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The last few years have been a bit of a ride for me and along my way I found your website, and your members. I had questions and you all gave very insightful answers. I have grown a lot since I first came here and when I first logged on I was sick and scared out of my skull. I had no idea what was wrong with me and I was in a lot of pain on a day to day basis with very little relief other than a small remission here and a tinier one there. I had been on a diet for 7-8 months before and had found a tiny bit of success with my shoulders and wrists but my knees ankles and back were not making much progress. I wanted a cane but was to masculine in my own brain to even think about it. I didn’t take pain killers and I hardly whined but I was very worried. It changed my personality. before I was bold and wreckless. Stupid and the rest. Nothing could stop me, I was young. Now I had a new respect for the world. I was sick, and it wasn’t going away. It was getting worse. I was forced to quit my job in construction and I went to school. I aspired to be a police officer. I was going to get well again. I had a feeling.
The doctors had no idea what was wrong with me. Before the arthritis I was diagnosed with H-pylori by a newly acquired GP. I forget her name but she wasn`t very proffessional. sign the script, get out of my face style. I was sick for a few months. I swallowed her pills and slowly recovered from Acid reflux from hell, vomiting and “other symptoms” you could imagine that come from having h pylori. Anyways the whole situation made me afraid of this woman so I left and never went back. Next I got in with my friends doctor who was also a good acquaintence of mine and was very proffessional. Also very thankful later on that he had quite the open mind and didnt mind taking my advice should I present it with knowledge and factual understanding!! I didnt know any of this yet though because I didnt think I was sick, even though I was…
Pretty soon after the H-pylori episode I began feeling very tired all the time. my legs felt heavy if I stood in one place my lymph nodes were constantly swollen my neck hurt and I would get lightheaded, cold feet or burning feet, chest pains, anxiety, eye twitching… endless list of odd things I have never experienced. My family said I was a hypochondriac, I went to the doctor. “Nothing wrong buddy, maybe its all in your head. you need to relax?? are you stressed?” Of course I’m stressed. I don’t feel good!
anyways this feeling went on for 6-8 months and I eventually just shutup and lived with it. at least the anxiety and chest pains went away. the rest just remained. tired, sore leg muscles,sore swollen neck and burning cold feet.One day I was at a hospital charity doing volunteer work with my ex girlfriend and my knee started to hurt. Odd I thought. It was really sore but I hadn’t done anything to hurt it. In fact I was sitting when It started to hurt. The pain didn’t go away and it didn’t really get better. within’ two weeks both knees hurt and so did my right foot. all the same. they didn’t swell but they would get red and alternate between feeling really hot and really cold. pretty soon it was in my back and my shoulders and my neck. one morning I woke up at the cottage and my ex had to drive me home and get me to the chiropractors I was more or less a walking cripple. This wasn’t fun and we were both worried now. Then I was suddenly better??? nope, back to pain again. this remission hit cycle went on for months. Then I started going online, all my doctor would give me is pain killers but I never took them. he did blood tests (alll the usual’s I’m not going through the list ) and nothing was a hit other than in my physical he found cysts on my thyroid. (That was the only thing I’ve ever been truly diagnosed with other than a wheat allergy in which comes a bit later) They scanned my thyroid. checked it out and found that the cysts had no significance. they meant nothing even though I had been underweight my whole life. 6’6″ and 140 pounds. now 135 and regaining since I lost a lot of weight with h pylori (I looked like a cancer patient with hair). Anywho, nobody was helping me so I decided to help myself. On to the Internet!!!!
WOW! so much info on arthritis! MY IMMUNE SYSTEM CAN GIVE ME ARTHRITIS?!?! Who knew? I didn’t until now. Tons of info… Food Allergies? Toxins? Hadn’t read anything on bacteria yet. never saw the link! Food allergies consumed my brain. What am I eating? how do I figure out whats bad for me if they can take an apparent max of a week to cause symptoms! Yeast? Gluten? Dairy? Leaky gut? OH man I eat a lot of unhealthy foods. they are making me sick! this was obvious. Out with the yeast and gluten. This was my goal and I was off to the bookstore. they had the recipies. I love to eat. I’ve always eaten huge meals 5-6 times a day. I was always skinny… Malnourished from food allergies… I went on a yeast free diet. meat, veggies sparse natural gr
ains like quinoa and brown rice. spices and natural oils. All good grub. got some energy back. a bit less pain in my shoulders elbows and back. progress! then I went for allergy testing from my doctor at my request.I got a positive for wheat allergies, and shellfish, dust and grass.
