Home Forums Personal History and Progress Threads Diffuse Systemic scleroderma with severe pulmonary fibrosis

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    Diffuse Systemic scleroderma with severe pulmonary fibrosis

    April 2008

    My name is Kristine. I use my nickname Kramstine. Kram means hug in Danish which is the language we speak in my country Denmark. I am 31 years old. Here is my history before AP:


    In the autumn 2001 I was diagnosed with Diffuse Systemic Scleroderma[/b]. My symptoms started the same year in spring. First I felt heartburn for no good reason and started waking up with stiff, swollen hands/fingers in the morning (this continued most of the day, and I also developed raynauds syndrome[/b]). This was what made me go to the doctor at first. He didn?t have much to say, but when all my joints (knees, wrists, elboes?) started hurting and I couldn?t walk the stairs without pain, I had another doctor check me. He did some blood tests that showed I had arthritis. From there till the final conclusion, that my disease is scleroderma, there were a lot of testing and a lot of waiting. In the meanwhile I had had a cough that wouldn?t go away and kept me up many nights and gave me difficulties when biking or running or other physical activity. I didn


    April 25-30 ? 2008


    First IV Clindamycin treatment:

    900 mg x 2 daily.

    I felt a lot of nausea and dizziness, I felt a metallic taste in my mouth and got very tired during and after every treatment. This eased off later on. I also had a feeling of being even more out of breath. But on the 4th day I experienced a short feeling of ?normality? in my knees. On the 5th day I had a short feeling of ?softness? in my lungs.

    Now I

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