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Hello friends,
I just joined and I have a few questions about using AP in the treatment of scleroderma. I also have questions about Lyme Disease testing. I’ve been reading this board for a while now and have read the experiences of some others on here with scleroderma, which has been super helpful. I am a regular on another scleroderma support board, but I figured this was the right place to ask about AP. I have UCTD but my rheumatologist is pretty sure that it’s early scleroderma. I’m researching all my options for treatment and have read Dr. Scammell’s book as well as all of the published studies on AP and lots of testimonials. I requested a list of AP doctors in my area through this site and made an appointment with one for next week. I’m not 100% sure that he is still using AP because his website describes his approach to treating autoimmune diseases as involving the use of hydrogen peroxide and chelation. He does believe AI diseases are caused by persistent infection, but seems to think that these other therapies can eradicate infection. This is just according to an article he wrote on his website, so I don’t know what he will say about my case yet. This website is on his list of recommended reading so he obviously supports AP as well. I’m very iffy about hydrogen peroxide and chelation personally… have any of you tried them on their own or in tandem with AP?
I’m also exploring the mainstream medical approaches and have my first appointment at a scleroderma clinic this summer. I’ve been seeing a general rheumatologist up to this point. I also see a naturopath who has suggested some supplements and dietary changes. So I’ve got my bases covered! 😉
A little summary of my issues to date: I’ve had bouts of joint pain in my hands and periodic flu-like symptoms for a few years, but it wasn’t a big deal and I never asked my doctor about it. When I was pregnant with my first child 6 years ago I had some blood test abnormalities: high white blood cell count and very high eosinophils. That was never explained. I felt well until a little over a year ago when I was pregnant with my third child. I started to get aura migraines with lots of tingling, blurry eyesight, etc. Then heart palpitations, dizzy spells, and bouts of diarrhea or nausea. I chalked it up to being pregnant, but a particularly scary migraine made me seek help from my doctor who thought it could have been a mini-stoke. My MRI and echo and EKG were all normal though. In the fall (after my baby was born) I started waking up with stiff, swollen hands and feet and burning pain in the backs of my hands. Then the joint pain in my fingers would come and go. Suddenly I developed bad Raynaud’s (mostly in my feet), GERD, and a lot of tingling, numbness, and other weird sensations in various parts of my body. This took me to a neurologist who was perplexed after another MRI was normal. A vascular study showed “severe vasomotor dysfunction” in my hands and feet (i.e. Raynaud’s). A blood test showed an ANA of 1:640 speckled, a positive rheumatoid factor, and low iron. My WBC is always high too. I was started on Amlodipine (for Raynaud’s) and Nexium (for GERD) and an iron supplement.
I was referred to a rheumatologist who said I had a CTD, but he wasn’t sure which one. He just retired and I will be switching to a scleroderma specialist. After experiencing some shortness of breath I had a chest CT and PFT’s done which were normal (thank goodness) so I have no lung/heart involvement at this time. The warm weather has improved my Raynaud’s a lot and somehow the neuropathy has also improved (I’m not sure why) a lot over the last month or two. However, in the last 3 months my skin has been changing. My forehead often feels very tight and stiff and dry. When I move my face around the skin pulls at my temples and on my scalp and is uncomfortable when I open my mouth widely. It still looks normal though. I have some patches of thick, darker skin on the top of one foot and on both knees and over a few vertebrae on my lower back. My fingers are changing too — between the top knuckle and nail on each finger it is tight and shiny. My fingertips are sometimes very painful. I have days when my hands are stiff and difficult to move, but most of the time they function fine.
My question about Lyme Disease: I was bitten by a tick 10 years ago when I was in Denmark. It burrowed into the back of my knee and I didn’t remove it for about 2 days. I never got the bulls-eye rash and I wasn’t treated with antibiotics because I was traveling. I did get an ELISA and Western Blot done last year through my neurologist which was negative. However I know they can be inaccurate AND apparently they only test for the local organisms. I live in Canada and the type of infection carried by ticks here is different than those in Europe, so of course I would test negative regardless. I know people suggest Igenex for testing… do you know if they can test for all varieties of tick-borne infection including those most common in Europe? Also, any idea how expensive the test kits are?
