Low Dose Naltrexone

[Mumof3]

Is anyone using this for scleroderma? If so, is it helping?

[Spiffy1]

I am surprised that someone has not answered you. My guess is that it absolutely has. Have you googled it to see how people have responded? I know I plan to never be without it if I can help it. I know it is good for me!

Flare fall of 2014...muscle aches, joint pains, fatigue, hair loss, rashes, etc.
RA Factor 71 in Jan 2015 down to 25 as of September 2017
DR4/DQ8 HLA...biotoxin illness
IGG food allergy to wheat, egg, and dairy...probably all grains
Vit. C&D, probiotics, milk thistle, turmeric, fish oil, methyl b 12, methyl folate, digestive enzymes, Candisol, Ubiquinol, berberine, chlorella, Moducare, LDN, monolaurin, Triphala, Patriot Greens, Paractin
MTHFR compound heterozygous
Igenex IGM positive Lyme, minoMWF

[Mumof3]

I have checked on the LDN websites and have seen that it can be used for scleroderma. Just wondered if anyone had personal experience on here with it. My rheumatologist wouldn’t prescribe it as he doesn’t have experience with it. I will try my family doctor but doubt she will prescribe it. Will likely need to find another doctor to prescribe it for me.

[Linda L]

Mum’s, ask your pharmacist to give you a name of a doctor who prescribes LDN.

RA tried everything: Methotraxate, Arava, Humira. Pneumonia three times. Anemia. Very low iron. Hypothyroidism
AP from April 2014 till August 2015. No luck.
Current medications: Natural thyroid, Mobic, supplements,
vitamins and minerals.
MTHFR heterozygous

[Mumof3]

Thank you Linda. I will try that.

[Vincentpre23]

I haven’t used it myself but there is a very good Facebook group page that has a lot of information on it. I believe they share a website in the group that enables you to buy it with or without a prescription. If i remember correctly you can make an appointment with a doctor via Skype and he/she will prescribe it to you. I hear its a very easy and cheap process. The group name is Low dose Naltrexone (LDN) for chronic illness & infections. Good luck

4/19 symptoms onset
UCTD , 1:40 ANA Speckled, Now negative
Mycoplasma P IGG IGM, EBV, HSV1, Igenix Bartonella IGG
Doxycycline 100mg b.i.d. , Bactrim ds 960 mg b.i.d. , Biodisrupt, fluconazole 100mg q.d , Monolauren, Visbiome probiotic 112.5b b.i.d ,B-complex, Vitamin D , Quercetin, saccharomyces boulardii, raw garlic , paleo, WHM

[Mumof3]

Thank you. I will check it out.

[Luck20]

I’ve used it. Right away it helped with foot pain. I started 3 rx’s close together, so it’s hard to say what did what first… I have read of people with scleroderma using it alone to deal with the disease. Also, I’ve heard it can change hashimoto’s thyroid antibodies to zero. It’s worth trying. Very safe.

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

[Mumof3]

Thank you. I joined the Facebook group. I’m going to try it

[Author]

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