Clindomycin orally???

[Luck20]

Has anyone used clindomycin orally? I read somewhere it was hard on the digestive system. Is that true? I’d love to do it as an IV but my veins aren’t cooperating and thats just too stressful of an idea for me right now….maybe later. I can’t imagine getting a pic line either. After a couple surgeries my sclero symptoms got bad and I refuse to do it. I think the surgeries pushed me over the edge.

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

[Lynne G.SD]

I did IV and then oral.The latter worked just as well for me.AT 900 or 1200mg it gave a very metalic taste in my mouth and I made sure to take it with food to prevent tummy aches.

[Luck20]

Thanks so much for ths reply Lynne and the dosage. I think I’ll talk to my dr about it. Try to find a way to work it in the rotation. I only did 4 iv’s of it, but it totally stopped and started
to reverse the progression in my feet. I really want to try it again.

How often do you take it?

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

[mikana]

My husband still takes it after being diagnosed in 2008 with being told he only had 5 years and all symptoms have disappeared except for his hands and his doctors consider him “cured” and call him a miracle but we know that without AP he’d be still so sick

[Luck20]

Thanks for the positive story Mikana. It really helps to hear those! What did your husband have?

Originally +Ana May 2018 (now negative Jan 2019), scleroderma or uctd, Morphea (now mostly gone!), Myositis ( better now) Probable Lyme w/coinfections, had Bartonella marks that disappeared,
Mild reflux, mostly gone,mild ild, skin hardening (continued softening and some parts normal again) Impaired liver function, now normal after 1 year and CK, LDH all normal again, 14 mo after starting ap.

Minocin m-f 2x, antibiotic rotation, ldn 4.5, cellcept 3000, probiotics, Monolaurens, Olive leaf extract, fish

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