Looking forward to talking with you guys and learning more!
torontogirl
@torontogirl wrote:
My question about Lyme Disease: I was bitten by a tick 10 years ago when I was in Denmark. It burrowed into the back of my knee and I didn’t remove it for about 2 days. I never got the bulls-eye rash and I wasn’t treated with antibiotics because I was traveling. I did get an ELISA and Western Blot done last year through my neurologist which was negative. However I know they can be inaccurate AND apparently they only test for the local organisms. I live in Canada and the type of infection carried by ticks here is different than those in Europe, so of course I would test negative regardless. I know people suggest Igenex for testing… do you know if they can test for all varieties of tick-borne infection including those most common in Europe? Also, any idea how expensive the test kits are?
Hi TorontoGirl,
I’m originally from Scarborough and my family all live in an around Toronto, so welcome to another Canuck – just sorry you had to seek us out!
Probably the best way to get a more accurate answer as to IGeneX testing for Euro strains is to give the lab a call and just ask to speak with Dr. Harris (lab owner). There are many in European countries who send their blood samples to IGeneX for testing as well as to a lab in Germany. You could also have them send you a testing kit during your call, which will be mailed to you and should include everything you need for the blood draw and requisite paperwork that will need to be filled in and signed by a doc. You can find the phone number for the lab here:
The basic western blot is test #s 188 and 189 and costs around $200. Although most people just start with this test, which comes in two parts (IgM and IgG), the lab may suggest further testing for Euro coinfections. Ticks are filthy critters and pass numerous associated tickborne infections. The sickest tend to be co-infected. Thing is, the basic western blot can sometimes provide enough evidence of exposure not to bother with coinfection testing, as an LLMD (Lyme Literate MD) would clinically assess for these infections and treat them anyway and it can save a good deal of money to just start with this test.
Interestingly, there are over 100 strains in the US and 300 worldwide and this may account (it is surmised) for why there are so many varying manifestations of chronic Lyme…i.e. you get SD and I get RA. Genetics probably also plays a part in this as well as pre-existing latent infections that may be reactivated by the immune-supression that is caused by Lyme. So, probably more correctly, Lyme disease would be more aptly described as “Lyme syndrome.”
Ultimately, past history of tick exposures is what is of primary import, because no test is 100% accurate for borreliosis. It is nice to get a positive confirmation, but a negative test shouldn’t rule it out, and it should be a clinical diagnosis made by a Lyme Literate MD who would perform a full work-up (physical, comprehensive lab assessment, patient history, living/visiting Lyme endemic regions, etc).
Sadly, Canada just sucks for LLMDs and many Canadians are having to travel to the US for appropriate treatment. So if you need a list of LLMDs for NY state, would be happy to send this to you.
The following site, CanLyme, is really informative, if you haven’t yet had a chance to browse it – they may also be able to let you know if they have any new LLMD listings for Canada:
Hope something above will help in your researches! Let us know how it goes…sounds like you’re right on top of investigating every avenue, which is fantastic! Being so pro-active bodes well for a swift turnaround and I do wish this for you!
Torontogirl,
I just wanted to welcome you here as Maz has already done a wonderful job with her very detailed post. Definitely pursue the Lyme testing but also know that many scleroderma patients do very well on the Minocycline and getting on that as soon as possible should be one of your immediate goals.
Hi ,
Welcome to Roadback.
I read that you take iron. If you decide to take minocycline for your condition, make sure you take your iron a few hours away from the minocyline because it binds to it and makes the minocycline uneffective.
I waited 6months or more to take an Igenex test for lyme because I thought it was impossible, however a few weeks ago I took an Igenex test and it came back cdc positive, I was so surprised. I made an appt. with a llmd in another state.I have just started treatment.Take care,
SheriThank you for your replies. I did have my appointment with the doctor this morning and it was quite interesting. He believes in a model of autoimmune disease that is very similar to what was proposed by Dr. Brown et al. He thinks many cases of scleroderma (and other autoimmune diseases) are caused by occult infections, food allergies, and heavy metal toxicity. He said that we could choose to do blood testing to try to identify the bacteria (a DNA test) if we wished to and also proposed IgG allergy testing and a heavy metal challenge test. I agreed to the initial 2 tests (for mycoplasma, etc. and for allergies) but I’m not sure how I feel about chelation. The doctor is also happy to sign off on Lyme testing if I wish.