The diet did my upper body a lot of good but my knees and ankles were falling apart. I wasnt taking pain killers but I was dousing my legs in pain spray which was enough for me to get around with an almost unnoticable limp. A family trait of being tough. Bentley’s never let a problem show physically. especially when your a carpenter and you want to be a firefighter or police officer and follow in your fathers footsteps. (My dad is the Deputy Fire Chief for the City of Vaughan in Ontario, Canada.)So I stayed on the diet but it wasn’t enough. My treatment plan had halted half way. and now I had this prickling sensation in my calf muscles. It came and went on and off and later on you will learn it was the last symptom I would ever have. My legs were still a mess and I was starting school in a few months. my upper Body was in great shape again from the diet but I had phys ed courses in police training and was afraid I couldn’t do the running aspect which was usually a strong skill I had. With my height and low weight I was really freaking fast when I was healthy. Back on the web…
Found a naturopath, And for her privacy I will refer to her has Dr S.
Dr. S gave me a Full Allergy panel but because I had been on a paleo diet for so long Nothing came back positive, not even wheat. It had been so long since I had eaten the stuff. Gluten was negative as well. I was blindly told that I didnt have food allergies and I was suggested to wisely pay up for toxic metal tests. I took the tests and was shown that I had lead poisoning. well I did work in a metal shop for a year. I left because I was coughing up black soot every day from welding, and I was a pipe fitting apprentice once as well and used to eat my lunch with lead pipe dope (lead paste used to seal steel fittings) all over my hands. I really couldnHi Gord,
What lovely news!!!! Yeepee!!! 😀 😛 🙂
@gordbentley wrote:
Well Maz, and anyone else who reads this. Its over.
No more fatigue
No more odd symptoms,
No thyroid cysts.
No prickly leg muscles
NO ARTHRITIS!!!I’m fine now. I stopped taking my minocycline around the middle of last winter and I haven’t had to go back on it since. I have a prescription ready should I ever need more and I live my life the way any person would if they were not sick.
I believe that Low dose minocycline treatment combined with diet and stress management is essential towards controlling the inflammation and resetting your bodies immune system to behave the way it should.
You did it!!!! How very sweet to come back to inspire all the rest of us. Thank you.
Gord, you DO know that you have a great talent. Your post reads like a great suspense story. Even though I read all your posts in the past, I was glued to the screen to the last line.
Thank you. All success to you, KrysHey Krys! had to come back and I’m happy someone reads my posts 😛 I always think about this place. Its been a huge part of my life the last couple of years, I would have been lost at sea without all of you. When you need information, you go to the RBF. When you need to answer a question you have just figured out, you share it with the RBF. When you need a shoulder, you definitely go to the RBF. were the only ones who know what were going through so we feed off of each other. when we have doubt. there are the success stories. That being said I need to give mine. Even if it comes back I know what to do and I know I will win the fight. Others have won the fight. so have I and so will many others. everybody has a different path but were all doing one thing right and that is usually low dose minocycline. Our bodies are stressed from the western lifestyle. bacteria is given the opportunity to over grow, we become allergic in a sense to everything. we’ve given ourselves too much bad. we need to cut out the bad and minocycline is essential to lower the bad bacteria load to reduce our sensitivities and allow positive good bacteria to flourish and nourish our immune health. This is our answer to peoples problems which is a LOT different then the conventional approach of killing the immune system and keeping the patient numb and slightly alive. It makes no sense!!! which is why in part why I believed in the therapy from the get go. It made sense!! and look at the results. People are getting better when they stick to the guidelines. It isn’t a quick fix for most and it is probably the tougher option to tackle, but for the most part it is the right option and there is an end of the road. As for my writing skills and lack of grammar, I have always been told I’m a good writer (grammar aside) so thanks for the compliment Krys!! Maybe one day I’ll write a book about my story. and if it makes money I will be damn sure to donate a wack of it to this place. RBF deserves the credit!!! I got some time to kill so Im probably gunna hang around here for a few weeks and boost peoples spirits. The boost in spirit was a really great part of my getting better 🙂 talk to you later krys
Hello Gord,
Yep, I read every word, and must tell you it was all powerful!
