Borrelia miyamotoi – hardly a new tickborne disease!

[Maz]

Borrelia miyamotoi, the Japanese strain of borreliosis, is hardly a new strain and had been reported here in the US by LLMDs (Lyme Literate MDs) for some time now….but Yale is only just reporting cases as a “new” discovery.

Sadly, this may be one reason amongst a good number of other reasons why many folks are testing negative on standard testing!

http://lymedisease.org/news/lyme_disease_views/miyamotoi.html

This strain of borreliosis was identified in Japan in the 1990s, was reported later in Russia and now finally recognized here by mainstream medicine in the US. The take-away message is that no man is an island and for doctors to say that Lyme or other tickborne diseases don’t exist across the US is a fallacy. If ticks carrying infections can travel from Japan to Russia to New Jersey on the backs of birds or other warm-blooded mammals, then they can travel across US state lines. Further, to test negative on standard Lyme tests cannot preclude tick-borne illness.

http://newyork.cbslocal.com/2013/01/25/n-j-woman-becomes-first-in-u-s-diagnosed-with-new-deer-tick-disease/

[mary77]

Thanks for sharing this “new” discovery…it highlights the complexity and over-all misunderstanding of Lyme disease!

[Anonymous]

Hey all,

Been referring folks here for a good while, but never “joined”. Researching brought me here tonight, one day before I’ll be offline for several weeks, so if I figure out how to post and navigate the board we may have to re-train me when I eventually get back online. HA!

Noted this post on Borrelia miyamotoi and thought I’d add this information/link for those interested. It lists a number of tick borne diseases so just click on the B. miyamotoi link to see more details.

Hope it helps! Keep up the good work coming from this forum and the Road Back Foundation.

https://sites.google.com/site/marylandlyme/tick-borne-diseases

LB

[Maz]

@Lucy Barnes wrote:

Hey all,

Been referring folks here for a good while, but never “joined”. Researching brought me here tonight, one day before I’ll be offline for several weeks, so if I figure out how to post and navigate the board we may have to re-train me when I eventually get back online. HA!

Noted this post on Borrelia miyamotoi and thought I’d add this information/link for those interested. It lists a number of tick borne diseases so just click on the B. miyamotoi link to see more details.

Hope it helps! Keep up the good work coming from this forum and the Road Back Foundation.

https://sites.google.com/site/marylandlyme/tick-borne-diseases

LB

Hi Lucy,

It’s nice to meet you and glad you have posted to share your site with us. I found the Maryland Lyme site a few years ago and often pop back to check for updates. There is a lot of really good info there and I enjoyed reading through the article you’ve created on B. miyamotoi – thanks! 🙂

To learn of such borrelial strains that are not captured on standard testing really justifies what LLMDs have been saying all along and casts a shameful light on those IDSA docs who repeated bleet on that,“…some folks have never shown any evidence of ever having had Lyme.” How can they when there is no accurate testing method available to look for some of these pathogenic strains? Now that they are being documented as being here in the US, the pressure and onus must be on the IDSA for change. While public pressure is critical – peer-reviewed research is what must ultimately force these guys to retract these kinds of statements.

The research of Krause, etal, at Yale, is important especially for rheumatic patients who have suppressed immune systems, either from conventionally-prescribed medications, being asplenic, and from being infected by tickborne diseases (Lyme, babs, mycoplasma, bartonella, etc) that take out immunity. Krause produced some interesting research in 2008 that tied babesiosis to lymphoma in immune-suppressed patients. Interesting that one of the black box warnings on the newer biologic drugs (some of Krause’s retrospective study patients had been on rituximab) is the risk for lymphoma. 😯

http://www.ncbi.nlm.nih.gov/pubmed?term=krause%20babesiosis%20lymphoma

http://www.drugs.com/pro/enbrel.html

http://www.drugs.com/pro/humira.html

I can’t help but wonder that this connection has got to be highly significant for rheumatic patients.

I’ll continue to check back on your site and have enjoyed all the info there greatly. 🙂

[Anonymous]

Maz,

So nice to meet you! Thanks for being a volunteer here and educating folks who are in need. It is truly appreciated. I’ll be on the road- not “back”- but roaming for a bit, so will catch up with you once I am back online. To you and all here reading… Happy Groundhog Day!

LB

[Joanne60]

Thanks Lucy – Interesting website I will share info on Facebook.

Hi Maz just popping in for a rare visit – still often post on RA Facebook pages although I did get kicked off two Lol!
Dr Alan MacDonald sometimes posts interesting things on LNE forum and this is one he posted on Miyamotoi

Band p41 [ 41 kd] of the WB has long been touted as “irrelevant” to clinical diagnosis
inthe Borreliois clinical lab diagnostic armamentarium because of “cross reactions”
with’ other spirochetal flagellae.

Here, with B. miyamotoi, the H9724 Murine MAB of Alan Barbour MD , developed by him at
the Rocky Mtn Lab in the 1980’s
comes into sharp clinical relevance
because of B. miyamotoi.
B. miyamotoi, which is co-transmitted to humans with Borrelia burgdorferi Sensu Stricto in
Russia and now in the USA
Will produce a WB band 41kd positive signal,
When all other B31 manufactured Reagent WB bands are negative.

How many Babies have been discarded with the bathwater
because the CDC has “TAUGHT” us to ignore band 41kd reactivity as being
meaningless on the Western Blot?

It is time to Move band 41kd immunoreactivity from the “meaningless” to the
“meaningful” column.

Alan B. MacDonald MD
Jan29,2013

http://www.lymeneteurope.org/forum/viewtopic.php?f=5&t=4482

There are some nasty trolls on LNE but they can be ignored and serve to get even more detailed responses from Dr MacDonald all very interesting.

[Maz]

Joann, so nice of you to stop by and many thanks for sharing this great post from Dr. MdD. I’ve spoken to a number of folks who only showed up positive on Band 41 and this new insight from “the man” of borrelia research is a golden nugget. 🙂

[Author]

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