ADULT ONSET STILL'S DISEASE

[andikempf]

Anyone dealing with this?
I am on Minocycline and Methotrexate.

Do not have the rash.
Do have painful/swollen joints.
Did have low grade fevers, fatigue, depression.

I am 56 year old female.

[Jan Lucinda1]

I have late onset RA.  I learned that RA can have a late onset, after 60.

[lynnie_sydney]

[user=2879]andikempf[/user] wrote:

Anyone dealing with this?
I am on Minocycline and Methotrexate.

Do not have the rash.
Do have painful/swollen joints.
Did have low grade fevers, fatigue, depression.

I am 56 year old female.

andikempf – welcome! From what I've read Still's Disease is primarily a form of JRA. It is rare in adults and most of those cases begin at around 30-35. What came up for me in terms of your symptoms is that they would also fit a Lyme Disease profile. Again, a very large percentage of LD patients never expereince a rash. It may be worth getting tested. Lynnie

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

[andikempf]

I am negative for Lymes.
After 4 months I am still have many fluid filled joints, painful movement.
Really worried that my dominant hand will never be OK.

[andikempf]

Is it Stills, like JAR? I am negative for RA.

[lynnie_sydney]

andikempf – not sure which lab you used to get tested. It apparently makes a great deal of difference. You may like to use the search function and perhaps type in something like Lyme lab tests and take a look at discussions on this. Lynnie

Be well! Lynnie

Palindromic RA 30 yrs (Chronic Lyme?)
Mino 2003-2008 100mg MWF - can no longer tolerate any tetracyclines
rotating abx protocol now. From Sep 2018 MWF - a.m. Augmentin Duo 440mg + 150mg Biaxsig (roxithromycin). p.m. Cefaclor (375mg) + Klacid 125mg + LDN 3mg + Annual Clindy IV's
Diet: no gluten, dairy, sulphites, low salicylates
Supps: 600mg N-AC BID, 1000mg Vit C, P5P 40mg, zinc picolinate 60mg, Lithium orotate 20mg, Magnesium Oil, Bio-identical hormones (DHEA + Prog + Estrog)

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