The issue I’m having is that his personal protocol doesn’t include the use of antibiotics for AI diseases, at least not as a first line of attack. As I mentioned in my first post, he prefers the approach of using IV hydrogen peroxide and chelation because he says that they are less toxic. He says that hydrogen peroxide is a natural substance that binds to white blood cells and can penetrate deep into tissues where many of the occult infections lurk. It selectively kills off “bad cells” without ridding the body of the good bacteria in the gut as abx do. He says that the same result would be achieved through hydrogen peroxide as through antibiotics. If bacteria prove very hard to eradicate, then he would add abx through IV or by mouth.
Call me cynical but I’m worried that this is financially motivated. Antibiotics are relatively inexpensive and I would be paying the pharmacy rather than the prescribing doctor. However he has his own IV infusion centres where various treatments (including chelation and hydrogen peroxide) are administered to patients. They commit usually to 10 treatments initially and may end up doing 20 or more. This is a very costly venture. I’m not wealthy and this would be a big investment for me. Really, the financial piece is not what worries me the most — mostly I am worried about the safety and efficacy of his approach. I’d really love to hear from people with opinion on hydrogen peroxide and/or chelation instead of antibiotics. This doctor agrees that chronic low-grade infection is the culprit in many AI diseases, but thinks he has a better way to treat it than what is done typically with AP. However he is also pro-AP and told me to read this website and the Scammell book…
I’m confused.
Zoe
I had the same concern about an Osteopath who wanted to do Chelation, and charge $15,000 for the sessions. I highly question Chelation for SD, and am not aware of any science to support the efficacy of same. I would focus on diet and antibiotic protocol. Unrefined sugars and various fats are to be avoided. Stick to honey and butter was told to me by a scientist that is very well respected in research involving anti inflamnatory diets.
It is sad to say, but there are many doctors out there preying on the sick, and I question any doctor that uses chelation for SD. Where is his proof of treatment eficacy? Does he rely on theory that it will help or facts?
@torontogirl wrote:
Thank you for your replies. I did have my appointment with the doctor this morning and it was quite interesting. He believes in a model of autoimmune disease that is very similar to what was proposed by Dr. Brown et al. He thinks many cases of scleroderma (and other autoimmune diseases) are caused by occult infections, food allergies, and heavy metal toxicity. He said that we could choose to do blood testing to try to identify the bacteria (a DNA test) if we wished to and also proposed IgG allergy testing and a heavy metal challenge test. I agreed to the initial 2 tests (for mycoplasma, etc. and for allergies) but I’m not sure how I feel about chelation. The doctor is also happy to sign off on Lyme testing if I wish.
The issue I’m having is that his personal protocol doesn’t include the use of antibiotics for AI diseases, at least not as a first line of attack. As I mentioned in my first post, he prefers the approach of using IV hydrogen peroxide and chelation because he says that they are less toxic. He says that hydrogen peroxide is a natural substance that binds to white blood cells and can penetrate deep into tissues where many of the occult infections lurk. It selectively kills off “bad cells” without ridding the body of the good bacteria in the gut as abx do. He says that the same result would be achieved through hydrogen peroxide as through antibiotics. If bacteria prove very hard to eradicate, then he would add abx through IV or by mouth.
Call me cynical but I’m worried that this is financially motivated. Antibiotics are relatively inexpensive and I would be paying the pharmacy rather than the prescribing doctor. However he has his own IV infusion centres where various treatments (including chelation and hydrogen peroxide) are administered to patients. They commit usually to 10 treatments initially and may end up doing 20 or more. This is a very costly venture. I’m not wealthy and this would be a big investment for me. Really, the financial piece is not what worries me the most — mostly I am worried about the safety and efficacy of his approach. I’d really love to hear from people with opinion on hydrogen peroxide and/or chelation instead of antibiotics. This doctor agrees that chronic low-grade infection is the culprit in many AI diseases, but thinks he has a better way to treat it than what is done typically with AP. However he is also pro-AP and told me to read this website and the Scammell book…
I’m confused.
