AP 8 months = Feeling absolutely bloody awesome!!!

[Pauyen]

Before I even heard of AP I had pondered doing away with myself if the rest of my life was going to be 24 hour RA pain and immobility…. Those thoughts are long gone!!!

Thanks so much to God for this lesson and healing. Thanks to the RBF site and it’s valuable volunteers & members (especially Lynnie and Maz in my case)… and thanks to Dr D & Naturopath LW of Melbourne – who both came so highly recommended from here… well deserved.

– Change in diet improved things.

– 5 months of AP saw great improvement… then seemed to plateau a little… swelling on the tops of the knees and a long term pain in my back persisted.

– Saw the Melbourne team = Told the knee swelling and pain in the back (right kidney area) would go once I get off the Plaquenil (Apparently it affects kidney function).

– Got off the Plaquenil = Back pain and swelling subsided in a few weeks = Feeling great

– Now back at work, working long hours doing hard physical work (no problems )

– So glad to have my life back!

Thanks again!

[lynnie_sydney]

Wow Paul – what “absolutely bloody awesome” news! 😀 😀 😀 Thanks so much for posting it.
The road is not always that smooth this early, so you are doubly blessed. Hope things just keep on getting better and better for you. And, a little down the track of course, we’d love to have a testimonial from you! 😀

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[Lisabuf]

Paul, It’s so great to hear encouraging reports like yours for someone like myself who is about 2 months into AP. Your post –and seeing the variety of abx you’re on– confirms my feeling that I need to get to an AP doc. I know what you mean about how discouraging it is to contemplate “if the rest of my life was going to be 24 hour RA pain and immobility.” On the days I’ve been slammed with fatigue it is hard to keep up hope. My diet change has absolutely ramped up my energy. I just hope it lasts, and that I have the strength to stick with it.
And you are also so right about the selfless volunteers who keep us encouraged, informed, and heard. They are bloody awesome!!! 😀 😀 😀

[Kats]

Hi Paul,

I’m so happy for you that you’re feeling so well now! Congratulations!

Just wondering if you could provide me with any more information on the Plaquenil and its relationship to knee swelling and kidney pain. I have both and am now wondering if remaining on the Plaquenil is delaying my progress?

Thanks, Paul!

Katie

[Maz]

@Pauyen wrote:

Before I even heard of AP I had pondered doing away with myself if the rest of my life was going to be 24 hour RA pain and immobility…. Those thoughts are long gone!!!

Paul, I can totally relate to what you said in the above quote. Just incredible to imagine that such simple medications can have such dramatic effects, isn’t it? It’s certainly not a therapy that is an overnight sensation, but you clearly made all the important changes in your life to achieve optimal results – you got informed, you found a good practitioner, you made supportive changes to your lifestyle and diet, got engaged with peer support….and you made it in very short order indeed! Men do seem to have an advantage over women, quite often (hormonal component?), but it takes quite a lot of work for anyone to get to this point and you really got down to doing it.

So happy for you and thanks very much for sharing your success. It may take a while to find your “sustained” remission place, so just keep at it and do what you can to avoid life’s stressors and known triggers. Sometimes there can be some unnerving moments on the way to sustainable remission and the odd flare might still occur, making you wonder if you’re going backwards…this is normal, but your friends will be here to keep you going. 🙂

Well done and thanks for taking the time to post and pass on the good news to uplift everyone here!

[Pauyen]

Lynnie – Cheers, you really helped me a lot with all the info I needed when my mind was a mess, I will certainly get onto providing a testimony soon. The testimonies I read when I first showed up here helped to convince me of AP and the whole infection “theory”.

Lisa – G’day! Before I started AP I knew I wanted to see someone who was knowledgeable in the subject, my sole interest was seeing a real specialist who knew exactly what they were doing (Im so glad I did). During my first appointment with my AP Dr, she confidently told me I would be better in 6 months, I recall feeling that something positive towards getting better was finally beginning.

