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My 12 year old daughter who is seeing a LLMD has been herxing later this week and today. Any good advice for helping her? I have stopped her antibiotic (dr advised to do this for 1 to 5 days, depending upon symptoms). Today is day 3 w/o antibiotics. She is having a lot of back pain…not as much chest pain. I don’t know when to put her back as she always hurts, so pain is still going to be an issue. What ways have you dealt with herxing? Thanks, JulieKatie
Katie
12 y.o. Lyme Disease (diagnosed Nov2011 but sx since at least 2008)
Taking Ceftin 500mg BID
Magnesium, D3 and Bcomplex Vitamins
Nystatin and diflucan for yeast problems@JulieKatie wrote:
What ways have you dealt with herxing?
Hi Julie,
Sorry your post got lost in the shuffle! It’s been quite active on the forum and sometimes this happens, but not intentionally. 😉
The other day, I made a list to myself of all the detox methods I’ve used to help with herxing. Some of these have worked better than others and some are easy to do and some take some research and time. As a Mom, helping your 12 year child, some detox methods may be met with resistance, which is an added issue. As an adult, we will usually pull out the boat to do what we can to get well again and try things we never heard of, let alone try, but there are other matters to consider when a child is sick…they don’t want to be sick, they don’t understand why they are sick, they just want to be like “normal” kids and they sure don’t want to be doing yeucky enemas! So, perhaps finding something that may become part of a gentle introduction to detoxing might be the best way to go and explaining in simple terms why it is needed. For e.g. maybe just starting with the lemon/olive oil detox drink, which actually is quite nice and tastes like lemonade if a bit of honey or stevia is added.
Anyway, here is the list I compiled and hopefully will provide some leads for your further researches:
1. Glutathione IV push
2. IV Myer’s Cocktail (high dose nutrients)
3. Undenatured whey protein (to boost glutathione levels) – products such as Immunocal, ImmunoPro or Warrior’s Whey…important to ensure whey is harvested from “organic” grass-fed cattle with no additives.
4. Far Infrared Saunas (aka FIR saunas)
5. Epsom/peroxide baths
6. NAC (N-acetylcysteine) capsules to reduce fibrosis and, as NAC is a precursor to glutathione, will also help with detox.
7. ALA (Alpha lipoic acid) – anti-oxidative capsules
8. Systemic enzymes (taken on empty stomach) such as serrapetase or nattokinase. I’ve used Neprinol, which is quite expensive, but it is promoted for RA as a fibrinolytic/proteolytic supp to reduce inflam and fibrosis.
9. Krill Oil gel caps (said to be more bio-identical than fish oil)
10. Astaxathin gel caps
11. Coffee enemas (first used by Dr. Gerson to reduce pain in cancer patients…coffee is absorbed by hepatic portal vein and is thought to promote glutathione).
12. Liver/Gall bladder flushing (not for anyone with kidney issues due to magnesium content in epsoms) and lemon/olive oil detox drink (which acts as a slow liver flush when used daily).
13. Colonics – I haven’t tried these, but some AP docs are using these in a series to clear toxic waste from the gut…need to be careful to replace good bacteria after these (some colonic hydrotherapists will do a probiotic flush into the gut after the colonic).
14. Lots of good old fashioned pure water.
15. Ensuring never to get constipated. If I do, I use Oxypowder capsules (ozonated magnesium)
16. Good, clean fresh diet of lots of fruit and veggies, being careful to watch for food offenders, such as gluten and dairy, which seem to be the most common ones.
17. I’ve also started using a supplement, called Slippery Elm, which is purported to help heal the gut lining, as leaky gut can be a problem for many rheumatics.
18. Opti-Cleanse, as prescribed by my doc: http://www.xymogen.com/2008/formula.asp?code=000262
Here is a link to an AP doc in NYC who specialises in Leaky Gut with suggestions on how to heal and protect the gut.
http://mdheal.org/leakygut.htm
As with everything we do as rheumatics, the low and slow approach works best, and I wouldn’t try to do more than one thing re: detoxing at once so that I could determine what was helping and what wasn’t. So, a nice, slow, measured approach in consultation with a treating physician is the optimal way to go when trying something new of this ilk.
WOW – thank you Maz. Don’t want to ‘hijack’ the post but just wanted to say that list is very comprehensive and I appreciate it soooo much.
Love Patricia x
Maz, I heart you 😀
Something I do with slippery elm as I hate the taste (my kids call it slimey elm), is put 1tbsp in 1/4 cup aloe vera juice and swisho it around until the lumps are gone, then down the hatch.
ouchy
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