Zoe
@torontogirl wrote:
I’d really love to hear from people with opinion on hydrogen peroxide and/or chelation instead of antibiotics. This doctor agrees that chronic low-grade infection is the culprit in many AI diseases, but thinks he has a better way to treat it than what is done typically with AP. However he is also pro-AP and told me to read this website and the Scammell book…
Hi Zoe,
IMHO, whatever else you decide to do – adjunctive therapy-wise – I’d personally keep minocycline as a central staple to my treatment, if I had scleroderma. Minocycline is not only anti-bacterial, it has some incredible immune-modulating effects for scleroderma that are really critical for slowing and regressing the disease.
If Dr. H. is open to this, my fellow patient suggestion would be to state fairly strongly that you would like to be on minocycline and, at least to begin with, focus on diet and possibly narrowing down infectious offenders.
I haven’t done hydrogen peroxide infusions or chelation, so cannot share an opinion on their efficacy, but if there are financial constraints, then I would not be pushed to try less conventional therapy until I was able to afford it and had had time to research it.
Minocycline is an antibiotic that is prescribed to pimply teens every day and is relatively benign as compared with the heavier-hitters usually used for SD. There is no doubt that sometimes supportive adjuncts may be needed in some cases of SD, even early cases, but I wouldn’t rely on methods that may only be supportive at best. There are many here who have used minocycline only and done well turning their SD around. Others need to look at combination abx therapy if Lyme and coinfections are a complicating factor. Others still need to correct their diets, as gluten intolerance, in particular, can be an issue for SDers.
I can appreciate the rationale behind the use of hydrogen peroxide treatments for enabling greater tissue perfusion and for also its anti-bacterial effects. I’m not sure I’m convinced that it’s safer than minocycline, however. For some here heavy metal toxicity may actually put a heavier burden on their immune system, but this would be something I’d be checking into later if my progress was slow on mino alone. SD can be a freight train if not stopped good and early
I spoke to another Canadian who had booked to see Dr. H for severe, longstanding RA…in the end, she cancelled as she was not happy about spending that kind of money on hydrogen peroxide infusions and she opted instead to fly to Iowa to see Dr. S. to begin her AP with IV clindamycin. Dr. S. is then willing to consult with local GPs on how to administer oral minocycline. In this lady’s case, she felt it wiser to put her money down to see an experienced AP doc who followed Dr.Brown’s protocols than to try therapies that may or may not help her very severe disease.
Just my two cents, but even if investigating the potential of Lyme disease, I agree wholeheartedly with Parisa that it is not worth waiting for tests, but to get on the Harvard Protocol (100mg minocycline twice daily) for SD asap.
Hi Zoe;
I agree with Maz.When I was young,stupid and at the beginning of the disease I went to an ND in Burlington who advised the same thing as your doctor.This did not help and left me pretty broke.When I finally found my new doctor in Ottawa she only did chelation with suppositories,can’t remember the name right now but will look it up.She put me on AP right away ,did a food sensitivity test,gave me a diet and the rest is history.She is the one that finally figured out I have lyme but only 2 years ago.If I was in your shoes I would change doctors.I get a weekly news letter from Dr.Dean and she has some very good advice.
Today’s Wellness Tip From the Future…
http://drcarolyndean.com/tips?e=0182-1&p=3478Aloha,
Here’s a common scenario that I hear from people who write to me
for a consultation or advice.“I was recently told by my doctor that my MRI shows I’m having TIAs
(transient ischemic attacks-mini strokes). My total cholesterol is
borderline at 211 but my doctor wants to put me on a statin drug
and a blood thinner. I already take blood pressure meds, thyroid
and lasix.”Lasix is a diuretic that removes fluids from the body in order to
lower blood pressure. Commonsense tells me that less water in the
body means your blood can become “thicker,” which is a
predisposition for stroke. When you take medication you are also
setting yourself up for “thicker” blood. The body treats synthetic
drugs as foreign substances triggering mechanisms to neutralize and
eliminate the offender. That reaction is called inflammation, which
is another predisposition for stroke.What do I recommend to prevent TIAs and stroke? You may be
surprised to hear that I start with magnesium. Why? Because
magnesium will keep your blood pressure normal so you don’t end up
on diuretics and blood pressure drugs; it will keep your
cholesterol balanced so you don’t end up on statin drugs; and it
will also naturally keep your blood from thickening.Even in the extreme cases of stroke itself research shows that
magnesium sulfate reduces the size of a stroke in animal studies It
has numerous beneficial neuroprotective and vascular effects. It is
effective in treating in humans who have altered cerebral blood
flow. And if administered early after stroke onset (within 3 hours)
it prevents further damage.What else can you do besides take magnesium? Eat well, exercise, be
happy and detoxify. The nutrients for preventing stroke include
bioflavins from organic fruit; essential fatty acids from wild
salmon and coconut oil; and trace minerals from organic vegetables.
