Non-AP Rhuems advice on why people think AP helps, but doesn't

[maz.aust]

Jumped on to catch up with everything this afternoon, and found all these posts, how confusing.

Does AP work, doesn't AP work, is it this, is it that…..

My question is: Does it really matter?  Do you feel better whilst taking it?  Have you found any alternatives that work or work better?

With the amount of pain I used to be in when my PR flared I would pay whatever amount of money I can afford, and some, if I thought it would put my PR into remission.

I too have just started AP therapy 3 wks ago, and will be taking 3 different antibiotics at the end of the month, and I really could care less….as long as it works, or eases the symptoms, or allows me to drive without wondering whether my PR will hit hard (as it used to do) and I won't be able to drive home.

I have only had 2 minor flares since Feb this year and a couple of weeks worth of herxing lately, but at least I know if I flare it won't debilitate me, I will be able to drive home, I don't have to take morphine and all the other pain relief meds anymore, in the hope it works this time, and that feeling is great!

You are the one who needs to make the decision on what you are, or are not, prepared to do – in order to make that decision you need to be informed – in order to make that decision you have to be strong enough to question your doctor (if need be) so you understand exactly what is expected to happen.  Remember you are the one in pain, you are the one who is trying to ease or prolong the symptoms of PR or whatever it is you have, not the doctor.  The doctor is only there to give you his advice using his knowledge and expertise.

Medicine is not an exact science, it has lots and lots of variables. 

Hope you find it in yourself to make a decision for now and give it time to work.

Cheers,

Maz – Aust 

 

 

 

 

 

 

 

 

 

Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)

Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)

All off days Probiotics

[Missyb]

Thank you Maz, I don't know if I'd feel better on AP since I haven't tried it before, but I want to find out! I DO believe that I have some form of chronic infection, and have thought so for a long time, well before I read any book, I just knew it. Finding out about AP has just confirmed what I thought.. I just feel “infected” like I wake up each day  feeling exactly as though I'm coming down with the flu..why would one feel like they caught something everyday for no particular reason? There has to be a reason!:D

[maz.aust]

You are welcome —

The thing is not to loose sight of the big picture, you have to give it time to work.

If you don't have faith in your doctor, go somewhere else.  I went to 3 rheumatologists for 3 opinions before I finally had to admit that PR sounded the most likely.  Now I see my own GP (not a specialist) because she uses AP treatment and confers with a naturopath as well.

What to do about it didn't come easy though, not because I didn't want to try it, I just didn't know about it.

Good luck,

There are lots of people here that have much more knowledge than me and have been on AP for a long time —

Me, I think it is great we can all get advice and opinions from people who actually have AI diseases. 

We are the guinea pigs, we are the ones in pain, we are the ones who know what and what doesn't work for us, not the doctors…..they can only advise us.

Have a great day,

 

Dec07: Diagnosed PRA, (CTD; Fibromyalgia; suspected Lyme):
Mar08: Diet to heal gut/bolster immune system (no gluten, dairy, sulphites or sugar)

Jan 2018: ABX Mon/Wed/Fri (started AP 2008)
1/2 x 150mg Roxithromycin(Biasig), 1/2 x 150mg Clarithromycin (Klacid),
1/2 x Fungillin, 1 x 250mg Cephalexin (Keflex)

All off days Probiotics

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