How quickly did AP help you????

[mike.parker]

I started moncycline four days ago and I truly already feel better, I do have dizziness but it seems to be improving some….but is it typical to show signs of improvement this quickly…..it feels like the fog has been lifted of me…my energy is better…my mind seems clearer….and I have a sense of well being that I haven’t had since before my diagnosis in 2007. I have ordered the book from amazon but it will not arrive until the 23 rd….So I figured I would ask you guys and gals

[lynnie_sydney]

Mike that is great to hear. Responses vary widely and often the herx makes people feel worse before better. And sometimes improvements are glacial so barely noticeable. If treatment begins early after diagnosis (and not many years of traditional harsh meds), that is sometimes a predictor of an early response but it’s very individualised and, often, it’s 3 months or so before most see and feel anything measurable in improvements:
https://www.roadback.org/index.cfm?fuseaction=studies.display&display_id=184#Anchor-First-44591
In my case (originally diagnosed with palindromic RA) and when first on mino MWF in 2003, I noticed improvement in my energy first up- at week 5 (had to check back to my testimonial!). Actually, you might like to take a look at some of the testimonials on our main site and that will give you some others’ experiences. Lynnie
https://www.roadback.org/index.cfm/fuseaction/community.sub/subgroup_id/index.cfm?fuseaction=community.sub&subgroup_id=6&SR=16

By the way, dont be disappointed if you seem to backslide a little – this is often a two steps forward, one step back kind of road.

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[mike.parker]

thanks lynnie

[gordbentley]

I had that feeling for the first week and then went through three weeks of hell so brace hard my friend. its normal for AP! so dont think for a second its a rebound if that goes down.

[mike.parker]

Well actually thats why I posted my comments, because I figured someone was going to tell me that….I sure hope I can bypass that section of the AP but if not oh well I will just have to look to the end results that I know are on the horizon…

[chrysalis]

I was pretty badly restricted over a year ago, took every major herbal inflammatory and herbal anti-biotic for 8 months before I found this site. Started with 100mg MTF and would flare after each dose then settle down again. After 3 or 4 months I started mino every day and now am probably 70% better. Fatigue is nearly gone-have to watch overdoing things because you feel better than was. Experimented with halving the dose but symptoms started to come back. I know my lymphatic system is not functioning as it should to clear toxins as things are killed off so am researching Neprinol for that. It seems it is so individual but you sound like one of the lucky ones. With much less inflammation my strength came back-using a can opener etc. A year ago it was so hard to figure out how to dress or shower when one arm wouldn’t move, other hand could not grip, one leg out of action and neck stuck. It is ongoing so take it as it comes as you feel better your mind helps you to know what needs to happen next. Very good luck to you. chrysalis

[quilter]

The mino helped me really quick. My ANA came down in 6 weeks! I never had a herx. But I got a yeast infection and unfortunately I quit taking the mino. That was three years ago. Now I have some symptoms back. But I’ve found The Road Back Foundation and I’m looking for comlete recovery this time. I’ve said that they diagnosed my MCTD early on but sometimes I wonder how long I may have had it. I hope you have complete recovery quickly! 😀 Carol

Dancing feet are Happy feet!
Nov 2007 Raynauds, Jan 2008 Carpal tunnel, Aug 2008 Rotator cuff, May 2008 MCTD, July 2013 H.Pylori, Aug 2015 Vaginal Atrophy
Medications: Minocycline 100 mg MWF, Low Dose Naltrexone 4.5mg, Acidophilus 1-3 a day, Estradiol patch
Vitamins etc.: Vitamin A, Vitamin E, Vitamin D-3 1000 IU a day, Aspirin 325 mg, Magnesium, B6, B12, Beta-carotene, Cranberry, Garlic, Multi Vitamin, and Glucosamine & Chondroitin with Boswellia & Manganese, & MSN, Grape Seed Complex, Meta

[Eileen]

Mike,

Good to hear you a feeling some better. Who long does it take to really feel better? I started AP in June of last year and it’s so individualized. Each an everyone of our bodies is different, depending on what’s lurking inside of us. For me it took almost five months into treatment before anything happened and then wham! I wish I could have slammed on the brakes. Herx’d relentlessly for about 6-8 weeks. One that kept me crippled up and on the couch. All hell broke loose inside my body. It was one day that a light switch flipped on inside my body and I awoke and said, “what happened? I feel so much better.” Just remember there is no quick fix. This is a long process in which is well traveled. There will be setbacks and then you will push forward again. Don’t get discouraged. This is the normal process of AP. People here have been of tremendous support. Keep reading, keep absorbing info. and do your own research to fit your needs.

Be good,
Eileen

[mike.parker]

thanks everyone

[Author]

Posts