Flare up – what to do

[sierrra]

Watch the gluten and dairy!

S.

[scboyle]

Hi Maz,

My Rheumatologist has let me start the AP protocol for my recently diagnosed psoriatic arthritis, which is great, but she doesn't have any experience using it. We have started Minocyline M/W/F. Things have gotten worse, and I'm hoping it's just a Herx reaction, and not disease progression. I see that you recommended a Rheumatologist in Guilford who has experience in AP to someone else in the UK. I was wondering if you could pass me on the details as I would be interested in arranging an appointment with him.

Yours

Suzanne

[Maz]

[user=1533]scboyle[/user] wrote:

I see that you recommended a Rheumatologist in Guilford who has experience in AP to someone else in the UK. I was wondering if you could pass me on the details as I would be interested in arranging an appointment with him.

Hi Suzanne,

I'd be happy to send you this physician's contact info. I'll send you a private message (PM) in a moment and to retrieve it, just look to the top right of this page where it will say, “You have 1 new message,” and click there.

Welcome to the Road Back Support Forum! Hotspur (Simon) has just joined us and also has psoriatic arthritis and will be visiting Dr H in Guildford soon, too, so you might like to compare notes with him as you get started on AP.

All the best to you!

Peace, Maz

[judyR]

HI,WOULD BE MOST GRATEFUL IF YOU COULD POST ME THE INFORMATION REGARDING THE UK DOC .tHANKS jUDY

[Maz]

[user=1834]judyR[/user] wrote:

HI,WOULD BE MOST GRATEFUL IF YOU COULD POST ME THE INFORMATION REGARDING THE UK DOC .tHANKS jUDY

Hi Judy,

Have seen your email to the apdoctors@roadback.org account and will send you the UK list from there, so Diana, our first responder won't have to double-up. 🙂

Peace, Maz

[judyR]

sorry still can't find it! Judy

[Maz]

Judy, should be in your inbox now. 🙂 See top right of this page.

Peace, Maz

[judyR]

yes i have it !! feel optimistic already.thank you, Judy

[Maz]

[user=1834]judyR[/user] wrote:

yes i have it !! feel optimistic already.thank you, Judy

A pleasure, Judy….all the best to you and please come back and let us know how you get on! 🙂 Sorry for the mix-up before..I think I might have confused you with a different Judy.

Peace, Maz

[natashaw]

Hi Claretta and all the other great folk on this thread – i'm new here and am just about to start AP.   Good to hear your flare up is slowly receeding, Claretta.. well done you for feeding your baba for 6 months inspite of the pain :).  I too am finding diet really helpful, cutting out sugar, grains, etc and eating lots of greens.  I don't know if you have this but i'm finding it hard with children trying to do one diet for us and feed the family too.. and getting enough calories to sustain myself too :X

 I didn't know about this site and about the legendary Dr H but basically got a Dr E -an allergy specialist – also in Surrey to prescribe Minocin for me at the dosage MWF  i've given him!  he is interesed to hear what progress if any i'll make. 

Unfortunately Minocin MR is not available in the UK anymore as you say, I wonder how you get it from Italy and if anyone has any suggestions for the UK folk.  I've replied to a thread about  Sebomin or Aknemin from Simon/Katie.  I've got to get back to Dr E to say what i want to do, to bring it over from Canada (if i can) or Italy or try a UK version..

What does anyone think?

thanks in advance

natasha

[Author]

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