Home Forums General Discussion I just got approved for the IVIG !

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  • #350821
    BJK7493@aol.com
    Participant

    Hi Tonya! Yes I went back to my Rheume because the I did not get much relief from the IV Doxy this time.  He immoderately wanted me to go back on chemo and I said no. I had done some research about IV Gammaglobulin so I asked him about it and he said he thought it would help me.  Then he saw all the ulcerations and he really got to work with the insurance company. I got approved on Friday and start the treatments on Tuesday of this week down at Mercy.  I guess they are 5 hours long each day. Something has got to help!  The shortness of breath started about 2 weeks ago. The Rheume thinks it is the beginning of pulmonary fibrosis-but the IVIG should help this.

    We still need to do lunch someday!
    Julie

    #350822
    jlane1111
    Participant

    Is anyone getting IVIG and Cellcept for scleroderma? The posts I've been reading are for IVIG for a rheumy problem vs scleroderma.  I'm trying to get IVIG approved for my husband but wanted to check if anyone is getting it for scleroderma.

    Thanks and congrats to all on IVIG and seeing improvement!

    Jo  

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