I always encourage people to start with a good diet before buying
expensive supplements.My favorite methods of detoxification include magnesium and coconut
oil. Everything is detailed under resources on my website and in
past blogs but here’s an overview for new readers or for people who
need to hear it over and over again before they get the message.Magnesium oil and magnesium flakes: Rub the oil on your skin and
use magnesium flakes in baths and footbaths.
http://www.magneticclay.com/123.htmlMagnetic clay: Use together with magnesium flakes. Blend
MINOCINMAN wrote:I had the same concern about an Osteopath who wanted to do Chelation, and charge $15,000 for the sessions. I highly question Chelation for SD, and am not aware of any science to support the efficacy of same. I would focus on diet and antibiotic protocol. Unrefined sugars and various fats are to be avoided. Stick to honey and butter was told to me by a scientist that is very well respected in research involving anti inflamnatory diets.It is sad to say, but there are many doctors out there preying on the sick, and I question any doctor that uses chelation for SD. Where is his proof of treatment eficacy? Does he rely on theory that it will help or facts?
Thanks for your reply Minocinman!
I believe that he largely bases his own protocol (H2O2 and chelation) on theory and personal experiences with treatment. He’s been at this for a long time (30+ years using these therapies). He believes his success rate is higher than using AP for AI diseases. I don’t believe he’s published any findings, but he is currently running a study for the use of chelation in heart disease patients.
I agree with focusing on diet. Many people I’ve spoken to avoid gluten, dairy, and sugar as part of an anti-inflammatory diet. I would certainly be willing to try that for a period of time (a month? a year?) and see whether it makes a difference. The problem is that it’s so hard to judge whether treatment is actually working in SD. My symptoms come and go and change frequently. SD also waxes and wanes on its own. Objective measures of treatment success are hard to come by.
Thanks again for your input.
torontogirl
Hi Maz,
Thanks very much for your reply! I did food allergy testing, the RA DNA panel (for mycoplasma, etc.), and some regular testing like ANA, rheumatoid factor, CBC, iron, vitamin D status, etc. I will go back to get results and I figure that I will ask in advance if Dr. H is willing to prescribe the Clindamycin and Minocin immediately. If not, I still want my test results, but will be looking for another doctor willing to prescribe AP. The problem is that the only other AP doctor in Toronto (Dr. J.) also seems to follow a H2O2/chelation protocol for most ailments. He has many articles on his website about his treatments. Also, the initial consultation and work-up is $1100 before any treatment is recommended or prescribed. This may not sound crazy to Americans, but we have universal health care so it’s extremely rare to have to pay for any medical service here. Suddenly I find myself wanting some non-conventional doctor to see me and I’m throwing around thousands of dollars!
I also have an appointment at the Scleroderma Clinic here in a couple weeks, which will be my first time seeing a specialist in the disease rather just a general rheumatologist. I know he will not be open to AP, but I want to hear his explanation of why he believes it does not work. I’m not the least bit confrontational or defensive about this issue — I just want to hear all the facts as various doctors see them so I can make a good assessment on my own. Fortunately I also have a husband who is a scientist and very willing to come along to appointments and ask detailed questions about the chemistry and physiology at issue. I’m willing to try conventional medications (Cellcept, etc.) as well. Anything that has a reasonable chance of slowing down this disease.
Thanks!
[/quote]
Hi Zoe,
IMHO, whatever else you decide to do – adjunctive therapy-wise – I’d personally keep minocycline as a central staple to my treatment, if I had scleroderma. Minocycline is not only anti-bacterial, it has some incredible immune-modulating effects for scleroderma that are really critical for slowing and regressing the disease.
If Dr. H. is open to this, my fellow patient suggestion would be to state fairly strongly that you would like to be on minocycline and, at least to begin with, focus on diet and possibly narrowing down infectious offenders.
