Rhuematoid arthritis

[chrysalis]

Diagnosed November 2009. Possibly symptoms for 2 years previously, long term fatigue. Specialist advised Methatrexate immediately but I decided that anything aimed at suppressing your immune system was wrong. Saw a homeopath who gave me a referral to a nutritional specialist. Using hair analysis and medical history he looked firstly at why I was not absorbing vitamin D, started dealing with that and trying lots of herbal anti-inflammatories. Some relief then symptoms would return. Am presently on fish oil, mobicosa, catsclaw, combination of trace elements, Qsilica, iodine, colloidal silver, doxycycline 3 times a week.
Third week on doxy and feet feel better.
chrysalis

[chrysalis]

Updating after 1 month on doxycycline 100mg 3 times a week. Feet and hands still hard to use, two fingers out of shape at the knuckles and today my knees keep threatening to stop working. Have more energy but am being very careful not to do too much. One arm that i had limited movement in has improved can nearly dress myself like a normal person. Today I will double up on the doxyclycline and tomorrow I have a phone appointment with nutritional specialist and wil ask for Minocycline. Bit tired to think of more information.

[chrysalis]

Bad week for inflammation. Appointment with specialist and he said the Mayo clinic is using AP successfully so is sending me a private script for Minocin which means I negotiate with the pharmacist for a bulk price-hope I am having a good day as it is hard to deal with people when the brain won’t work. Stopping most supplements except mobicosa, inner health plus and fish oil.
Happy about this as it was getting hard to take so many pills. Also taking iodine for brain fog, Qsilica for connective tissues, colloidal silver for periodontal bacteria. Read so many posts on this site and it is so helpful and also frightening about how complicated it all is. Feel like a walking disease and now understand why people have to talk so much about this.
Fatigue back so will post progress when I start Minocin

[chrysalis]

Still bit confused about where to post things and how but here goes. Think I have been on Mino for 5 weeks with symptoms worse each dose and hard to stay upright to work 3 days a week. Decided to drop a day and immediately my symptoms have improved today I can walk around in bare feet without limping something I have not experienced for a long time. Not getting overwhelmed with fatigue either. Having a hard time mentally feeling useless and unmotivated but am aware of the element of depression in diseases like these so am trying to accept this. Should be happy that i am functioning better but it is so up and down that I don’t trust it yet-am one of those glass half empty type people so need to factor that in.
Having said that I do think this is working and I need more time to consider what triggers set of the inflammation, food, mood, physical tiredness, the world being annoying, lack of accessable doctors etc.
When I know more I will update-hopefully with more optimism.

[chrysalis]

Have now been on Minocyclin for about 4 months I think and have started taking 100mg every day on advice of specialist who says my levels are going down. Much less pain and swelling in most joints-last week I used a can opener (that was a good day) so to me this means that some strength is coming back. Have read up on LDN and sent research to specialist, if he agrees I will start this soon as it feels like enough inflammation has gone. Fatigue still a factor but since I was not planning on running the world any time soon I just give in and rest. I think I am very lucky and hope to continue being so.

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