Home › Forums › General Discussion › Question..does anyone know a number of individuals w/ S.S. In remission?

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  • February 18, 2017 at 6:41 pm #457844
    Wendy
    Participant

    Kate, thank you so much for your words re the dentist!! I have been tested 2x by Igenix for Lyme and am negative,3x by Mayo …same results. Have written a few times on this site, am still lightheaded on the 50mg in AM and usually cannot leave house until at least 11 AM. Tired walking from one room to another since all this returned w/ symptoms never had before..Today purchased B12 and biotin at Whole Foods…just maybe it will help in a few weeks. This anything but quality of life….feel sick and miserable…
    Wendy

    Systemic Scleroderma, Raynauds, Shingles 3x in right eye
    Diagnosed June 2011 on cellcept Nov. 2011 to 1st remission July 2013, relapse March 2015..cellcept to December 2015... 2nd relapse April 2016...due to possible rare side effect of cellcept..a rare corneal ulcer developed in R eye thus began minocycline May 1, 2016. Mino doseage 100mg PM, 50mg.AM daily, Levoxothyroxine 100mcg 1x a day,Tumeric capsule 450+mg 1x daily, Valium 2 1/2 mg.1x PM, magnesium 200mg 1x daily, Valtrex 500 mg.1x a day,probiotic,

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