Other benefits of Minocycline than rheumatic diseases.

[Luck20]

I was researching other benefits of Minocycline to see if there are any other perks to using it. I know its used for acne and roseaca. I saw some references to it increasing bone density. Is that true? Is it also an anti-inflammatory?

I think what I’m really looking for are ways to ‘sell’ it to mainstream medicine drs if years down the road my dr retires… I know drs are often worried about their reputations and ‘standard of care’. Are there any creative ways we can get it perscribed by drs that are hesitant?

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

[Lynne G.SD]

Hi Luck,here is just about everything I found about Mino

Primer on SD and how Mino works as a very good anti inflammatory,not as an antibiotic.New drug hopefully to be here soon called Resunab will be a super duper anti inflammatory ,an artificial cannabinoid .It is becoming clearer every day that inflammation is the likely cause of all disease and getting it down is of most importance to feeling better.This is one of the reasons that good diet is so important.
Those of you that have a good science background will be able to understand all these links.Others will have to read slowly more than once but you will get the gist of it.I have years of medical training but still have to shake out my brain after reading too many

https://www.sclero.org/scleroderma/causes/interleukins/a-to-z.html NO1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3226076/ No1

https://www.news-medical.net/health/What-Does-Interleukin-6-Do.aspx NO1
https://www.ncbi.nlm.nih.gov/pubmed/8315568 NO1

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC408350/ No1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3136898/ No2

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2787259/ No3

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3136898/ No4

http://www.sciencedirect.com/science/article/pii/S0022202X15425217 NO5 Transfer growth factor/tissue factor

http://www.pnas.org/content/93/24/14014.short this refers to NO4

http://thorax.bmj.com/content/early/2011/10/24/thoraxjnl-2011-200499.short refer to NO4

http://europepmc.org/abstract/med/23870534 refers to NO1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5075140/ refer to NO1
https://www.degruyter.com/downloadpdf/j/infl.2013.1.issue-1/infl-2013-0002/ infl-2013-0002.pdf

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4167643/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2785020/
MINO/DOXY

https://www.hindawi.com/journals/mi/2015/329418/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3651660/
https://www.ncbi.nlm.nih.gov/pubmed/22306153
http://medcraveonline.com/JNSK/JNSK-02-00073.php
http://journals.lww.com/theneurologist/Abstract/2017/07000/Antineuroinflamm ation_of_Minocycline_in_Stroke.4.aspx
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5548869/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5075140/
INFLAMATION is inflammation regardless of where it is,brain,finger,eyes etc

[Luck20]

Great! Thanks so much Lynne. I’m going to try my best to wade through that all. 🙂

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

[Suzanne]

If your doctor retires and you are doing well on your medication, there is no reason for a new doctor to make any changes. If the new doctor thinks he has a more effective drug to offer, you will hear about that. Hopefully there will be nothing to improve upon for you and you can defend not rocking the boat. I think the most likely scenario (if you are doing well ) will be that you are told you never really had scleroderma.

Mom of teen daughter with Poly JIA since age 2. Current med: azithromycin 250 mg MWF.

[Luck20]

Thanks for your response Suzanne. Yes, thats my goal, to be told I never really had scleroderma. I smile and laugh out loud thinking about it because I had 3 drs tell me they thought I had it just based on my hands before testing came back. My testing never seemed conclusive and when I get completely better, they won’t understand it and will claim I never had it! I’m just gonna laugh and be grateful I escaped it. 🙂

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

[Cheryl F]

Luck20:

First, my family considers minocycline a tan enhancer. When my older daughter took it, while she was a competitive swimmer in sunny San Diego, she always had the nicest tan. That is probably not going to be of too much help in convincing a doctor to Rx.

My suggestion would be to ask your current doctor to let you know of any retirement plans at least 1 year in advance if possible. At that time, establish a relationship with a cooperative rheumatologist and get to know that new doctor BEFORE the current on retires.

Good luck!

Cheryl

[Luck20]

Hi Cheryl! A tan enhancer? I thought it was the sclero doing that? I ran into someone the other day and she said I had a nice tan and I was crushed. I thought my skin was finally looking more white and pink on my face instead of the strange tannish-yellow I had before being diagnosed.

I’m scared to even ask other drs.
Everytime I’ve tried to bring it up, I just hear its bunk and I’m scared to push. Its been a really, really rough year. I don’t feel real strong right now. I wish our healthcare system worked differently.

I’m so glad for The Road Back! I don’t know what I would do without the support right now. Thanks so much.

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

[Cheryl F]

Luck20:

It may not be easy but you’ll be able to find an AP doctor when you need one. For me, soon after my daughter recovered, we decided to “grow our own” AP doctor. After high school we planted her in a molecular biology program. Those seeds of knowledge were then harvested and planted into a Medical school program. She grew into a baby doctor there and then went on to residency and fellowship. Finding an AP doctor to work with is so stressful, I completely understand you wanting to be prepared.

~Cheryl

[Spiffy1]

You absolutely would have to find someone that would continue your prescription. This is a worry for all of us. I have moved half way across the country from my AP doctor but am keeping him as a phone consult to prescribe me my meds. And a new doctor who doesn’t understand or care to understand AP would have no qualms about taking you off your medication. If this were to happen you would just keep searching until you found help. This website has a list that can help as well as researching functional medicine doctors in your area. They are much more likely to think outside the box.

Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWF

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