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[user=977]mschmidt[/user] wrote:
If you don't mind me asking, what is MSM?
Hi Maria,
MSM is a natural occuring sulphur compound, is very safe and very effective natural remedy against inflammation, also acts as a detox. Remember the hot sulphur springs that people used to go sit in to relieve their aches and pains, same thing.
There is lots of information and threads on this board about MSM, if your just do a search for MSM you will get a heap of info.
I have been on MSM now since starting Abx and have found it to be a wonderful supp and wouldn't go off it for anything…………hope this helps……Annie
Diagnosed with RA in 2004, after trying many conventional meds I changed to mino.
2015 changed to doxy 50mgs
2016 went off doxy, after getting double pneumonia and massive flare put myself on 250 mgs Zith & 50 mgs doxy, which I will increase slowly.
Supps, magnesium, NAC, vit c, krill oil, oregano oil, thisylin, turmeric, olive leaf extract, vit B, multi vit.Thanks, Trudi, for the article. It's really interesting.
Annie,
It's good to know MSM may work. Thank you for the information. I will remember it.
Kim,
Today I emailed my doctor, asking him to give me this hypercoagulation test. He has not replied yet. I drove him nuts, I know. He wanted me to get another CT Scan on Wednesday. I changed the Scan date to March 20, 2009. He also wanted me to do cardiac catheterization, forget it, I won't do it. He said I needed a flu shot, I said I would not take flu shot. …. soon he would “fire” me.
:headbang:
[user=266]JBJBJB[/user] wrote:
Kim,
Today I emailed my doctor, asking him to give me this hypercoagulation test. He has not replied yet. I drove him nuts, I know. He wanted me to get another CT Scan on Wednesday. I changed the Scan date to March 20, 2009. He also wanted me to do cardiac catheterization, forget it, I won't do it. He said I needed a flu shot, I said I would not take flu shot. …. soon he would “fire” me.
:headbang:
Good job on drawing the line on unnecessary tests. I won't agree to anything without being convinced it makes sense. If your doctor won't let you be involved, then it's probably not a good fit anyway. Fire him before he fires you. :roll-laugh:
I cannot believe it but, I convinced my IM doctor to prescribe me brand name Minocin, saying it was medically necessary because I was experiencing heartburn with the generic form. He told me he would, and I spoke with my insurance carrier, who approved it, as long as my doc wrote on the prescription that it was medically necessary. I am SO relieved, and could not have done so without the great advice from people like you, as well as others on this site. He is giving me the prescription tomorrow! THANK YOU!! I will begin taking the real stuff tomorrow now. Do I still have to take it on an empty stomach? Should I have him give me the 100 mg 2x/day dosage? Thanks!
Maria
Well done, Maria! I'd ask he write the rx for 200 mg/daily just to cover your bases. Once you have it you can start low and slow and see how it goes. I did just fine pulsing 200 mg M/W/F, but I'm more the exception than the rule for SD, you may want to work up to daily.
Kim,
Thank you, Thank you, Thank you! You have helped me more than you'll ever know. I am more the exception myself in most things, and will be doing the daily 200mg of Minocin. I just can't believe the bureaucratic bull—-you have to go through to just get something approved, that could potentially save your life. That is SO wrong on SO many levels. Think of all the people who are too sick to fight for themselves. It makes me so sad when I think about them. I will keep you updated on my progress. God bless!
M
John,
I just watched the video link you sent me on the Marshall Protocol. I was told by a naturopath to take 3-5,000 IU of Vitamin D, because most people with autoimmune disorders have a Vitamin D deficiency. Now, after watching this, they're saying NOT to take Vitamin D supplementation. I am VERY confused!! Should I be taking ANY other supplements, or none at all? (Just the Minocin?)
On a more positive note, I saw a dermatologist today, that actually mentioned Brown's AP protocol, didn't even hesitate to give me another prescription of brand name Minocin(I already have one with my IM doctor). Now I have a back-up. He was VERY open to it, and told me that if I needed anything else, to let him know and it's done. I was shocked, but very happy. I'm going to Ida Grove, IA January 4-8 for a series of 5 day IV clindomycin treatments. Dr. S feels it's imperative for scleroderma patients. I'll let you know how it goes. Thanks for your insight.
Maria
In our holiday boutique gifts thread, Kim suggested disposable hand warmers, may they would help your cold hands.
[user=977]mschmidt[/user] wrote:
On a more positive note, I saw a dermatologist today, that actually mentioned Brown's AP protocol, didn't even hesitate to give me another prescription of brand name Minocin
Hi Maria,
Do you think your dermatologist would like to be added to the Road Back AP doc list, as he knows of Dr Brown's work and is so open to it? Please let us know, if so. We're always on the lookout for new docs and I understand the Chicago area can be tricky for some to find an AP doc. Thanks!
Peace, Maz
I will see if he would be open to it. I'm just SHOCKED that he even referred to it. I'm his “case study” I guess, since he's not seen many, if any cases of SD. He also kind of found it interesting that I am feeling better since having my breast implants removed. Many doctors that I have are very curious to see how I'll feel in the next 6 months to a year.
[user=977]mschmidt[/user] wrote:
I will see if he would be open to it. I'm just SHOCKED that he even referred to it. I'm his “case study” I guess, since he's not seen many, if any cases of SD.
Maria, thanks for asking him! 😀 He may want to see how you do on minocycline for a while, which is good, too. Once he sees you improving, he'll be a convert!
Peace, Maz
I hope to convert more than just him!:D I just got the rest of my tests back, and every single one of them is normal. That is the biggest blessing I could have going into the holidays. I've only been on minocin for a week now, and I can't believe the difference it is making already. I expect to continue to recover, and get better. I have so much gratitude to the rbf, and everyone on here for all of the advice and guidance. I feel incredibly blessed.
M
[user=977]mschmidt[/user] wrote:
I hope to convert more than just him!:D I just got the rest of my tests back, and every single one of them is normal.
Maria, that is just the best news…what with you and Randy, you're both going to be the next SD poster children for AP!
It certainly will be a happy holiday for you both! 😀
Peace, Maz
My husband has worn silk underliner gloves for about 2 and half years now. Wearing them made a big difference in finger ulcers and it's sad to say that none of the doctors thought to recommend them but a nurse. He recently switched to wearing therapeutic gloves made by Isotoner that were recommended by his physical therapist.
Two years ago in the winter we were afraid that my husband might lose some fingers his hands were in such bad shape. Last winter he made it through without a single ulcer and this winter his hands are in even better shape. The circulation does improve over time. I'm hopeful that they can get back to normal.
If the Viagra works well for you, you can try looking into Cialis which works for about 4 days versus the 4 hours of Viagra.
Here's the link for the gloves:
http://www.totes-isotoner.com/category/isotoner/therapeutic+gloves/glove+styles.do
The topic ‘ Icy cold hands and feet’ is closed to new replies.