Questions

[motherbear]

Hi everyone,

Has anyone experienced a herx that has lasted three months?

Maz:
No news as yet hopefully he sees the Doc tomorrow. 😐

[Maz]

@motherbear wrote:

Hi everyone,

Has anyone experienced a herx that has lasted three months?

Maz:
No news as yet hopefully he sees the Doc tomorrow. 😐

Yes, I have Motherbear! My first 3 months were a miserable nightmare….mind you, I had tremendous amounts of inflammation and I was also on heavy Lyme protocols. 😉

Thanks for the update, too! How is your son doing with the washout week? Any reduction in symptoms noticed yet?

[motherbear]

Hi Maz,

thanks for replying.

He hasn’t felt any difference as yet It still hasn’t even been a week and I am thinking of giving him two weeks now.
The Reason for this is that i feel his immune system is so depressed from his Enbrel It will probably take longer than a week to start clearing the toxins.

The three month question was due to me wondering again if he is in a long and hard herx. He has never been this bad for this long. It is out of character to his normal flaring patterns.

If there is no joy I will have to presume he is herxing but then again with him of the abx he should see an improvement.

In the meantime I am still waiting for DR.H to come back on board but have no idea how long that will be.

Thanks Maz

Caroline. 🙂

[Maz]

@motherbear wrote:

He hasn’t felt any difference as yet It still hasn’t even been a week and I am thinking of giving him two weeks now.
The Reason for this is that i feel his immune system is so depressed from his Enbrel It will probably take longer than a week to start clearing the toxins.

Hi Caroline,

Sounds like a reasonable plan to extend the washout to two weeks and your rationale seems pretty sound. I’ve been off my protocol for up to a month and it didn’t alter my improvements too much, though it was a bit nail-biting.

Caroline, I don’t know for sure, but I have this funny feeling your son will do better on a comination therapy for his AS. I hope Dr. H gets back to you soon, so you don’t have to wait this out with bated breath for much longer. I feel for you, Mum.

Hope your son’s tummy probs are feeling better, too.

[Parisa]

Caroline,

Has your son tried sulfasalazine? Seems many AS patients do well on that too. I don’t know if it can be combined with the doxy. Also, I think a combined protocol perhaps Flagyl and doxy might be good to try.

[Author]

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