Home › Forums › General Discussion › My first IV at home
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January 7, 2009 at 9:39 pm #323493AndreaParticipant
I do have a probiotic but what is this flagyl????? is this over the counter.
January 7, 2009 at 10:02 pm #323494katParticipantNo, its prescription. But if you get any bad diarrhea I am sure the doc who prescribed the IVs for you would be more than willing to give you a script for it. Flagyl is another type of antiobiotic used for different types of infections than the Clindy etc. One of its more common uses is for AAD and/or C. Diff, one of the side effects of using the other antibiotics especially Clindy. But oral Clindy is much worse than the IVs are for that.
You would not take the flagyl unless you got the diarrhea. But the probiotics, take before, during and after no matter what!
January 8, 2009 at 6:58 am #323495katParticipantJust finished IV number 4, and still doing fine. Went to the store today with my husband to load up on more yogurt (still take probiotics too). My IV is holding up fine and I do not even know its there, its very comfortable and not limiting me in any way.
Its amazing to me how fast the IV clindy works. The only place I have any real pain is in my low back and hips, and my thoughts are that that will never go away completely due to permanent damage there. My neck and shoulders are much better, my hands and wrists are better (I have typed more in the last 2 days than in the last 2 months combined, lol) so of course my disposition gets better too. I LOVE IV CLINDY!
January 8, 2009 at 12:09 pm #323496KimParticipantThat's great, Kat, ……… you'll be doing cartwheels after the 10th IV! :roll-laugh:
January 11, 2009 at 1:36 am #323497katParticipantI just finished my last IV! It went very smoothly at home. I only needed the one line for the full 5 days, so only had to have the infusion company out here that very first time (the less visits, the less money it costs 🙂 ). We had no problems administering the IVs or taking out the line when it was done. What a truly stress free way to get these IVs. All in all a very positive experience.
January 11, 2009 at 11:36 pm #323498mommaof2princessesParticipantI am so happy for you that it went so well!!!
January 12, 2009 at 4:25 am #323499JBJBJBParticipantKat,
So glad you are feeling better and you are done with your five day IV treatment and everything went so well. I know your feelings. You are right, it's more relaxing at home than in the hospital. I can't believe your area only charge $70 per visit. Our area is $153. I still have a lot of supplies left.
Your Rheumy is great. He subscribed IV for you. I may have to drive up to see him if in the future Dr. S cannot prescribe it any more. So far, no one down here is willing to subscribe it.
My lungs are not doing well these days. I am waiting to see a pulmonary specialist. I may get zithromax IV. I heard it works better than pills. I may have to do 5 IV from home.
Hooray!!!:roll-laugh:
JB
January 12, 2009 at 6:01 pm #323500katParticipantThanks Mof2P! 🙂
January 12, 2009 at 6:05 pm #323501katParticipantHi JB!
The $70 did not include any of the supplies and meds. I still do not know what the bill is for that portion. I have lots of supplies left and my nurse just told me to keep them and that next time he comes they will not have to bring as many (and I assume, there will be less charge).
I'll be interested to know how the IV zith goes for you if you get it. I have some lung problems too (nothing like yours) and the clindy didnt seem to help it this time like last time. Or maybe its still a herx, don't know.
Let me know if you ever need my docs info. He really is not set up to treat real out of towners (or out of staters) because he can't do IVs in his office, only at home, but I'm sure he'd be happy to see someone as local as you are. He's GREAT, I do appreciate my rheum doc very much.
January 13, 2009 at 2:16 am #323502JBJBJBParticipantKat,
Thanks for the information. My bill was everything included. It is nice to know some one within 2 hours drive will be able to prescribe Climdy IV. That's really great.
I will let you know how it goes. I hope I will be put on Zithromax IV. My lungs are burning right now. The nurse ordered the X-ray for me. I did not get the chance to do it because I still hope I will be able to see my own pulmonary doctor. I waited for whole day for his nurse to return phone…. I will call his office again tomorrow.
JB
January 13, 2009 at 3:17 pm #323503AndreaParticipantWell, I started my IV on Saturday. Friday they came out and poked me 3 times and couldn't get a good vein so Saturday they came out and poked me 2 times. They finally got it. I had one treatment that night and one the night after and now my IV is bad so they have to come out and give me a mid-line?????? That's supposed to happen today. So far I feel about the same maybe a little better but I've also only had 2 treatments. I will keep you posted……..
January 13, 2009 at 3:20 pm #323504JBJBJBParticipantOuch!!! That must be extremely painful. I had the same thing. I got poked five times. Not fun. I sure hope you will be able to get the IV. Keep us posted.
JB
January 13, 2009 at 3:52 pm #323505katParticipantSorry you are having a tough time getting the line in Andrea. Let me know how the midline goes. I'm sure we are all faced with the possibility of a midline if we can't hold a heplock IV long enough.
My nurse came by to pick up the pump yesterday. He told me he was amazed that my lock IV lasted that long! I had to laugh at that, cuz the day he gave it to me he said it probably wouldnt be a problem lasting. He didnt want to admit that it probably wouldn't. :roll-laugh:
Two IV's is too soon to tell Andrea! Keep us posted on the progress!
January 13, 2009 at 7:23 pm #323506mtgasParticipant[user=266]JBJBJB[/user] wrote:
Yes, it's a great feeling to do it from home. I felt like gaining some control over :roll-laugh: once I knew I did not have to go back to Iowa. Did Dr. S prescribe the med for you? He is really wonderful.
Hi JB,
Sorry to butt in here but how did you go about getting your IV treatment done at home? I know Dr. S is more than willing to prescribe them but I don't know where to begin.
I just found out my insurance will cover home IV treatments but I am not sure if I should contact my insurance first or does Dr. S take care of it all?
It would be a whole lot easier to get my next treatment at home than to go to Ida Grove from Miami 😀 My veins will probably respond better too since it is like 78 degrees here. I think they shriveled up when I was in Ida Grove in October and it was still in the 40s! I was the only person there with a wool coat & gloves on :roll-laugh:
Thanks for your help!
Michelle
January 13, 2009 at 9:05 pm #323507JBJBJBParticipantMichele,
First you contact your insurance and make sure they cover the treatment. Second you will need to contact your local hospital and see if they have any “Home Infusion” unit. If they don't, you contact cancer care unit and see if they do. Then you go from there. JB
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