Home Forums General Discussion Plaquenil

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  • #465580
    Linda L
    Participant

    Doctors in Ireland have been asked not to prescribe Plaquenil for arthritis to ensure there is a supply for the patients with Coronavirus.

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    #465584
    Spiffy1
    Moderator

    Best case scenario is that they should and are trying to ramp up production so that no one has to do without. The whole idea is complicated. You feel bad by not saving more lives because autoimmune sufferers need to be able to stay on their medications, but when you are saving more lives you feel badly that autoimmune sufferers may have to do without for a bit. It has been such a mess for sure. My hope in the US is that ramping up production and receiving from Israel large doses that this problem would cease to be a problem. Right now it is complicated, but it is a sign of hope that more lives could be saved and hospitals less overcrowded because of this drug. Hopefully this is a short term problem for everyone. My heart goes out to everyone affected by this shortage on both sides.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #465588
    Linda L
    Participant

    Can people like us who are taking Plaquenil get help taking other medications like Naproxen, Ibuprofen etc.?

    RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
    AP from April 2014 till August 2015. No luck.
    Current medications: Natural thyroid, Mobic, supplements,
    vitamins and minerals.
    MTHFR heterozygous

    #465589
    Spiffy1
    Moderator

    I have a friend who got her doctor to call hers into an on line pharmacy instead of her regular pharmacy. This is in the US though. Here they are trying to reserve for their regular patients but only giving out two weeks worth at a time. (At least where we live). It is such a mess for everyone involved.

    Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
    RA Factor 71 in Jan 2015 down to 25 as of September 2017
    DR4/DQ8 HLA...biotoxin illness
    IGG food allergy to wheat, egg, and dairy...probably all grains
    Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
    MTHFR compound heterozygous
    Igenex IGM positive Lyme, minoMWF

    #465594
    PhilC
    Participant

    Some people have tried lowering their dose and found that they do fine on a lower dose, so that may be a way to make one’s supply of hydroxychloroquine last longer.

    Phil

    "Unthinking respect for authority is the greatest enemy of truth."
    - Albert Einstein

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