Stick with it!

Katie – Cheers, I haven’t really got any more info on the connection. I just mentioned to my Dr the swelling still holding out on the tops of my knees & the sharp back pain when everything else was going so well and she just flat out told me it was caused by the Plaquenil effecting kidney function and that it would clear up when I get off it… and so it did , I felt a little unwell while I was getting off it, but then dramatically better. I really like my Melbourne medical team, they know so much, they said this, this and this would happen and so it did! I was on 400mg a day for roughly 18 months.

Maz – What can I say? Thanks? Many thanks? Thanks to you, Lynnie and this site for informing me of a choice which so called ‘specialists’ (Rheumatologists), local general practitioners and the Arthritis Foundation of Australia, either never told me of or told me was utter rubbish. They told me how sorry they were, they told me (basically) my life was stuffed, they told me how to ‘manage’ the pain, but they never told me of any alternative. You guys do an awesome job…

Will try to take it all on board, cheers!

[A Friend]

Pauyen,
I saw your topic/reply and stopped to read it! That is awesome! And doesn’t improvement feel so good. I was fortunate about the beginnings, like you. After 4 months, I knew I was on the right path. And by 8 months, I still remember feeling mostly like a well person…. only taking an ibuprofen (as Dr. Brown’s suggestion about helping to keep down inflammation, and also helping with greater absorption of our abx).

Pauyen, let me caution you not to assume that everything will continue forever, without your continuing to do good things for your body. I’ve just posted a link to a really impressive article from a site with “jigsawhealth” in its name. Let me suggest that you familiarize yourself with it… and possibly at some time ask your physicians their opinion. My thoughts (for my own case, which for years was so positive) was I wish I had known about the items in this link.

It was still in my copy/paste memory:

http://www.jigsawhealth.com/resources/vitamin-deficiency/print
Deficiencies: Overview, Symptoms, Causes, Natural Treatments and Medicine

Many thanks for your uplifting post!

AF
😀

[Pauyen]

Cheers A Friend,

I dont plan on letting my guard down in regards to my diet and taking abx and vitamins on prescribed days.

As far as that article is concerned, I dont actually know exactly what Im consuming or not (mineral/vitamin wise) 😀 . So I may have to investigate a little and ask my Dr as you say.

Thanks for the heads up.

Right now just enjoying the good life 😀

[Krys]

Paul,
Thank you for very inspiring news!!! May you reach full remission in no time at all!
Warm wishes, Krys

[Eva Holloway]

Paul,
what a story, I am so happy for you that you are doing so well. I looked at your mix of medication and I am so surprised of the amount of stuff you take. Wishing you even better health in the future.
Eva 😀

Eva Holloway

[dianne-sunshinecoast]

hi paul, what an amazing story, continued good health to you 😀 , very encouraging 😀 …kind regards..di.

[Jan Lucinda1]

Great news!!!

[Pauyen]

Cheers Kry, Eva, Dianne and Jan, I sincerely hope that you all, indeed everyone here and beyond the RBF regain their health from this debilitating ‘disease’. I still find it hard to fathom how in the dark mainstream medicine is regarding treatments available.

Eva, my Dr here reckons a combination of these ‘newer’ antibiotics are better suited to fighting these nasty bugs. Worked well for me… that’s all I know! 😀

Regards

Paul

[lynnie_sydney]

Eva – just a footnote here. Our (mutual) doc rx’s quite an array of abx. But, unlike U.S. LLMD’s, tends to rx in more Dr Brown-like lower-dose pulses. She is across the higher dose protocols in the U.S. and the protocols of the likes of Dr C. J. in South Africa – and believes in, at least mostly for here, the lower-dose pulsed regimes she and LW rx.

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[hopefull]

Pauyen,I know I’m posting this a little after the fact,so to speak,but how long did you have AS/RA ?I’m always curious about
how folks that have had disease longer respond to the AP therapy.Thanks and stay well!!Kathy

[Author]

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