Hello. It has been a long time since I was here.

[Susan LymeRA]

Hi everybody.

I stumbled on someone’s RA journal on the net and she discovered low dose minocycline and I thought about this board and thought I would come back to say hello.

All is doing well for me these days. I still have high levels of mycoplasma, but all other bugs and parasites seem to be gone. I’m no longer on any meds and am using homeopathy for the mycoplasma. No Enbrel anymore. YEA!!!

If I eat gluten I will instantly get joint pain. Usually in a thumb and the knees will ache. Nothing else causes this flare.

Long road back is true. 6 yrs for me.

Take heart folks. You can get well.

Love to everyone here!

Susan

[lynnie_sydney]

Hi Susan
Lovely to see you back and great news that you are doing so very well. Given that, am sure you dont need to think about RBF and the Discussion Forum. However, would be great to “see” you here any time you feel like it.
Thanks for calling by and updating. Stay well!

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[Valsmum]

Susan,
I have thought about you a few times and wondered how you were doing. I am so happy to see you are doing better. I am doing SO much better than I was doing back when I would ask you questions and you would answer them with such care and I will never forget it. It was the beginning of my RA and I never had to deal with anything quite like it in my life. I hope you have great health and I am glad we met.

God Bless you!!

love,sheri

[Trudi]

Hi Susan–
Glad to see you pop in and very happy you are doing so well!!

Take care,
Trudi

Lyme/RA; AP 4/2008 off and on to 3/2010; past use of quinolones may be the cause of my current problems, (including wheelchair use); all supplements (which can aggravate the condition) were discontinued on 10/14/2012. Am now treating for the homozygous MTHFR 1298 mutation. Off of all pain meds since Spring '14 (was on them for years--doctor is amazed--me too). Back on pain med 1/2017. Reinfected? Frozen shoulder?

[Author]

Posts