunction, wouldn't she be sick – she doesn't get anymore colds etc than most other kids.

Hi Liz,

No, not necessarily. “Dysfunction” just means “not normal.” I didn't mean to imply that she is immunocompromised.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[PhilC]

[user=1830]bizzylizzy[/user] wrote:

Do you know how long it takes to do a desensitising thing for abx? Is it 3 weeks or more like 3 years??

Hi Liz,

It should be closer to three weeks than to three years. Here's the best information about this that I have found so far:

Protocols for Drug Allergy Desensitization
http://www.scribd.com/doc/22062135/Protocols-for-Drug-Allergy-Desensitization

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[bizzylizzy]

Thanks for this. I had a look at it and see that there is a protocol for aziythrmoycin (sp?) I will discuss this with the AP Dr. He doesn't want to touch it. But … I will bring it up.

For those at of you that have abx sensitivity/allergies, how did you get on with Plaquenil?  We are going to Australia at the end of April and will start Plaquenil on the Thursday of our appnt, and will have the second dose on Sunday (if the Dr is ok with that). Usually it is the 2nd dose when the 'trouble' starts with allergies. So we have a flight booked out Monday afternoon so that gives us 24 hrs to be in the same city as the Dr. so he can help us sort out the mess when/if the allergies start. Or maybe I should give us another day and wait till Tuesday.

We could have started Plaquenil earlier, but I am afraid to do this away from her AP Dr.  I'm sick of the dramas we have to cope with … would like the Dr. that prescribes it to be near by to sort out the mess.:?

Good news is that we have a new physio that has a take charge plan for our daughter and we are going to start a program working on her cardio … (apparantly she has tricks up her sleeve to get cardio going with out any backtracking from sore joints and pain the following days.) I remain to be convinced but it gives us a little hope. Mikaela once was an A Grade netballer and in a swimming squad. Super fit.

The physio is going to give us a 'quote' for the plan. Cha Ching $$$$  (I know it will give me a chronic pain just thinking about it$. 😉

As an aside, how do you all manage to pay for all this. Are most of you going in to debt to manage your recovery? 

take care.

Liz

[bizzylizzy]

[user=266]JBJBJB[/user] wrote:

and stay away from sun light.
Hugs,

JB

What do you mean by stay away from sunlight? Why did you say that? what am I missing here?

Liz

[bizzylizzy]

[user=28]A Friend[/user] wrote:

Liz,

With urticaria, my first thought is:  “Think yeast!” 

We did do the acid/alkaline test and she was right in the centre. Neutral.

She takes a probiotic.

Liz

[A Friend]

[user=1830]bizzylizzy[/user] wrote:

[user=28]A Friend[/user] wrote:

Liz,

With urticaria, my first thought is:  “Think yeast!” 

We did do the acid/alkaline test and she was right in the centre. Neutral.

She takes a probiotic.

Liz

Liz,

My point in mentioning urticaria and the possible connection to its cause as yeast/fungal overgrowth, was not directly to relate it to pH (thought in older patients, if we have yeast overgrowth, my guess is that we will definitely be very acidic because yeast/fungus thrives in a very acidic environment and produces acidic wastes), but to share information gleaned some time ago from reading in a pediatric allergist's work (that of Dr. Wm Crook, deceased) about hard to treat children and adults, who were found to have serious yeast problems.  You still might like to check out a copy of any of his books.  It is excellent information.  He is sort of recognized as the guru on this subject, and here in the USA, his influence on pediatricians to prescribe probiotics deserves a lot of thanks, among his other protocols. 

From what I've studied over the past three years on the subject of pH, there seems to be evidence that when young, children seem to get away with even a diet that  we'd recognize as pro-illness.  My best guess (before I read the following quote) from what I'd previously read was that the inate mineral pool in the body of children was strong enough to keep their blood pH where it has to be (has to be in all of us) to sustain life.  (But at this point, I wonder if perhaps things they consume and/or come in contact with, and/or have a genetic predisposition for, do not come into play and they become sensitive, have allergies, and/or become ill or chronically ill.  And also, at this point, I wonder, if perhaps in children the pH results because of their “mineral pool” may be masking day-to-day deficiencies in areas that are not (and cannot perhaps) be reflected in such a simple pH test — which cannot show the real problems.  Celiac, for instance: even if one does not have true celiac, can have a “celiac syndrome” where the gut lining, etc. has the same problems as those with true celiac disease and have the gene for it.  This belief is held by my AP physician regarding celiac syndrome, and she has her patients choose a celiac diet for this, also excluding sugar and milk, in order to heal the gut and improve. 

pH can be very helpful and revealing for those of us apparently in our 30's and on.  The following quote says as much: 

Achieving and maintaining a proper pH balance in your body is vital to your health and well-being. In its natural state, the pH of the body is slightly alkaline. It must maintain this slightly alkaline state for your very survival, and has developed complex mechanisms to ensure that this balance is maintained. Most of us are natural alkaline producers in our early years. This is why many children can get away with eating an imbalanced diet and still be healthy and slender right up until they are in their twenties.

But as we reach our thirties and forties, the majority of us have become overly acidic. That's because nearly everything we are exposed to – foods, environmental toxins, even stress – contribute to an acidic condition in our bodies, and our natural buffer systems become less efficient over time at neutralizing that acid. We go from being in a more or less continuous alkaline state to having chronic excess acidity.

An imbalanced pH affects all cellular activity in the body. Having pH balance has the following benefits:

• Normalizes insulin and body weight [/*:22i6h8lx]
• Maintains proper cholesterol levels [/*:22i6h8lx]
• Promotes proper electrolyte acitivity and efficient heart function [/*:22i6h8lx]
• Normalizes blood pressure [/*:22i6h8lx]
• Protects against premature aging [/*:22i6h8lx]
• Promotes energy [/*:22i6h8lx]
• Promotes bone health, digestive health, and healthy immunity

An imbalanced body pH can be at the root of many common symptoms such as constipation, digestive problems, heartburn, headaches, frequent colds, fatigue, and sleeplessness, just to mention a few.

[/*]
[line]

Here's hoping your new doctors and plans bring the improvement you're hoping for.  But, I do encourage you to read Dr. Crook's work.  Getting our bodies back on track sometimes requires we “jumpstart” a whole lot of things. 

Best,
AF

[PhilC]

[user=1830]bizzylizzy[/user] wrote:

Thanks for this. I had a look at it and see that there is a protocol for aziythrmoycin (sp?) I will discuss this with the AP Dr. He doesn't want to touch it. But … I will bring it up.

I recommend seeking out an allergy specialist in your area to work with you on this. That would be much better than trying to do it through a doctor in another country whom you can only travel to see on an infrequent basis.

Phil

"Unthinking respect for authority is the greatest enemy of truth."
- Albert Einstein

[Author]

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