I haven’t done hydrogen peroxide infusions or chelation, so cannot share an opinion on their efficacy, but if there are financial constraints, then I would not be pushed to try less conventional therapy until I was able to afford it and had had time to research it.
Minocycline is an antibiotic that is prescribed to pimply teens every day and is relatively benign as compared with the heavier-hitters usually used for SD. There is no doubt that sometimes supportive adjuncts may be needed in some cases of SD, even early cases, but I wouldn’t rely on methods that may only be supportive at best. There are many here who have used minocycline only and done well turning their SD around. Others need to look at combination abx therapy if Lyme and coinfections are a complicating factor. Others still need to correct their diets, as gluten intolerance, in particular, can be an issue for SDers.
I can appreciate the rationale behind the use of hydrogen peroxide treatments for enabling greater tissue perfusion and for also its anti-bacterial effects. I’m not sure I’m convinced that it’s safer than minocycline, however. For some here heavy metal toxicity may actually put a heavier burden on their immune system, but this would be something I’d be checking into later if my progress was slow on mino alone. SD can be a freight train if not stopped good and early
I spoke to another Canadian who had booked to see Dr. H for severe, longstanding RA…in the end, she cancelled as she was not happy about spending that kind of money on hydrogen peroxide infusions and she opted instead to fly to Iowa to see Dr. S. to begin her AP with IV clindamycin. Dr. S. is then willing to consult with local GPs on how to administer oral minocycline. In this lady’s case, she felt it wiser to put her money down to see an experienced AP doc who followed Dr.Brown’s protocols than to try therapies that may or may not help her very severe disease.
Just my two cents, but even if investigating the potential of Lyme disease, I agree wholeheartedly with Parisa that it is not worth waiting for tests, but to get on the Harvard Protocol (100mg minocycline twice daily) for SD asap.[/quote]
@Valsmum wrote:
Hi ,
Welcome to Roadback.
I read that you take iron. If you decide to take minocycline for your condition, make sure you take your iron a few hours away from the minocyline because it binds to it and makes the minocycline uneffective.
I waited 6months or more to take an Igenex test for lyme because I thought it was impossible, however a few weeks ago I took an Igenex test and it came back cdc positive, I was so surprised. I made an appt. with a llmd in another state.I have just started treatment.Take care,
SheriThank you Sheri!
Yes, I do take iron so I will watch out for that interaction. It’s good you told me as I often take all my pills together in the morning. Good luck with your journey!
Zoe
Zoe – you also need to have that 2 hour window for all minerals as they bind to the mino (and all tetracycline drugs). Incidentally, you might also want to research N-AC (N-Acetyl Cysteine). It has many properties, including increasing glutathione, it’s used in severe lung fibrosis (by hospitals), it is an anti-oxidant and is also as a heavy metal chelator. If chelation is something you want to try, this is an inexpensive way to go about this. Incidentally, it is an ingeral part of the Wheldon protocol for MS. Here is a link http://www.davidwheldon.co.uk/ms-treatment.html – a very interesting read overall, N-AC is covered in item 4. Lynnie
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)Lynnie, thanks! I actually already take NAC. I started seeing a naturopath a few months ago and that was the first thing she recommended. I read some studies and was convinced it was a good idea so I take it twice a day now. She also mentioned that some people suggest using a nebulizer to inhale glutathione directly, but I haven’t explored that idea yet.
Zoe
HI Torontogirl,
So good you’ve found this site! My daughter also lives in Toronto and is in remission from scleroderma and RA. The scleroderma was only hardened , shiny skin patches on her stomach and one upper arm, which really never progressed, so she didn’t take any meds. Some years later when she came down with RA it was sudden and very severe.We knew about the Road Back as a result of research re. the scleroderma and she was lucky enough to have a rheumy at the McDonald Centre for Arthritis and Autoimmune Disease, connected to Mount Sinai Hospital, who was willing to let her try AP for the RA. Perhaps because she started AP early on, results were quick and effective! We were surprised to see the SD lesions shrink in size after about a year of AP for her RA.
I think I know the DR. you are referring to, the hydrogen peroxide etc. Although my daughter ended up not contacting him, our extensive research led us to the same concern you have – that financial gain seemed to be a big factor. This is just our opinion, not substantiated of course. But I would echo those who suggest that Minocin could be really helpful.
My daughter is now very well and I wish you the same good results.
marg
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