Can’t tell you how much I admire and respect your being open and sharing your story. Hope others will read it and benefit from what you’ve had to share. (I’ve been on a similarly challenging journey, so understand your emotions.)
Road Back Foundation was a haven for me, after finding Dr. Brown’s work in a book — just hours after I received a call from my doctor telling me the results of a lab test (erroneously said RA, but a blessing, or I would not have called the book store and asked if they had a good book on RA… yes they did, but only one left). After reading the book, I wrote RBF office (not on internet then). After reading the book in about 1-1/2 days, I knew I would not be going the route of rheumatology recommended drugs.
AP worked beautifully for me, too. However, there is usually MUCH more that we patients need to know and learn about our own unique bodies and how they function. I believe this because by the time most people find AP, there are a lot of other things we need to know and “tweak” back to better health. It was true for me, but thankfully answers are still being found.Gord, something recently found is on my mind. Have you had any dental surgery or root canals, or many fillings, or wisdom teeth extractions? I’ve found something “new to me” that I want to share regarding dental — plan to post info in a new thread. I keep thinking I’ve read it all by now… but gratefully, I haven’t and keep finding amazing things constantly (thanks to the Powers that be!)
About those calves, if this recurs, you might want to do a search in General Discussion search window, and read how magnesium deficiency (magnesium chloride is a favorite help) can occur in conjunction with stress and illness, and even cause restless leg. Also, if we’ve been overly acidic for a while, coffee can further affect our magnesium… which we can help and still be able to enjoy our coffee. [You can see I’m goading you on… to find even more answers… so nothing hopefully will overtake all your great progress and enjoying life to the fullest. Just trying hopefully to put more “arrows in your quiver”!
Forgive my rambling… I just admire you SO much and wish for you and your new “love”, the best of everything!!!
AF
Hello Gord….
It is stories like your that boost our spirits! Thank you so much for taking the time to write and tell us your story, you do not know how much beginners like myself loves to hear that there is hope and that this therapy does work.
Congratulations to you for completing your Road Back to good health, I wish you the very best in your future! 😉
Take Care!
Jo AnnDiagnosed with RA Jan 2012
Oct 2015- RF has dropped to 19!!! Isn't that Great! ?! I'm feeling wonderful! I'm still taking Mino 2 x daily...if I don't forget!
Oct 2014 RF has dropped to 23.1!! Taking Mino 100mg 2 x daily. No Pains & doing great!!
Oct 2013-RF has dropped to 40.9!!! Feeling Wonderful!!
7-17-2013 I'm going Great!! Still taking mino 100mg twice daily. No pains or Complaints!
5-9-2013 RA Dr said I was doing good, I could stop taking prednisone since I dropped to 1/2 mg...so willHey Gord – what a great story and a great read! So happy for you on every front. Thank you so much for taking the time to come back and post such a heartfelt, open and uplifting story!
Now, you can guess what I am about to ask you……can we please have the story for our testimonials on the main site? That way it will have longevity, be up there for all newcomers to read and not slip away.
Please do stay around here for a while……your presence around here brings out the sun! 😀 😀 😀
Be well! Lynnie
Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)Gord words cant express how much your note means to me & I am sure many others. You took the reins & figured out what worked for you along with the RBF and hung in there. Attitude is a help, to not give up. AP works for RA many studies I am not sure why more folks dont give it a good run at least.
Best for your continued health –
Jill SD, Lyme & Bart
I wish you all the happiness a person can have, I am so happy for you, you are an inspireation for all of us. Keep us in your prayers. Iam sure you’ll never come back here again. Have a happy life
gerry
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